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I have Sickle Cell as well, how often do you get sick?
E7V2M0 1 year ago
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I hope this helps and allows you to take an alternative path.
Please check out the research of Dr. Oji Agbai, PhD, and Robert Houston
Dr Agbai treatment is called Dioscovite
He has a book called Sickle Cell Anemia: A solution at last
Chef Dawud Ujamaa has a cook book called
Back To Our Roots: Cooking for Control of Sickle Cell Anemia & Cancer Prevention
rherbe2 1 year ago
baby girl, I had my sister watch your videos because you break my heart. She is now getting a government grant to work on this very disease. I pray every day that there will be a cure very soon. I know I will never live in your shoes, but after my sister told me what is going on in your body i am in awe of how brave you are. I am inspired by you, as people should be. You bring a voice to a problem that is in dire need of being addressed.
sdhadg 2 years ago
Your Dr. should listen to you. I know it's hard to find good doctors for us sicklers. I take MS (morphine sulfate) everyday...and if hospitalized you should have a morphine drip miligrams depends on severity of pain. I went through a bad withdrawal with an a-hole of a Dr. as well, while my Dr. was on vaycay. we are strong & we will maintain thru it all. Also, most of the nurses seem to be jealous i THINK THEY REALLY WANT the meds. I take dilaudid 4 mg. evry 3 hrs. as needed as a breakthru med.
JoieZReign 2 years ago
No sickle cell for me. But, I have a birth defect called Spina Bifida, and I totally know how it feels to be in the hospital for a long time. And yes, most nurses are bitches...I like the student nurses better.
=]
Good luck, hope you stay well!
FreakishlyDuckie 2 years ago
Hi Nephritina, I feel your pain. I have sickle cell and DVT also. I was just in the hospital for 5 weeks. I have been thru my share of good and bad doctors and nurses. It's frustrating when the doctors don't give you enough pain medication to control your pain. I take dilaudid and phenergan in the hospital. I normally take 4mg of dilaudid every 3hrs. How much dilaudid do they give you in your PCA pump and does it control your pain adequately?
yharneise 2 years ago
it depends on how much pain i have i recently have be place with a doctor at the hospital who acually talks to me and he listen so if im feeling better or worse he adjusts the medication as needed...
nephritina1 2 years ago
yep i feel your pain as i also suffer from SCD.. but in london its like we sufferes dont exist... its so hard to live with sickle cell!!
perplexx1 2 years ago