Daniel2008 on floor - Severe Cerebral Palsy teenager

[mmwwh]

well done daniel :)

[LissCanDoMakeup]

i love him already:]

[walkingdan]

@LissCanDoMakeup Thank you!

[Morten1502]

His acticuly realy smart to have a brain fail

[WayoftheMemra]

I'm 34 CP “hemi”. Have you heard about a program by Doman-Delacato - The Institutes for Human Potential in PA that will help children with CP My parents took me there and started me on their program. It involved teaching me to crawl, creep, walk & run. My mother had three ladies come over every weekday to “pattern” me to learn how to crawl and then creep. I was also shown flash cards to learn to read and to learn numbers and math. The program Tremendously helped me.

[walkingdan]

@WayoftheMemra Thank you for your input, glad that program works for you. “hemi” is much less disabled than “nonverbal spastic quad w scoliosis”. I Google Doman Delacato. AKA Psychomotor Patterning which required 5 adults for Daniel to move.

[walkingdan]

@WayoftheMemra These two founders at the Institutes for the Achievement of Human Potential (IAHP) are PT & education psychologist. Their work drew heavily on the ideas of a neurophysiologist; and their therapies are based on the theory of neuroplasticity. Which would not cure Daniel’s spasticity problem. IAHP offered masking technique, which believe to increase cerebral blood flow; my opinion is HBOT is much more effective for CP.

[walkingdan]

@WayoftheMemra My understanding IAHP program Patterning is most effective for Down Syndrome. It may also help mild CP with much higher cogitative ability, but I feel conductive education is much more practical, cost-effective, realistic, and helpful. The extend of Daniel’s brain development is so severe that he is lack of muscle control/strength, and movement coordination being effected by spasticity, that creeping on his own is impossible and crawling would be a MIRCLE!

[WayoftheMemra]

@walkingdan I'm the mother replying to you. What you don't understand about The Institutes is that they help you train the brain of your injured child to learn the basic functions of life. CP is a brain injury. Yes, it is a huge program & takes lots of the parents energy & resources. But, it worked for my son (who couldn't creep or crawl as a baby) & I've seen what it can do for others that were in the program. My son was worth everything we did for him to live independently which he does.

[walkingdan]

@WayoftheMemra You claimed your son has “Hemi”.  I am not sure if that is “hemiplegia” or “hemiparesis”, regardless, it is just one side of his body has total/partial paralysis or just weakness. Wikipedia stated, "Not to be confused with Spasticity, Spastic quadriplegia or Quadriplegia". My son has much worse condition than your son, Daniel will never be like you son!!! Nor can we expect an apple from an orange. Your comments might help others. Hope you can watch my son’s other videos.

[walkingdan]

@WayoftheMemra Daniel also worth everything to us for him to be independent and we must be realistic with our hopes given his condition. We had already invested our resources in conductive education for years, special light/pressure points/water therapy, outdoor recreation, and computer to enrich his life; and that is why he had already reached much of his potential. In 80’s, I developed computer software on a touch screen for him to make choice for communication, but he wasnt motivated.

[walkingdan]

@WayoftheMemra Until you have seen Daniel’s MRI, you would never known his lack of brain development that set his limitation. Till then you would not truly appreciated current his functioning skills. He had already shown his remarkable skill by driving a power standing wheelchair, walking in his gait trainer, and other functioning skill that I cannot show on YT. Daniel should be in the Guinness world records for his accomplishments. However, if IAHP is free, I would love Daniel try it!

[walkingdan]

@WayoftheMemra I do understand IAHP program, watched the TV special years ago & also known a down syndrome teenage locally gone to the program w success; but they were born w much higher potential/functioning skills than Daniel. He has no hands coordination to pick up any objects to point /write/feed himself. Daniel will drop his head hard on the table, if he is unwilling, that is an unsafe floor mobility for him. kids like D had many surgeries and deformities that can threaten their lives.

[walkingdan]

@WayoftheMemra Seeing is different than hand-on to feel the tightness of Daniel’s joints; shoulders/elbows/wrists/finger­­s, hips/knees/ankles/toes, necks, & trunk strength. Then you will know crawling for D is a miracle! Conductive Ed offered more realistic daily basic functional life skills than patterning and CE already trained Daniel’s brain to walk in his gait trainer. Daniel had yrs of CE, and Daniel being an adult; crawling & creeping is inappropriate mobility at this stage of his life.

