My son has recently been diagnosed with Dravet and the expenses that comes along with any epilepsy are astronomical. Petrol, Drs Bills, Protective Gear, Medications the list is endless. Thank you to those companies who have helped this family out.
I wish all those who have Dravet Children the best of luck for their futures. Unfortunetly its not just the child who has it, the whole family has epilepsy because the child does.
My son has recently been diagnosed with Dravet and the expenses that comes along with any epilepsy are astronomical. Petrol, Drs Bills, Protective Gear, Medications the list is endless. Thank you to those companies who have helped this family out.
I wish all those who have Dravet Children the best of luck for their futures. Unfortunetly its not just the child who has it, the whole family has epilepsy because the child does.
Good Luck and God Bless x
tjsstj 2 years ago
Saw this at the Dravet conference in Chicago this past year. Making me cry all over again.
God Bless!
GunnysQueen96 3 years ago
My daughter also has dravets syndrome and I know your pain I pray for everyone who has a child like ours in hopes for one day finding a cure!!
maxxdarren 3 years ago
Wow. That is tragic. I have epilepsy myself JME to be precise. But this makes mine seem mild and not a problem.
PhoenixAngel429 3 years ago
Amazing story...Thanks for sharing
my9pandas 3 years ago
It's tragic that they have to pay so much to keep her epilpesy under control
PhoenixAngel429 3 years ago
Learn more about Sydney and Dravet syndrome at HopeForSydney(dot)com
HopeForSydney 4 years ago