Added: 4 years ago
From: Shira2
Views: 22,991
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  • when you say Evillbiss do you mean Devilbiss, cause i found only devilbiss and no Evillbiss

    Thanks anyway !!!

  • @fontas29

    Yes Devilbiss is what I meant.

  • could you please tell me the name of the second machine you used after the cough assist .... i hope the best for you.

  • @fontas29 I'm using the Evillbiss suction machine as Shira can't swallow

  • aww poor thing. she is so cute tho!:)

  • Thanks for posting this. I'm a nurse working with ventilator dependent patients in the home setting, but some equipment are new to me like the cough assist. It was for me to see someone actually using.

  • I will find a cure for SMA.

  • Shira is such a little trooper. I just wanna kiss her all over her sweet, little face. *Kisses* Mmmmwah!

  • Wow, we can't believe someone else is living the exact life we are living!! What part of the US are you in? We are new to Youtube and live in Pacific Northwest, Oregon and would love to meet other SMA families. Our Baby J also has SMA 1, 15 months old, has a G-tube, uses cough assist, has trach and vent and is doing okay, some ups and downs and a great smile all the way. Looking at your video is like looking into our own life, a mirror into his world..his room, etc. Even the flower!!

  • Your baby is in my prayers.

    GOD BLESS.

  • Hi Brad! I just came across this and I think this was an awesome idea and great way to help show others how to do all this!!

    Shay and Sierra Journey Factor (SMA 2)

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