I don't have to image.. I am living in that hell. As With RSDNancy, I had never heard of RSD/CRPS before my Dialysis Fistula surgery back in 2006. I don't care what Dr's say, pain meds do help, along with many other things, covering my arm in a compression sleeve so that air does not touch it, heating pads, heating pads heating pads... I know I am preaching to the choir... Kindest regards...
Great job!!! The words to this song are right on! I was DX'd almost 8yrs ago. Being 35 it was one of the hardest things in my life. I never heard of RSD before I got it! I wasn't warned about it before my surgeries either. If they spent near as much on research for this as they piss away on Gov't funded green projects, we might be close to having a cure or at least some pain relief! Thanks!
Having this I am grateful of this and all the other vids about this disease, maybe the Doctors will see that IT HURTS even when there are no outward signs. I was hurt at work. but sometimes the pain is inside not outside, it still hurst, yet I am caled a DRUG seeker if I complain, or ask work comp to help payfor the medication that may help.
as a 53 yr old father of 3 beautiful daughters, who I.'ve tried to explain the pain to,among other members of my family, and friends. thank-you for his and the many video's I've recently been able to find on youtube.I had all but given up to the drs. constant," you have to walk more" " i need to take these pills," we will just do more nerve blocks "and after 7 months of specialists, i just gave up.after feeling so alone, and angry, I've found you all. Now i can show them i not crazy
I am hoping you are having a 'good day' :) Omg i would be fine never hearing that again. Why, cause our 'good day', means something WAY different that those that are not diagnosed.
Love this, the background music is right on to the pics and words portrait, I was daignosed in August of 2002, so 9 years ago. I have been there with all of this that you portrait, as in 2006 had 10th MVA and it moved to my upper extremeties too! Maybe we have the RSD burning pain to witness to others how much they would not want to truly experience the true reality of HELL, that's all I got at this point, as to y. . . . BE BLESSED! :)
This video and the other one you have one here are so true about RSD! My darned doctors have not been able to figure out what is wrong with my excructiating burning pain in my left foot! I'm on gabapentin and other very strong narcotics with no relief from this. This has been going on for so long that I doubt it could ever be reversed. I feel sorry for anyone who has this over more than a small part of their body. It is truly a "living hell". Thank you so much for this video. Thanks.
I was Dx ed with RSD in 1968 it makes me no more or kless an expert except on my own pain which Doctors just hatre to realize ,I lost my wife at 35 and I felt feelings again that werent pain ,you did a FANTASTIC jog ,Thank You Angel
People that watch this video may ask why the need to take such imagery and copy to explain what is it like to have this demon of a disease, the response is simple, that being: it is because many can never begin to understand the debilitating and emotional pain RSD brings 24/7.
So many with RSD create powerful and personal accounts of life with RSD because the people in our lives and our medical professionals treat us like we are malingering,
I was diagnosed with RSD in 2007. Thx for the vid.
I don't have to image.. I am living in that hell. As With RSDNancy, I had never heard of RSD/CRPS before my Dialysis Fistula surgery back in 2006. I don't care what Dr's say, pain meds do help, along with many other things, covering my arm in a compression sleeve so that air does not touch it, heating pads, heating pads heating pads... I know I am preaching to the choir... Kindest regards...
MedicRNsWife 3 weeks ago
Great job!!! The words to this song are right on! I was DX'd almost 8yrs ago. Being 35 it was one of the hardest things in my life. I never heard of RSD before I got it! I wasn't warned about it before my surgeries either. If they spent near as much on research for this as they piss away on Gov't funded green projects, we might be close to having a cure or at least some pain relief! Thanks!
RSDNancy 3 weeks ago
Having this I am grateful of this and all the other vids about this disease, maybe the Doctors will see that IT HURTS even when there are no outward signs. I was hurt at work. but sometimes the pain is inside not outside, it still hurst, yet I am caled a DRUG seeker if I complain, or ask work comp to help payfor the medication that may help.
keep up the good fight, RSD does not own me
Lyndabw 1 month ago
as a 53 yr old father of 3 beautiful daughters, who I.'ve tried to explain the pain to,among other members of my family, and friends. thank-you for his and the many video's I've recently been able to find on youtube.I had all but given up to the drs. constant," you have to walk more" " i need to take these pills," we will just do more nerve blocks "and after 7 months of specialists, i just gave up.after feeling so alone, and angry, I've found you all. Now i can show them i not crazy
zu3s9n1k3 1 month ago
Perfect. Thanks for taking the time....
I am hoping you are having a 'good day' :) Omg i would be fine never hearing that again. Why, cause our 'good day', means something WAY different that those that are not diagnosed.
Peace
Fellow RSD sufferer 2011
gypsyheart01 3 months ago
Love this, the background music is right on to the pics and words portrait, I was daignosed in August of 2002, so 9 years ago. I have been there with all of this that you portrait, as in 2006 had 10th MVA and it moved to my upper extremeties too! Maybe we have the RSD burning pain to witness to others how much they would not want to truly experience the true reality of HELL, that's all I got at this point, as to y. . . . BE BLESSED! :)
mmackify 6 months ago
This video and the other one you have one here are so true about RSD! My darned doctors have not been able to figure out what is wrong with my excructiating burning pain in my left foot! I'm on gabapentin and other very strong narcotics with no relief from this. This has been going on for so long that I doubt it could ever be reversed. I feel sorry for anyone who has this over more than a small part of their body. It is truly a "living hell". Thank you so much for this video. Thanks.
luvyourpets08 7 months ago 3
I was Dx ed with RSD in 1968 it makes me no more or kless an expert except on my own pain which Doctors just hatre to realize ,I lost my wife at 35 and I felt feelings again that werent pain ,you did a FANTASTIC jog ,Thank You Angel
rsdno
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rsdno 8 months ago
People that watch this video may ask why the need to take such imagery and copy to explain what is it like to have this demon of a disease, the response is simple, that being: it is because many can never begin to understand the debilitating and emotional pain RSD brings 24/7.
So many with RSD create powerful and personal accounts of life with RSD because the people in our lives and our medical professionals treat us like we are malingering,
I was diagnosed with RSD in 2007. Thx for the vid.
whirleygal 9 months ago 2
@whirleygal
Thanks for your comments and every word you say is exactly true. Thanks again! ;P
carmslil 7 months ago