Added: 4 years ago
From: Pyrogirlvampire
Views: 2,248
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  • You're the second person I've found... and like the first, haven't updated in years. If you read this, I'd love to talk. I'm trying to find a rheumatologist because my doctor thinks I have Lupus, and a support group on YouTube is just what I need!

  • hey vampire girl, look for the stem cell procedure, seems to be doing great things for people with inmunological problems

  • Thanks for sharing your story. I have Systemic Lupus and was diagnosed in 2003. Your video is very informational and helpful because I don't know much about the Discoid kind. You're beautiful. I'm going to subscribe. :)

    I also have a Lupus channel...

  • I would probably bang that.

  • I have sle for about 4 years i am at the point i am nauseated 24/7 if i eat i throw up , i have sores all over what is happeneing drs never seem to have the right answwr

  • Hi, I have been a Discoid Lupus sufferer for 25 years. When I first contacted the illness it was diagnosed as Jessnas disease. They put me on anti-malarial drugs for year and as they where having no affect whatsoever I gave them up and stopped seeing the dermatologist. To cut a long story short I changed Gp's and the new doctor sent me back to the consultant who diagnosed Discoid Lupus, the only thing that gives me relief is Prednisolone, which does nasty things to you but it does help.

  • Thank you for your video. I am a discoid lupus sufferer in denial.

  • I'm a dude and i have Lupus, it gave me brain damage, it sucks!!!!!, hey you're kinda cute Vampiregirl!!, let's go out!!!!!, see ya!!! Iván

  • I was diagnosed this year.

  • Hey, my name is Tish, and I thought I posted, but it didn't show up, new to this, so if you get it 2 times, sorry. I have had Discoid Lupus, for 10yrs, lost over a third of my hair permanantly,and have some facial scarring, I was diagnosed with SLE last year, so now learning new limits on life, but found a really good online support group at Daily Strength.or, Hope you join us! Tish

  • I am one of those rare cases. A male with lupus. Diagnosed in 1984, after years of suffering and being told there was nothing wrong with me.

  • Thank you. I suffer from Lupus. I can bearly talk about it, so seeing this I feel so helped. Please continue

  • 1. I copied the following from a message board check out my video on health.

    1/5/2007 -- Jane from United Kingdom:

    "I am suffering from Lupus disease. It is painful and has messed my skin around my face. I met this lady, a distributor and she handed me two CDs and a bottle of Mangosteen juice. Within a week of taking the juice the pain had subsided greatly.

  • 2. The scars on my face are also improving. I signed up and got my own Mangosteen juice. This is a miraculous juice that God has brought in our midst. I intend to go for a checkup after 90 days of taking it and I bet it will be different."

  • I HAVE SLE IM SICK OF BEING SICK....

  • Count me in... SLE

    I'm 21, I was just diagnosed and am actually going through my first true "flare-up" right now... oh what fun... =P

  • I have SLE here. Diagnosed in 2003.

  • i have sle

  • "sighs" I have Lupus too...add me

  • i dont have lupus but i still like being in contact with you! this is a nice idea tho and you should keep it up. informative vid too.

  • thank you. :)

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