I have Myasthenia Gravis. Under Anthem Blue Cross - COBRA I was getting IVIG every two weeks and was doing great! I only needed to pay about $200 for the premium. Suddenly it got canceled. Now the only insurance that would not deny me because I have a pre existing condition requires me to pay just under $550 in premiums, and an extra $1,000.00 for EACH IVIG infusion! I'm unemployed, there is no way I can afford even half that. Thanos is right, this is murder.
Ivig has slowed the advance of my slow & rapid onset neuropathies for 3 years. Now I'm getting stupid flack from my neurologist. If he cancels IVIG, my organs go out the window. I am so mad. This is murder.
Stacey Westerlund has been denied access to Rituxan the other lifesaving therapy that she needs besides IVIG. She has fought Medicare over 5 times and won to get this treatment to stop the progression of her disease. She can't fight anymore since she is in agony. Please help by posting your stories, comments, contact your Members of Congress. Patients cannot suffer anymore and need access to therapies that improve quality of life. No more denials. Help Stacey and all the others. GET INVOLVED!!
I have CIDP and I was getting my IVIg infusions every 7 days but then my insurance changed and the new medical group (Desert Oasis) is playing around and I'm past due with my infusions. Another example on how others can make decisions that could be life threatening. We must get the word out and ensure that this stops happening.
This video highlights 2 patient stories but thousands more are struggling everyday to receive access to IVIG, the lifesaving therapy. Share your stories.
This video highlights 2 patient stories but thousand more are struggling everyday to receive access to IVIG, the lifesaving therapy. Share your stories.
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Anyone know what the situation is with respect to this issue?
bronxling 5 months ago
Anyone know what the situation is with respect to this issue?
bronxling 5 months ago
As founder and Exective Director of the Alliance for Plasma Therapies, I promise we will help qll those in need of help.
plasmaalliance 2 years ago
I needed this 48 years ago--I"m glad there is some hope now,
please fight for those too sick to fight.
Ghostbead 2 years ago
The problems below are happening to many. If you need help please contact the Alliace for Plasma Therapies
plasmaalliance 2 years ago
I have Myasthenia Gravis. Under Anthem Blue Cross - COBRA I was getting IVIG every two weeks and was doing great! I only needed to pay about $200 for the premium. Suddenly it got canceled. Now the only insurance that would not deny me because I have a pre existing condition requires me to pay just under $550 in premiums, and an extra $1,000.00 for EACH IVIG infusion! I'm unemployed, there is no way I can afford even half that. Thanos is right, this is murder.
Sigdriffa 2 years ago
Ivig has slowed the advance of my slow & rapid onset neuropathies for 3 years. Now I'm getting stupid flack from my neurologist. If he cancels IVIG, my organs go out the window. I am so mad. This is murder.
1THANOS1 2 years ago
Stacey Westerlund has been denied access to Rituxan the other lifesaving therapy that she needs besides IVIG. She has fought Medicare over 5 times and won to get this treatment to stop the progression of her disease. She can't fight anymore since she is in agony. Please help by posting your stories, comments, contact your Members of Congress. Patients cannot suffer anymore and need access to therapies that improve quality of life. No more denials. Help Stacey and all the others. GET INVOLVED!!
plasmaalliance 2 years ago
Comment removed
plasmaalliance 2 years ago
I have CIDP and I was getting my IVIg infusions every 7 days but then my insurance changed and the new medical group (Desert Oasis) is playing around and I'm past due with my infusions. Another example on how others can make decisions that could be life threatening. We must get the word out and ensure that this stops happening.
David2CarpeDiem 2 years ago
This video highlights 2 patient stories but thousands more are struggling everyday to receive access to IVIG, the lifesaving therapy. Share your stories.
plasmaalliance 2 years ago 2
This video highlights 2 patient stories but thousand more are struggling everyday to receive access to IVIG, the lifesaving therapy. Share your stories.
plasmaalliance 2 years ago