Love your videos! Yup! One of the major problems with an ME diagnosis is that all other symptoms are blamed on it without investigation. I'd like to offer all those deniers in the psychiatric profession a transfusion of my blood.
My daughter has Ehlers-Danlos syndrome, its rare and causes all sorts of problems. The doctors refused to do tests assuming she had CFS and even when we eventually got the proper diagnosis these people wanted the exact same treatment to remain, GET and CBT... She has an inherited connective tissue disorder with repeated dislocations, sublaxions, twisting spine and god only knows what else, WTF!
Do you think if he had the scans they might find HBO's, Punctate Lesions and dark areas indicating lack of blood flow patterns similar to AIDS dementia as they have in ME patients who have had the scans...
If Bagpuss with all his magic can't get a scan we are truely fucked.
Love your videos! Yup! One of the major problems with an ME diagnosis is that all other symptoms are blamed on it without investigation. I'd like to offer all those deniers in the psychiatric profession a transfusion of my blood.
FurtiveRidesAgain 3 years ago 6
My daughter has Ehlers-Danlos syndrome, its rare and causes all sorts of problems. The doctors refused to do tests assuming she had CFS and even when we eventually got the proper diagnosis these people wanted the exact same treatment to remain, GET and CBT... She has an inherited connective tissue disorder with repeated dislocations, sublaxions, twisting spine and god only knows what else, WTF!
Elfins 3 years ago 4
Oh no - poor, poor Bagpuss.
I always hated Emily anyway (but that was largely because she had her own magic shop...)
What a bitch!
deadgirldreaming 4 years ago 2
Ahh - poor Bagpuss...
Do you think if he had the scans they might find HBO's, Punctate Lesions and dark areas indicating lack of blood flow patterns similar to AIDS dementia as they have in ME patients who have had the scans...
If Bagpuss with all his magic can't get a scan we are truely fucked.
deadgirldreaming 4 years ago 4
Bagpuss got a SPECT scan? I'm so jealous!
neelubird 4 years ago 2
I love your videos. They are very surreal with this childhood innocence, yet have a twisted edge to them!
luminescentfeeling 4 years ago