When will ME be treated as the physical illness it is ?

[sarahdelightful]

Hi there. I totally agree with you with saying that there is a lack of understanding and support for conditions like ME/CFS....I also am annoyed why doctors think that behavioural therapy will work on ME patients - ME/CFS is not caused because of negative thoughts so god knows why the NHS has got this as a compulsory treatment for CFS patients.....

[CreekFeet]

Perhaps that commenter misunderstood the point: this sufferer doesn't want to end her life, she wants to end the suffering. This couple is advocating for appropriate research and treatment, living through a horrible disease, living for a noble purpose.

[quick741]

She shouldn't have had to go through this for this length of time, she should have the right to end her life if she chooses, I know it isn't right, but is it right for someone to suffer like this for this long??? You decide.....

[835283]

I had a roommate with the disease M.E and he was forced to take heavy anti-psychotic drugs everyday which made him worse and they kept forcing him to take it. I was in a mental hospital with him in 2009 and they forced the same drugs on me also which made me throw up for 3 months which in the end gave me M.E destroyed my immune system. I haven't heard from my friend since 2009 when was was forced to take drugs as he was sectioned for having M.E, horrendous what I witnessed him go through, MY GOD

[835283]

I had a friend who was my roommate in the mental hospital I was in. I got ME from a medication they gave me that made me throw up for 3 months in there and said I had to take it. Anyway about my friend he had M.E and was sectioned and they gave him drugs without his consent and he had no choice but to take them. He got so much worse from the anti-psychotic drugs they were forcing onto him, I will never forget him and what the psychiatrists did to him, that memory is with me for life!

[sedod66]

i thought i had M.E for a week. turns out i just couldn't be fucked going to work.

[neil1758]

i was told by my doctor that there is no test for M.E, this is why its a mystery illness, doctors really need to do some more research into this. there is no real physical evidence that this it is neurological, my theory is it is a immune system problem.

[Unsweet]

This fucking breaks my heart. Bless her, the poor thing. I JUST found out about this whole CFS-is-bull thing... I feel SO strongly sympathetic towards sufferers of this horrible condition.

[antares4141]

Mold and CFS symptoms are directly related to each other. You can prove this to yourself by going to walmart buying a $37 dome shaped 9x7 tent,(no stakes needed, nylon very low on VOC'S) setting it up in your bedroom and putting a medium to large size hepa filter in it. Don't come out without a respirator designed for asbestos and mold abatement EVER,For about a week anyways. I know I am not the only one with this condition. PLEASE TRY IT AND CONFIRM IT FOR YOURSELF WHAT YOU ARE UP AGAINST!

[BretagneShrew]

thats so true, inside you just feel like you want to do all the things you used to be able to do. but you just have to rock in your shoe and live with the pain because you'll drive yourself mad if you keep thinking about everything you miss out on

[redrachel76]

Thank you Greg and Linda for making this video. I am also ill with M.E. I fully agree with everything you said.

[warrioriamnow]

Sounds like Lyme disease strikes again, You must know the tests are inconclusive for lyme, if you ahev any symtoms close to lyme, you have it no doubt get treatment any way you can. It is true after watching this Doctors love to make up fake diseases when it is Lyme disease.

[warrioriamnow]

Sounds like Lyme disease strikes again, You must know the tests are inconclusive for lyme, if you ahev any symtoms close to lyme, you have it no doubt get treatment any way you can.

[synapse131]

Certainly, Lyme represents one of the subsets of CFS but there is too, too much evidence that other viruses and bacteria and bacterial-like pathogens can cause these illnesses. In addition, there are small numbers of folks with organophosphate poisoning, ciguatera, etc. that are also being included under the rubric of "CFS." The major thing is that we have had a wave of pathogens move and spread across the world causing these illnesses and they have been ignored.

[wvlavender]

Thank you for getting this out there and I am soo glad that Linda has Greg to support her, my husband pretty much just left me by my self in another state for the state to take care of me and he yells alot.

[snowb4by]

the research is also absent here in the states. no one fully accepts the disease for as devastating as it is. my daughter has had ME/FMS for 11 years and it has robbed her of her youth. she suffers horribly every minute of every day and i am helpless to do anything to ease her suffering. she is also a very positive person locked in a painful and severely ill body, she is an exceptionally strong person or she would not have survived this long. thank you greg and linda for getting the word out.

[Retrograde107]

Hi my son is now 13yrs old he has been suffering M.E for 11 months and is in a wheelchair when he is able to get dowmstairs we have had NO support from any one other than his home tutor who he is now able to cope with for 30 minutes a day.why mr Blair is that?

[pricklesxpq]

Well done to you and your wife. I could see how hard it was for her just to talk. Have you considered editing this or one of your other videos to enter it in the P.A.N.D.O.R.A. contest? The winning video will be aired as a P.S.A. throughout America. I think if you were to edit one of your videos to fit within the timeframe of the contest etc then you would have a good chance. (Deadline 30th April though!)

[devongirlme]

Brilliant Gregg and Lynda. Is this actually linked to the Blair question site??

[ivortick]

Well done Greg - I hope this gets seen by those that have the power to do something about this scandal.

[Katyak11]

Thanks to Greg and Linda. Mr Blair, you must realise that, in its worse forms, ME DESTROYS LIVES for interminable years. There's a desperate need for biomedical research in the UK (in line with the international research). Those of us who live with ME are utterly disillusioned by CBT and GET as the primary interventions offered. There are other illnesses that can be this devastating, but ME is the only illness where people are left with no medical intervention or medical research.

[deadgirldreaming]

Thank you both!

Mr Blair - I hope you have indeed watched this and I hope that your government is going to do something about funding medical research, halting the useless and potentially harmful GET programmme and helping all of us who's lives are being destroyed by this illness.

[kaazoom]

Thank you once again Greg and Linda for being brave enough to share your lives with us. Hopefully the right people will eventually see you videos, and those of other ME sufferers, and take note. I think some politicians are using Youtube to get their message accross. Perhaps you could post your videos to them as video responses?

Paul