Hope your treatment it helping. I had heard that steroids were tough on the body's natural ability to heal. Hope to hear something from you soon. Take care.
I have such mixed feelings when someone tells me that they've found out what is 'really wrong' with them and get the right treatment for it.
I am happy for them and do sincerely hope the treatment works and keeps working. I just wish the same could happen for me one day. Plus, I do worry a little bit that they're being overly optimistic and then feel guilty about being a spoil-sport.
That said, I wish I could try these protocols. They sound hope-giving if nothing else.
i hear you. this illness is the longest and most trying road we will ever travel. but i believe it has an endpoint, or at least a point at which the road diverges, brings us back into life, sunlight, laughter again. treatment is grueling and feels interminably long. but i have every faith that we'll get through this, find a health we've never known, be the stronger for all we've survived and endured.
i hear you. i get really depressed and it's hard to continue on making videos. i know it is the time when people need to hear from me the most so they know they are not alone. i hope things start looking up and that this move is going to be positive for you. i hope that your new friend is keeping you company, i know my dogs being me a lot of joy on the worst days. take care.
I never understood what the word Chronic meant until I got sick with this disease. Chronic was not a word in my vocabulary. And when the doctor diagnosed me and said the word, I was like, what does that mean exactly? It means ongoing, never ending. It means you are in stasis and will remain so indefinitely. And that one word is an accurate description of this disease. Not fatigue, but Chronic.
Lots of hugs. You are not alone, there are many of us stuck in bed and on the couch.
So sorry that you are down. It is a disease that really tests your patience, isn't it. But, keep on going. You're gonna get there. We're gonna get there.
I'm sorry you're having a hard time Suzanne. I know exactly what you mean about getting left behind. Every once in a while my brother or sister will get sick with the flu or something and be home on the couch with me. Then a few days later they are back living life again and i'm still on the couch. The seasons pass, birthdays come and go...but we're still here on the couch. BUT,..we're going to get better. All we have to do is kill more bugs everyday than can grow back. Hang in there friend!
Hey! just wanted to say hello. i'm one of the newer subs interested in learning more about this terrible disease. Keep ur head up and keep hangin' in there! ~Neta~
I have a gastric band around my head because I'm a karate master.
jamesclackton 1 year ago
@jamesclackton that was my first true attempt at spam. I usually troll but I spam now sometimes too.
jamesclackton 1 year ago
Hope your treatment it helping. I had heard that steroids were tough on the body's natural ability to heal. Hope to hear something from you soon. Take care.
BuggedbyMPD 2 years ago
Thank you for vloggin about your CFS... I only have one video up about CFS & that's about all I have the courage to post. Thank you!
fastinggurl31 2 years ago
I have such mixed feelings when someone tells me that they've found out what is 'really wrong' with them and get the right treatment for it.
I am happy for them and do sincerely hope the treatment works and keeps working. I just wish the same could happen for me one day. Plus, I do worry a little bit that they're being overly optimistic and then feel guilty about being a spoil-sport.
That said, I wish I could try these protocols. They sound hope-giving if nothing else.
WackyLisa 2 years ago
i hear you. this illness is the longest and most trying road we will ever travel. but i believe it has an endpoint, or at least a point at which the road diverges, brings us back into life, sunlight, laughter again. treatment is grueling and feels interminably long. but i have every faith that we'll get through this, find a health we've never known, be the stronger for all we've survived and endured.
hang in there.
xo,
heather.
heiwalove 2 years ago
Hey there Suzanne! I'm sorry you are down!! I hope you feel better soon!
I wanted to say thank you for all the encouraging words on my channel lately! I really appreciate them and u!! :D
KeriLyn2980 2 years ago
i hear you. i get really depressed and it's hard to continue on making videos. i know it is the time when people need to hear from me the most so they know they are not alone. i hope things start looking up and that this move is going to be positive for you. i hope that your new friend is keeping you company, i know my dogs being me a lot of joy on the worst days. take care.
peterpauliepan 2 years ago
I never understood what the word Chronic meant until I got sick with this disease. Chronic was not a word in my vocabulary. And when the doctor diagnosed me and said the word, I was like, what does that mean exactly? It means ongoing, never ending. It means you are in stasis and will remain so indefinitely. And that one word is an accurate description of this disease. Not fatigue, but Chronic.
Lots of hugs. You are not alone, there are many of us stuck in bed and on the couch.
Carrigon 2 years ago
So sorry that you are down. It is a disease that really tests your patience, isn't it. But, keep on going. You're gonna get there. We're gonna get there.
cleric1104 2 years ago
Surrounding you with Healing Love and Light.
WillowDove40 2 years ago
I'm sorry you're having a hard time Suzanne. I know exactly what you mean about getting left behind. Every once in a while my brother or sister will get sick with the flu or something and be home on the couch with me. Then a few days later they are back living life again and i'm still on the couch. The seasons pass, birthdays come and go...but we're still here on the couch. BUT,..we're going to get better. All we have to do is kill more bugs everyday than can grow back. Hang in there friend!
thane17 2 years ago
Hey! just wanted to say hello. i'm one of the newer subs interested in learning more about this terrible disease. Keep ur head up and keep hangin' in there! ~Neta~
missneta05 2 years ago
ok, i tried to leave a comment but i don't think it took : (
I will just message you then : )
Hugs!
artsyfart66 2 years ago