Give ME patients a blood test for an infectious retrovirus that is available in the USA or we take the DOH/NHS to court
Once we have the test, we take them to court anyway for 'inapporiate therapeutic intervention' due to misdiagnosis and willfull neglect - causing PTSD and long term mental health problems of stress, social phobia and anxiety. Additonally we sue for lost earnings, defamation, and avoidable damage caused to tissues and brain.
Too right mate. After 20 years of listening to the insulting psycho babble from Liaison Physiatrists, it isnt radical to say enough is enough and it isnt inflammatory to say that they have done no good and a great deal of harm.
Well said Greg - there should be no compromise. Why should you have to struggle for a washing machine whilst the psychiatrists (who insist that M.E. is psychological against overwhelming scientific evidence that it is a real, physical life threatening illness) earn huge amounts of money by using M.E. as their own own personal milch cow? Why should Linda live in hell because we M.E. sufferers are refused the testing & treatment that would help, & offered only GET & CBT that make us worse?
Thanks again Greg. It is a shame that people like Sir Peter Spencer of AFME aren't listening. He has called for more GET therapists!! The sooner AFME admits that they believe that ME is all in the mind the sooner their funds will dry up and they will stop misrepresenting people with ME. You keep on being radical. You are doing a great job.
Thanks Greg for continuing to highlight the real problems faced by so many.
I hope more people get to know the truth about this horrible mess created throughout the U.K. by deceit and commercial greed.
I call the UK political condition "neoconitis" as it all stems from the exact same types who have successfully bankrupted America.
The StopUnum[dot]com website was destroyed but will return soon - with even more information on this utter rot and social disgrace. Best wishes to Linda
Things are pretty bad when using the washing machine is something to look forward to! Let's hope the biomedical researchers come up with something soon and put paid to the psychobabblers. Say Hi to Linda.
I have tried all of the psycho-babble techniques and it has done nothing to improve my situation - they are quite simply WRONG...
It is fine for them to use CBT and GET for people with other fatiguing illnesses - until the definition and criteria are sorted we will all be lumped together - I just really hope that the sub-typing will help our situation - not holding my breath though...
If only the ME charities were full of people like Greg! Instead we have empty headed, Wessely drone 'bots' - who want nothing than to line their own pockets with money from deception and harm of others through deadly propaganda of Psychiatry 'curing' an incurable neuro/immune disease.
Yet through this disaster and hell - there is always hope, and Greg helps us all to hope and pray for a better day.
hey guys, get this, Simon WEASELLY!
PostHuman2113 1 year ago
ME awarness week 2010 Greg!
Give ME patients a blood test for an infectious retrovirus that is available in the USA or we take the DOH/NHS to court
Once we have the test, we take them to court anyway for 'inapporiate therapeutic intervention' due to misdiagnosis and willfull neglect - causing PTSD and long term mental health problems of stress, social phobia and anxiety. Additonally we sue for lost earnings, defamation, and avoidable damage caused to tissues and brain.
How times change.
luminescentfeeling 2 years ago
Too right mate. After 20 years of listening to the insulting psycho babble from Liaison Physiatrists, it isnt radical to say enough is enough and it isnt inflammatory to say that they have done no good and a great deal of harm.
ShowalterdontlikeME 3 years ago 2
Well said Greg - there should be no compromise. Why should you have to struggle for a washing machine whilst the psychiatrists (who insist that M.E. is psychological against overwhelming scientific evidence that it is a real, physical life threatening illness) earn huge amounts of money by using M.E. as their own own personal milch cow? Why should Linda live in hell because we M.E. sufferers are refused the testing & treatment that would help, & offered only GET & CBT that make us worse?
Bluebottle83 3 years ago 3
Thanks again Greg. It is a shame that people like Sir Peter Spencer of AFME aren't listening. He has called for more GET therapists!! The sooner AFME admits that they believe that ME is all in the mind the sooner their funds will dry up and they will stop misrepresenting people with ME. You keep on being radical. You are doing a great job.
kaazoom 3 years ago 5
Keep up the fight.
RaiseCFSawareness 3 years ago 4
Sending love and hugs to you and Linda.
xoxoxo from a fellow cfs'er.
Suzanne42 3 years ago 4
Thanks Greg for continuing to highlight the real problems faced by so many.
I hope more people get to know the truth about this horrible mess created throughout the U.K. by deceit and commercial greed.
I call the UK political condition "neoconitis" as it all stems from the exact same types who have successfully bankrupted America.
The StopUnum[dot]com website was destroyed but will return soon - with even more information on this utter rot and social disgrace. Best wishes to Linda
StopUnumNow 3 years ago 4
Things are pretty bad when using the washing machine is something to look forward to! Let's hope the biomedical researchers come up with something soon and put paid to the psychobabblers. Say Hi to Linda.
ptharcourt 3 years ago 3
Hi Greg,
Thank you!
I have tried all of the psycho-babble techniques and it has done nothing to improve my situation - they are quite simply WRONG...
It is fine for them to use CBT and GET for people with other fatiguing illnesses - until the definition and criteria are sorted we will all be lumped together - I just really hope that the sub-typing will help our situation - not holding my breath though...
Much love
xxx
deadgirldreaming 3 years ago 2
A truly decent person.
Honesty, Integrity, Thoughtfulness, Determination, Selflessness.
If only the ME charities were full of people like Greg! Instead we have empty headed, Wessely drone 'bots' - who want nothing than to line their own pockets with money from deception and harm of others through deadly propaganda of Psychiatry 'curing' an incurable neuro/immune disease.
Yet through this disaster and hell - there is always hope, and Greg helps us all to hope and pray for a better day.
luminescentfeeling 3 years ago 3