mty 4 year old daughter got diagnosed with this monster it breaks my heart seeing her go thru this i just dont want to imagine when she has to leave me :'(
Their soul's were too perfect for earth, so the lord brought them home. They were fragile, yet strong. They hurt, but never complained. They lived such short lives, but their souls will on forever, with God. And maybe in their next life, they will not suffer, and will live full lives, complete with a wonder family, children, and joy. No more suffering is needed in their poor little bodies.
while feeling the joy of a MAJOR breakthrough 4 DIPG research this week, a friend reminded me that a key funding source, the National Institutes for Health, is under assault in the US budget debates: H.R. 1 will cut NIH funding by $1.6 billion (5.2%) – cut the budget for medical research to $29.4 billion– back to 2008 levels roughly. I used this site to tell the US legislators what I think: Act Now to Protect Research! links to action can be found via research!america dot org
the canser is a brain tumor. now my sister had to have 5 operations on her brain to try to remove the canser. it didnt work is kepted coming back. my sister also lost her walking and talking abitlitys. my sister was really nice she shared everything with everybody first before she ate or shared candy. she was my bestfriend for life until i found out she had a brain tumor. i was her little brother at age 6 trying to think what happen and where did she go. I MISS MY SISTER REALLY MUCH 1/1/04.
My angel, Max Lacewell, is still battling this monster. Words can not express the amount of love and care I wish I cold send to their family. Rest in piece, or DIPG warriors - you will NEVER be forgotten.
DIPG is a beast. My 7 (now 8) yo was called home to heaven after 14 courageous months. I look at the before and after pictures of these WONDERFUL children and I see my daughter Autumn in all of them. How true that it doesn't discriminate.. I am so proud of my daughter and for her opening my eyes to something far more bigger and powerful. God Bless everyone who has battled and is still battling.
DIPG is an awful monster. My 13 yo son Zachary lost a courageous 7 month battle to this horrible disease, and was reborn into the arms of his Saviour Jesus Christ on 12/26/08. His big sister Sarah posted several wonderful videos on You Tube. They are under Zachary Dievendorf. I miss you so much Zachary. Love Dad!!
Notice how in their first pictures, they are all so adorable and cute... but in the other pictures when they are changed they are even more beautiful.
Could any one who has gone thru brain surgey for a Anaplastic Medulloblastoma tumor and gone thru treatment, please let me know how it went, my daughter is 10 years old and she got her surgery done this December and will start Radio and Kimo this week. I would like to speak to someone that has gone thru this.
This is a wonderful tribute, so hard to watch! I hate this monster that not only makes our children sick, but changes everything about them. My seven year old is a year off treatment...I hope and pray we never have to face relapse.
DIPG is a tumor of the brainstem which controls vital functions, making it inoperable. Barely anyone has survived it (confirmed cases of 5 year survival you can count on two hands). After diagnoses the child generally has 6 months to 2 years max. Chemo & radiation can prolong life, but the side effects often out way the benifits, as either way the outcome is the same. Worst of all, it rarely attacks anyone over the age of ten.
It's a tumor located in the brain in the pons area. It is inoperable so treatment makes the tumor shrink but eventually the patient will go through tumor progression. They will have partial paralysis, loss of hearing, loss of voice, and sadly they will loose the ability to eat and BREATHE
Tears of unspoken sorrow fall from my eye...
reidrules45 7 months ago
Tears are the words the heart cannot speak...God bless and keep the families of these beautiful children.
66melkim 7 months ago
who ever made this video im so happy. my little sister is in this video. thank you. this was very kind. 3:42- 3:51
Al123456ize 7 months ago
@Al123456ize :( rip
PregnantHIppo9 7 months ago
Sooooooooooooooo SAD!!!!!!!!!!!!!!!!!!!may almighty Allah give those parents the strength
mimdipu 8 months ago
I don't know who has prepred this VDO, but i love to see my daughter at the end of this VDO.
shahed1 8 months ago 2
@shahed1 Sooooooooooooooo SAD!!!!!!!!!!!!!!!!!!!may almighty Allah give you the strength
mimdipu 8 months ago
mty 4 year old daughter got diagnosed with this monster it breaks my heart seeing her go thru this i just dont want to imagine when she has to leave me :'(
TheGraciela83 11 months ago
Their soul's were too perfect for earth, so the lord brought them home. They were fragile, yet strong. They hurt, but never complained. They lived such short lives, but their souls will on forever, with God. And maybe in their next life, they will not suffer, and will live full lives, complete with a wonder family, children, and joy. No more suffering is needed in their poor little bodies.
reidrules45 11 months ago
while feeling the joy of a MAJOR breakthrough 4 DIPG research this week, a friend reminded me that a key funding source, the National Institutes for Health, is under assault in the US budget debates: H.R. 1 will cut NIH funding by $1.6 billion (5.2%) – cut the budget for medical research to $29.4 billion– back to 2008 levels roughly. I used this site to tell the US legislators what I think: Act Now to Protect Research! links to action can be found via research!america dot org
nycosmopolitan 1 year ago
RIP Elena Desserich and Chloe, you'll ALL be missed.
cancer stinks, STOP CHILDHOOD CANCER NOW
XDinexitaXD 1 year ago
the canser is a brain tumor. now my sister had to have 5 operations on her brain to try to remove the canser. it didnt work is kepted coming back. my sister also lost her walking and talking abitlitys. my sister was really nice she shared everything with everybody first before she ate or shared candy. she was my bestfriend for life until i found out she had a brain tumor. i was her little brother at age 6 trying to think what happen and where did she go. I MISS MY SISTER REALLY MUCH 1/1/04.
screamo5786 1 year ago
AWW my sister is in here. here name is ashley carro. i miss her so much R.I.P little sister
screamo5786 1 year ago
I am a firefighter and i have a cousin she has SMAtype 2 i am on face book \jrfirefighter1990@yahoo.com i amk open to all friends on face book
jrfirefighter1988 1 year ago
RIP Brianna Sharp - DIPG Angel 1996-2009
khorseshoe2 2 years ago
Is there ANY survival rate fr this type of cancer at all?
