Added: 4 years ago
From: Get2KnowMenieres
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  • I was diagnosed with Meneire's in 2002 ...I recently started the "John of Ohio Meniere's Regimen" ... this includes LEMON BIOFLAVONOID, VINPOCETINE, L-LYSINE, GINKGO BILOBA EXTRACT, BETA 1,3 GLUCANS, SUSTAINED RELEASE VITAMIN C, VITAMIN E, MSM (METHYLSUFONYLMETHANE, and last but not least VERTIGOHEEL / COCCULUS COMPOSITUM. I am also going to an accupuncturist, chiropractor, and take an occasional diuretic.

  • I'm on many different medications for depression and mania. Do you think it would be safe to say that I can use most of the vitamins? I guess its a doctor question.

    How hyper does claritin make u?

  • Do not know what else to do. this 3rd Meniers flare has been unrelenting and progressive since June 2010. Have read all the studies, talked to a few experts, tried accupuncture, herbs, meditation. Currently on maxzide, HCTZ, Niacin, and intermittent Prednisone. Going to try the Enttex P100 device soon. I think God is just trying to either slowly torture or test me. I hope there will be another remission soon.

  • would be cool to have subtitles... .

  • i have Oregon medical marijuana i have been on it and only it for 2 years now its only thing that helps me. i don't have to take all that crap . it really does help. don't be ignorant to it .

  • The medication the guy takes in the video really works well. For the people who are experiencing the effects I feel for you. I'm still diagnosed with it, but havent had symptons in yrs, I had the disease for about 15yrs now. I take the meds that this guy takes plus betahistine hydraclorizide 25mgs it works amazing. Get to an ENT asap. The diziness is hell get the pills they will work.

  • ive just been diagnosed. Has anyone ever gotten rid of it completely?? I hate this.. i just took on a new job and only there two weeks and now this crap!!! HELP!!!

  • Just live life man. I just diagnosed today. Im a little scared, but whats living life scared going to do? Live your life, and take it head on. Good luck.

  • @engl4nd24

    i hear ya, im just afraid of losing hearing in my ears

    i just cant accept that right now =/

  • I THINK I HAVE SOMETHING IMPORTANT TO SAY to all those suffering Meniere's disease... I am 50 now and I have it since I was 12, I was not properly diagnosed until I was 25 and it's been some years since it got worse... I absolutely recommend Betahistine as it is the only drug that has helped me a lot on the last years; I am totally sure it is the only thing that keeps me from being disabled...

  • How did the symptoms start out for you? My neuro-otologist believes it's what I have. I have had symptoms since I was in the 8th grade, about 12 as well. I am now 22. I'm so scared because I have the typical symptoms of Meniere's but have not yet experienced the vertigo yet...and I'm scared it's coming soon.

  • @alexmottram07 Hi, I hav MS since 2008, with 3 severe episodes taht yr, each lasting for 5hr. Another bouts of attacks recurred this yr. (4x). Have been on betahistine ever since, up to 16mg tds (tid). This yr I m taking 24mg bd (2x/d). I m also taking mecobalamin, but no diuretics. I find that the vertigo attacks will just come & ago without any relationship to the drugs I am taking! I have even stopped taking Betahistine for as long as 2 mth, without getting any single attack.

  • @nas2020ful1 Hi. as far as I can tell it seems Meniere's disease is different on every person, that's the main reason why doctors just can't find a solution for it. For people suffering Meniere's like I do my three advices are these:

    1.God

    2. Betahistine.

    3. Stop worring about it and how it may affect your present and future life as worrying just make it all worse.

    As I have said before I suffer Meniere's disease for the last... 40 years!

  • @alexmottram07

    I have had it for 10 years, attacks are quiescent now and have been for 3 years, but the tinnitus and fullness has returned and hearing loss js so bad i need a hearing aid. but i am a musician. this is not acceptable.

    i wonder if it is stress related, at least in my case. i stil have much stress from a cult i left years ago. do you have any thoughts? it is the deafness i am concerned about now

  • thanks for talking about Menieres. Its so hard to live with, and its so refreshing to hear someone else with it. Seems like people who don't have it can't really understand the strange reality, & like you said, the ability to FOCUS gets all out of whack. thanks again.

  • The tablet that you mention is called Cinnarizine (STUGERON) and there's NO guarantee that this will stop attacks of cronic vertigo! In fact, no tablet guarantee's zero vertigo otherwise that would be classed as a cure for Menieres which we all know there's NO cure! Best treatment to control vertigo is Gentamicin Injections.

  • PLEASE PLEASE PLEASE I HAVE THIS DISEASE AND I FOUND A WONDERFUL TRICK TO BEAT THE VERTIGO AND ITS OVER THE COUNTER. Go to your local pharmacy and purchase meclizine. it comes in a chewable tablet or pill form. The chewable works faster. It is used for travel sickness. It goes to the inner ear and equals you out. Please trust my judgment. This stuff really works. If you are having bad vertigo your can take 2. Please try it, it works for me.

  • Meclizine's an antihistamine. I'd suggest you get a prescription for it though. Much cheaper that way. About 4 bucks for 100, vs. 15.00 for 20 OTC.

    I take 4 of them everyday, as well as 8 of the Equate's James talked about for night time. Dimenhydrinate 50mg. Plus 5 mg ativan.

    I take Valium for the severe attacks (thank god, only 3 times so far). Valium helps kick the attack down to about a day and half or so. Rest of the time, it's like walking on a boat packed with ringing telephones.

  • hi james. finally i found this video. i have menieres too, also bad balance, ear ringing, and dizzy more often.i ask the doctor having medical for menieres but it said doesn't have medical for menieres. i really suprised. thank God that u have medinices. please can i order this medinice for stop menieres diease?

  • Once I ate an entire bag of marshmallows and drank 3 cups of strong coffee, then I laid down on a spinning merry-go-round at the playground on a hot humid day.

  • Whats your point? You obviously have no idea how badly this problem affects people so we can all well manage without your stupid comments!

  • ...as if I was never a victim myself.

    As for me, I at least try to live with a sense of humour.

  • I suffer menears . I use to intake alot of salt in my food, overweight for my small size, did not drink water. I began a strict no salt diet, no can foods or frozen foods. Only fresh produce, no milk or cheese. No soda, coffee,sugar or oils. No fried foods only broil or barbecue.

    Within a month , I was out of my bed for the first time in 7 months and within 7 more months following this diet I was able to go to work again. I hope this helps someone.

  • thanks james, you have been a great help.. i suffer with vertigo and you have shown that there is a better future for us who have menieres/vertigo.. i am from wales,uk and it does not seem many doctors will give me much time and support so once againj thank you for your advice and support

  • Benadryl is a sedating antihistamine, Maybe you can ask your physcian about Non Sedating Antihistamies, won't make you sleepy. You mentioned Claritin, which is a non sedating antihistamine but You also take benadryl. Sounds like to many histamine blockers but Your doc knows best.

  • Hi Skarlosska,

    I take the Benadryl so I can sleep at night and for some strange reasons the antihistamines help relieve the vertigo from the Meniere's along with the diuretic. Also, when I go to bed it keeps me from feeling like I'm spinning... My doctor said it was alright for me to take it and he stated "whatever worked best for ya." I know it sounds like a lot of antihistamines, but it sure has help me out a lot!

    Thanks for the post!

    James

  • I see, Glad they are helping you out, My Mother has been diagnosed with Meneire's disease 10 years ago. So will everyone with meneire's benefit from the meneitt device? Great video's!

  • Nice one James - another great video on the Meniere's. I'm going to try the Lipoflavonoid myself. Thanks for the advice!

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