Sister's Spinal Neuro Stimulation Leads Being Removed GROSS

[thayden87]

I had this done and it didnt work if anything it made it worse case it would shock the crap out me so i had it taken out but i still my leads im getting them taken out this weak BEWARE WILL NOT FIX EVERYONE SPECIALLY IN LOWER BACK AREAS and can shock you and lay you out flat

[RockerDaddyTazz]

I am going in for lead replacement and a NEW procedure that will also put leads at the site of the pain!!

Lots of new hardware, but I still want the Motion sensitive or WII Implant NEXT!!!

GOD BLESS My Stim!

TTFN

[TheRealMznetwiz]

Did it help with your back pain?

[pokerdealer3]

@TheRealMznetwiz I don't think it has helped her as much as she would have liked for it to. She is still on her pain medicine al the time.

[got2luvs]

@pokerdealer3 hi poker. im trying to read up on this as much as i can b4 i go in for my trial stimulator placement & am super freakd out. the only reason id do something this invasive would be to not take ANY pain meds at some point along the line. can u tell me if her pain is any different than the pain b4 the permanent stimulator? i see u say she is still using her oral pain meds wich im sure ur familiar with, that there severely addictive&a persons dependancy on them can be difficult 2break.

[pokerdealer3]

@got2luvs sorry to hear you are having trouble. From what I get most everyone get really good results from this and gets the permanent one implanted, which she has, but she is in the small % of people that is still in pain. There is many days she doesn't get out of bed and yes she has to continue the very strong pain medication.

[Bibzzee]

Having my initial implant this week. Would love to read your overview if it's still available! I had cages put in L4 L5 in 98 and they have worked wonderfully! I have Multiple Sclerosis and new diagnoised herniated disc in the T-9 area. I think my physician are as excited to see if I get relieve as I am as we are just uncertain to which of the above is the culprit for all the pain! So ready to be OFF pain meds!!

[l4s3r0wn3r]

I had my perm implant about 6 months ago... It controls the pain fairly well ( apx 85% ) in my legs from nerve damage from scar tissue of previous failed back surgeries. I was able to cut my pain meds in half after a few months. Still wearing a 50mcg/h fentanyl patch and taking oxycodone and the occasional morphine tab to cover pains. Hope your sisters is working out well.

[99minerkc]

That's not gross in the least! I have a stimulator like hers for my feet. Unfortunately mine doesn't work very well, but on the positive side it does help a little!

[dmarcus48]

@99minerkc my pain doctor just suggested this for me. I've had both feet reconstructed in 2005 and 2006, and the pain meds aren't working anymore. Is it true that you can only lift 25 lbs?

[99minerkc]

@dmarcus48 No it's not true! I lift 50-70 lbs no problem! I think there maybe a 25 lb lifting restriction until you heal properly!! Ask your doctor how long that ristriction will be! For me it was a few months!! I didn't get anywhere near the amount of pain relief that I hoped for and was lead to believe I would get, HOWEVER I did get enough to justify the stimulator given my insurance paid 100% Good luck to you!!! :-)

[dmarcus48]

@99minerkc Thanks for the quick replay 99minerkc. I've learned that everyone is different. I'm a moderator on a yahoo health board for PTTI (the foot condition i have) and most people have the operation, are active on the board for 6-8 months and then move on fully healed. There's only a very few who continue to have problems and I'm one of them. I'm glad there's no weight limits (for you) and hopefully for me too. I'm currently checking with my insurance about coverage.

[dmarcus48]

@dmarcus48 I meant reply not replay. And I AM a little afraid of any surgery involving my back.

[99minerkc]

@dmarcus48 Good luck with your ins. Also, have you tried a medication pump implant?

If I had it to do over again, I would look into the pump option a lot more in depth, but I agree with you that every person is different and some swear by the stimulator.  Also, I have benefited about 40-50% which is 40-50% more than than I had before the stimulator. If you ever get it, I would be very interested to know how it works out for you! Take care!