[walkingdan]

@WayoftheMemra I hope someday, his insurance will fund HBOT in our state, so that Daniel can try it before his brain is fully developed by age 21. I am always researching for program that can help Daniel to be more nonindependent.

[WayoftheMemra]

@walkingdan I'm the mother replying to you. What you don't understand about The Institutes is that they help you train the brain of your injured child to learn the basic functions of life. CP is a brain injury. Yes, it is a huge program & takes lots of the parents energy & resources. But, it worked for my son (who couldn't creep or crawl as a baby) & I've seen what it can do for others that were in the program. My son was worth everything we did for him to live independently which he does.

[jessicajamesjessie]

this is just too heartbreaking and half way through i had to stop watching

[1958boomergirl]

Why would any school object to a power chair that would help a child with cerebral palsy get around more independently? Is such a school administration totally heartless? Or am I missing something here? I'm baffled about that.

[walkingdan]

@1958boomergirl #1) Yes they are heartless! Actually, the power wheelchair is not an issue, the school district did not even know Daniel has the cognitive ability to maneuver and operate a power chair in any of the district’s evaluations. They only recognized Daniel can only smile and documented they are unable to test Daniel’s vision. The fact that the district is incapable to handling Daniel in low tech equipment, such as, his walker and stander; demonstrated the district is incompetent.

[walkingdan]

@1958boomergirl #3) You should not be baffled, this is an act of retaliation and discrimination!

[walkingdan]

@1958boomergirl #3) The less Daniel can, the less supervision he needs, because he is immobile. This is why they like Daniel to be passive and helpless to justify there is no need to educate him in all aspects of self-help life skills. You should not be baffled, this is an act of retaliation and discrimination!

[walkingdan]

@1958boomergirl #2) Based on my experience the school district, the school will position his support system on his power chair where Daniel is uncomfortable and unable to drive. They will intimidate and humiliate him; like what they did with his walking, standing, and sit-to-stand pivot transfer skills. Every year, Daniel loss more and more physical strength during school year.

[larbacmc1]

You must see this video on You Tube

"Zach's Oprah Audition"

A C.P. young mans audition

[walkingdan]

@larbacmc1 Thank you for your sugguestion.  Zach is sooo funny, we really enjoyed his videos.

[larbacmc1]

They should get him a power wheelchair with a power back, power legs, top of the

line power wheelchair and a walker so he can get exercise which your asking for

and a computer for him to talk can be gotten and added to the power top of the line wheelchair. Then he would be mobil and could communicate with a computer.

You May Need To Move To Connecticut or Massachusettes or California who

are much better for Helping The Disabled. MA or CA are 2 best. Apply For SSI and Medicaid to cover it.

[walkingdan]

@larbacmc1 Thank you for sharing. I really appreciated!

[romanido]

Amazing!!! so cute and so corageous!! never give up your love to daniel , my love is for you both

I´ve seen all the videos of Daniel , he is incredible

[walkingdan]

@romanido Thank you for watching all Daniel's video. I just realize I forgot to reply to your courteous comment.

[katchkittie]

Thank you so much walkingdan,you have opened my eyes to my own personal disability xx

[walkingdan]

Thank you for your comment. He really make us appreciate every little things we can do on our own. He is a real figther and wouldn't give up.

[nitaritzeneu]

I have a 13 year old son with many of the same issues. He has a permobile like daniels, and a modified pacer, like Daniels. I am also battling the school to allow Chase to use the walker in school. My heart and prayers go out to Daniel and to you!

[walkingdan]

@nitaritzeneu Believe it or not, it's been 7 months since your comment and we are still battling with the school on the walker issue. Fortunately, Daniel's doctor still in support for him to walk for his daily activities in a educational environment.

[kidzrule1718]

Hi, can he talk and does he wear diapers?

[walkingdan]

No, he can not talk at all. He has control of his bladder and bowl, but he needs other to transfer him to proper equipment to enable him to perform his own personal hygiene.  The Permobil (power standing wheelchair) helped him tremendously to gain access to public restroom.

[mellowmushgrapetripp]

wow you are an amazing person~~! i agree technology only worsens the bodys mobility good luck ps my name is daniel to ahah

[maynardslove10000]

you work so hard and so does he, people like you who don't give up are amazing!

[walkingdan]

Thank you! I hope this video will inspire others not to give up because of their limitations. There are alot more in head of kids with cerebral palsy then any one can ever imagine, only if these kids can act out on their own :)