Great video! Very will done and certainly captures many of the feelings, hopes and fears of our journey thus far. Our daughter has HLHS and just had her Glenn last Friday at Lucile Packard Children's Hospital in Palo Alto, CA, where she is now recovering. Thank you for you efforts both to raise awareness and capture the journey of having a child with CHD. I think you've done an admirable job of both! God Bless.
Thank you so much for saying my thoughts and feelings.. ohh the fear. the constant checking breathing and so... my son is born whit multiple CHD and it was not discovered untill he was 5weeks old. in a weird way its his blessing he has so many flaws in the heart, because thats what keept him alive, he is 4months now, had 1 surgery, scheduled for 2more..
in a way it brings comfort to see so many others in same situation, but also sad. i just wish i knew some. my best wishes and hopes to you all
wonderful video. the words hit the nail on the head. my baby has TGA Pulmonary stenosis and large vsd as had 2 surgerys already and at least 2 more to come, you cant imagine what happens - your words are exact!
He's home now but overshunting so ng fed etc. Finally putting some weight on after 13 wks post op. Hes now 21 wks old. and wonderful (just grumpy!!)
How cute all the babies inside the video...God will fix it ^^ I got a sickness too..arghh...when i was 11...I got chicken pocks from a mother who got it at the 2nd time..and the same time I got chicken pocks,the same time I was pouring v blood..I cant walk v balance or write nicely..I was really dizzy..I went to see many doctors already....many...
My daughter was diagnosed with HLHS while still in utero. We traveled nearly 2,000 miles from home so that she could be delivered in one of the best centers in the world. She did very well initially, but complications arose two-weeks after her surgery and she passed away of unknow cause at 15 days old October 18th, 2007. We met many people in the hospital who's babies were not diagnosed with HLHS until they were hours old and experiencing cardiac failure.
This video was very good, very nice! I like to see awareness for CHD. I was born with a congential heart defect. I'm now 20 and so happy to be alive, I know back when I was born not a whole lot made it.
AWARENESS is so important, thanks for sharing. My Grandson is twenty months, he will under go his third surgery in April of 2008. Last month we were part of our first heart-walk with AHA. How wonderful to see so many people involved and learning about these special children. Very nice slide show, what beautiful children. God bless each and everyone of them.
i was born with heart defect i am now 21 almost 22 years old not many babies the year i was born lived passed birth that had the heart defect i do but i am glad to be a live even though i suffer from other thing on top of it like i cant eat gluten but thank God i am a live
My son has CHD and its nice to see that some one some where is trying to raise awareness about this. Do you know of any programs or get togethers for Famils of CHD?
This is my two brtohers, sadly one died when he was a baby and the other one is now 23 years old, thank you for uploading this video, this needs to be televised so ppl. can be aware of the serious problem...
Great video! Very will done and certainly captures many of the feelings, hopes and fears of our journey thus far. Our daughter has HLHS and just had her Glenn last Friday at Lucile Packard Children's Hospital in Palo Alto, CA, where she is now recovering. Thank you for you efforts both to raise awareness and capture the journey of having a child with CHD. I think you've done an admirable job of both! God Bless.
erinemmadad 3 years ago 2
Thank you so much for saying my thoughts and feelings.. ohh the fear. the constant checking breathing and so... my son is born whit multiple CHD and it was not discovered untill he was 5weeks old. in a weird way its his blessing he has so many flaws in the heart, because thats what keept him alive, he is 4months now, had 1 surgery, scheduled for 2more..
in a way it brings comfort to see so many others in same situation, but also sad. i just wish i knew some. my best wishes and hopes to you all
MiriamDk 3 years ago 2
wonderful video. the words hit the nail on the head. my baby has TGA Pulmonary stenosis and large vsd as had 2 surgerys already and at least 2 more to come, you cant imagine what happens - your words are exact!
He's home now but overshunting so ng fed etc. Finally putting some weight on after 13 wks post op. Hes now 21 wks old. and wonderful (just grumpy!!)
dmsjlloyd 3 years ago
How cute all the babies inside the video...God will fix it ^^ I got a sickness too..arghh...when i was 11...I got chicken pocks from a mother who got it at the 2nd time..and the same time I got chicken pocks,the same time I was pouring v blood..I cant walk v balance or write nicely..I was really dizzy..I went to see many doctors already....many...
alexzandriana 4 years ago
My daughter was diagnosed with HLHS while still in utero. We traveled nearly 2,000 miles from home so that she could be delivered in one of the best centers in the world. She did very well initially, but complications arose two-weeks after her surgery and she passed away of unknow cause at 15 days old October 18th, 2007. We met many people in the hospital who's babies were not diagnosed with HLHS until they were hours old and experiencing cardiac failure.
AddiesMamma 4 years ago
This video was very good, very nice! I like to see awareness for CHD. I was born with a congential heart defect. I'm now 20 and so happy to be alive, I know back when I was born not a whole lot made it.
starryblueeyes94 4 years ago
AWARENESS is so important, thanks for sharing. My Grandson is twenty months, he will under go his third surgery in April of 2008. Last month we were part of our first heart-walk with AHA. How wonderful to see so many people involved and learning about these special children. Very nice slide show, what beautiful children. God bless each and everyone of them.
nursescarels 4 years ago
i was born with heart defect i am now 21 almost 22 years old not many babies the year i was born lived passed birth that had the heart defect i do but i am glad to be a live even though i suffer from other thing on top of it like i cant eat gluten but thank God i am a live
kiddlyjesus3000 4 years ago
there is great groups for CHD chilren and there parents at the msn groups...I have CHD but I am now a adult soo i'm a grown up CHD.
Fruitymonkey88 4 years ago
My son has CHD and its nice to see that some one some where is trying to raise awareness about this. Do you know of any programs or get togethers for Famils of CHD?
Logansmommy913 4 years ago
What state do you live in?
vrboyles75 4 years ago
this vidio is very nice i have a heart defect ad it is nice to see that some people are trying to change how many are dieing from it!!!
Fruitymonkey88 4 years ago
This is my two brtohers, sadly one died when he was a baby and the other one is now 23 years old, thank you for uploading this video, this needs to be televised so ppl. can be aware of the serious problem...
torontomapleleafer 4 years ago
Thank you, heart family, whomever you may be. My baby is a heart baby too. This is something the entire world needs to see. This is beautiful!
sectorsgirl 4 years ago