[dmarcus48]

@99minerkc I'm trying to be less dependent on the pain meds, and be in less pain so I think the idea here is to try this, since it's drug free. The problem with the drugs is that you get used to them. I'm on 80 mg oxy 3x a day and they aren't working. I'd take a 50% improvement. Cause right now all i do is sit all day, I'm lucky in that I work in IT and can work from home. If it wasn't for that, I don't know what I'd do. I don't DO anything. And anytime I do something I'm in pain

[99minerkc]

@dmarcus48 If you add me as a friend I will give you an overview of my experience with my stimulator, both the positive and negative. My pain is in both feet too, so my experiences may be somewhat helpful as you think about whether you will get the stimulator. I tend to be a bit wordy, so if you are interested in my story(will try for short version)let me know. I will add you as a friend now.

[BIGBAER]

I just had my test leads removed this past Monday---and yes, it feels WEIRD!

But I am very excited about getting my permanent implant. 3 1/2 years of heavy pain medications is enough. I want my life back.

[sewyatt24]

I am having my neurotransmitter trial implant on May 3rd and very nervous about it. Does it hurt really bad after it is done? I am scared about that going up my spinal cord, and don't want to do it. I have read alot of bad things on the internet about it, so it is nice to hear some good comments about it on here. How many days is your back tender during the trial, is it the whole time?

[hometowngirl08]

I had my trial procedure April 2009, then implanted for good in July 2009 and then had a revision in Jan 2010. I love my stimualtor. Only right now I am experiencing a build up of either fluid or an air bubble. Quite uncomfortable and the stimulation has changed a bit. Listen to everything your doctor has to tell you! Don't be scared to speak up and ask questinos.

[cheverisimo1234]

i am also having this done in june//july. i had an epidural around a year ago before bypass surgery and my biggest fear is that the stimulator will fail like the epidural did for pain control

[diggy485]

i am getting ready for my trial stimulator. i am excited that i will hopefully be able to go off of the morphine. was it painful when they put the temporary one in? i have a slight fear of needles. i had a fusion done at L-5 to S-1, and a Laminectomy at L-4, L-5.

[TarynsWorld]

i have had mine since june and i love it the only down fall is it sometimes cause spasims that whioll knock you on your ass

[AaronRabin]

I just completed my 5 Day Trial and now am waiting for the permanent implant. I would rather have the tingling feeling than the sharp searing pain I have had over the past 6 years. The 5 day trial was like walking on clouds, I wish I didn't have to wait, however, it is worth it.

[darthdave78]

i just had the full implant last night hope it works like or even better than the trial

[yancey83]

Hello,

I have RSD in my right ankle and foot. This was the result from my last back surgery. Last week I had my permanent rechargeable stimulator surgically implanted in my back. The clinician needs to do some adjusting (I have 3 settings, or areas) but over-all it is working great! I think after the initial surgery pain goes completely away "I MAY be able to go WITHOUT" pain medications. HOORAH for my stimulator.

[Cmkrug]

I just had the trial stimulator implanted today.. is it normal for my leg to tingle?

[pokerdealer3]

Yes you will just need to let the dr know because when they put the perm. one in they will probably move the leads a little bit from where they are now. Also try adjusting the setting on your controller maybe it is set just a bit too high.

[got2luvs]

@Cmkrug the doctor told me today that the normal response to the stimulator is to mask the pain with a tingling or massaging sensation.

[pokerdealer3]

Yes she has the permanant one now and is doing fine with it. She sasid she would do it again in a heart beat, other than she does not like where they put the control box in her. She said it feels like it is right where she sits.

[tuan1765]

I hope all is well with you. How did the surgery go? What are the risks? Would you do it again?

[tntrichardson]

Hello! I am the person in the video and it really was painless.

[rudila27]

I had that done 2 months ago and now have a perm. stim. have you had your perm in yet?

[123dietdrpepper]

How are you doing? Is it still working as good as it was when it was first implanted? You should almost be one year out I imagine.

[bluebuzzybee]

hello,

did your sister get any benefit from this at all?I'm considering it currently and would appreciate the help.

Thanks