DJMoxie 2 years ago
There are a few kids who are past 4/5 years since diagnosis but approximately 90% will unfortunately die within 18 months of diagnosis.
lilliesha 2 years ago
This may be kinda rude but why do they swell up so badly?
DJMoxie 2 years ago
Steriods
lilliesha 2 years ago
What about complete remission?
DJMoxie 2 years ago
Don't think there is anyone as far as I know as the tumor is inoperable
lilliesha 2 years ago
There's one girl named Dasia who is still living after almost 5 years of DIPG. She's considered cured and is still going strong.
AnimeFreakLover201 2 years ago
I know she was diagnosed in 2005, there's a few diagnosed from that year considered cured
lilliesha 2 years ago
What does "Dx" mean? Is that when they were diagnosed? And at the bottom is it their birth date and the date of their death?
SonicFan887 2 years ago
My angel, Max Lacewell, is still battling this monster. Words can not express the amount of love and care I wish I cold send to their family. Rest in piece, or DIPG warriors - you will NEVER be forgotten.
iLaurenM 2 years ago
DIPG is a beast. My 7 (now 8) yo was called home to heaven after 14 courageous months. I look at the before and after pictures of these WONDERFUL children and I see my daughter Autumn in all of them. How true that it doesn't discriminate.. I am so proud of my daughter and for her opening my eyes to something far more bigger and powerful. God Bless everyone who has battled and is still battling.
Rest in Paradise my Angel Autumn
Melissa ( mommy)
autumnangel08 3 years ago
what is dipg?
GospelMusicPlayer 3 years ago
what the video to find out or to find out more type it in in google (it is a type of cancerous brain tumour situated in the pons of the brain stem)
lilliesha 3 years ago
0:38 my sissy miss her so much
crashbandit900 3 years ago
I cannot quit crying my daughters is battleing this right now since june 08 why why why why why why why why why
malayneadams3 3 years ago
I will pray for your daughter. Hug her , kiss her, tell her how much you love her. I wish you a soul of a warrior. God Bless you!
MelixzaAssilem 3 years ago
DIPG is an awful monster. My 13 yo son Zachary lost a courageous 7 month battle to this horrible disease, and was reborn into the arms of his Saviour Jesus Christ on 12/26/08. His big sister Sarah posted several wonderful videos on You Tube. They are under Zachary Dievendorf. I miss you so much Zachary. Love Dad!!
tdievend 3 years ago
Notice how in their first pictures, they are all so adorable and cute... but in the other pictures when they are changed they are even more beautiful.
xDancingRainx 3 years ago
How did we watch the same video?
So sad...
0Happykitty0 3 years ago
because your mom shwoed it to you. I sent it to my mom, and my mom sent it to your mom
xDancingRainx 3 years ago
mother did not send it to me.
0Happykitty0 3 years ago
Could any one who has gone thru brain surgey for a Anaplastic Medulloblastoma tumor and gone thru treatment, please let me know how it went, my daughter is 10 years old and she got her surgery done this December and will start Radio and Kimo this week. I would like to speak to someone that has gone thru this.
allyraq2 3 years ago
verry touching seing those kids befor and after and some in ther coffins realy touches me verry good tribute lets hope a cure will be found
daveerechillin08 3 years ago
to sad for words...
LiaTyson 3 years ago
a beautiful video
i cant stop crying
Arizonababes 3 years ago
This is a wonderful tribute, so hard to watch! I hate this monster that not only makes our children sick, but changes everything about them. My seven year old is a year off treatment...I hope and pray we never have to face relapse.
amywhite322 3 years ago
iI've never even heard of it, how terrible...
SaveTheChildren87 3 years ago
What does DIPG actually do?
Dutchesgirl4eva 3 years ago
DIPG is a tumor of the brainstem which controls vital functions, making it inoperable. Barely anyone has survived it (confirmed cases of 5 year survival you can count on two hands). After diagnoses the child generally has 6 months to 2 years max. Chemo & radiation can prolong life, but the side effects often out way the benifits, as either way the outcome is the same. Worst of all, it rarely attacks anyone over the age of ten.
survivedall 3 years ago
HOLY SHIT! Soz excuse my language that sound really bad how can people over the age of ten catch this ?
TheGamingMachine 3 years ago
It is not caught as it is cancer and the cause is unknown.
There is still a good percentage of DIPG patients that are over the age of 10, but it is just more common for under 10s to be diagnosed.
lilliesha 3 years ago
correct me if I'm wrong.
It's a tumor located in the brain in the pons area. It is inoperable so treatment makes the tumor shrink but eventually the patient will go through tumor progression. They will have partial paralysis, loss of hearing, loss of voice, and sadly they will loose the ability to eat and BREATHE
AnimeFreakLover201 2 years ago
That is correct, although not all children respond well to the treatment at all...
lilliesha 2 years ago
What a wonderful tribute. It's so sad to see all these brave and innocent children. Keep up the good work. R.I.P.
theKathy1989 3 years ago 2
Thanks so much for including Haley Smith! I sooo appreciate all you do to remember these kids!!! KEEP IT UP!!!
AyerJ 3 years ago
trinity bright went to my school im 9 i miss her
DJCAMMYSGIRL 3 years ago
Great video and a wonderful way to remember the kids. Thank you.
tkhatlen06 3 years ago
thank you for such a wonderful tribute to these children.
DPGkids 3 years ago