CAL-101 in CLL chronic lymphocytic leukemia

[heym3may3]

I have CLL and been on the Cal101 trial at Stanford since April of 2011. I had severe adenopathy (very large lymph nodes in my abdomen, the size of a basketball), white blood level around 100,000 and over 80% of my bone marrow filled with leukocytes. I have had very good success with this trial, and my adenopathy is almost gone, my blood levels are around 6,000 and bone marrow is reversing. After being admitted to the hospital three times in 2011, I have higher almost normal blood levels

[happinesson]

this is a good news for CLL patients..

[rhauentein1]

If you haven't heard, this is more than likely changing the way CLL will be treated in the fairly near future.  Trials are underway and have shown great promise. Not a cure, but will probably extend lives quite a few years.

[tyme4mike]

It would be nice if all the 'experts' on YouTube who are talking about CLL would get together and speak ENGLISH to people like me because I have CLL and it's KILLING ME! But there are so many opinions from so many different people that I don't know my ass from a hole in the ground anymore because everyone has the answers while I sit here waiting to die. That's why I leave my life and fate in God's hands. He's the only one who knows what he's doing.

[osumedicalcenter]

@tyme4mike would you like us to connect you with someone here at Ohio State to discuss?

[tyme4mike]

@osumedicalcenter Thank you, no. Millions sit and wait for a glimmer of hope, and hear "new and promising", "recent trials", and "testing is about to begin". I've spent 40 years being a lab rat and I have no more to give. I'm fine with the idea of death and embrace the Bible's viewpoint. Don't you feel it's time that all these "great promises and new ideas" become "one big idea" rather than a thousand individual ones? Work for the whole cure and lose the individualism within cancer research.