Jackie

[Lynneheal]

this is terrible so many of us are just left its so so wrong in UK

[ProventusUK]

The problems that were depicted by our charity have been resolved. Proventus is a small charity run by volunteers who experience more negativity from the large health charities than any other organisations. We do work to resolve personal problems in a hands on way and the purpose of showing what people have to endure is to expose what little help they receive from the large health charities who have millions of pound pass through their hands

[soundcloset]

Forgive my ignorance. What would it take to repair the ramp? Are there neighbors? Are there home centers (hardware stores, lumber yards) in the UK? Is there a mechanic who could repair the wheelchair? The point of the video may be England's health care system, or lack of awareness on a national level of the situation of individuals, but the specific items mentioned seem manageable by her community...perhaps even the volunteers in the video. Where is the church? Where is her family?

[moozer45]

How can you let some live like this

[svlomicky]

This is Britian's health care system! We, in the US should be aware and afraid of state run health care. My insurance has provided me with an electric wheelchair, ramps, railings, a bathing chair and a raised toilet plus all the medicines to help relieve the syptoms of MS. Shame on Britian's policies toward health care.

[SteveH51]

@svlomicky Right-wing bollocks. We are proud of the NHS, for all its faults. what sort of life would Jackie have in the US?

[tracytheterrible]

@svlomicky

Wow! I was considered to have a preexisting condition because it took several physicians several years to diagnose my MS. According to my health records, I was denied. Every system has people that fall through the cracks. Let's talk more about insurance, my mother paid into it for decades and when she needed a bone marrow transplant to save her life from leukemia, she was denied coverage for the surgery, but they spent a pretty penny killing her with chemotherapy. GO USA! *barf*

[9gabbycats]

Jackie, where are you now? Sending love and prayers!

[pokemom3]

Has anyone talked to you about Neltrexone? LDN-Low Dose Neltrexone. Women usually take. 4.5mg or .5 mg, Please look up on the web a mans story about his recovery using LDN. His name is Bill Robers, from Sylacauga, Alabama.. LDN is cheap. Not costly like the preventive drugs. Please study up on this therapy..it would be worth a try. I have been taking it for over a year now. I have MS..I am a survivor going on 29 years. I will take LDN until they find a cure..God Bless you...

Robin

[Sinquin0202]

So disgusting, i hope something has been done otherwise i will be visiting the website for more information. Thank you ProventusUK for highlighting this cause.

[MILISA99]

I think it is time to find someone to fix Jackie's ramp and wheelchair. I live in the US but if I lived near her I would do it myself at no charge. If the government won't help then find some volunteers to do this work. My wife has CP and is in a chair and I know that one of her greatest fears is being a shut-in. Do whatever it takes to get her out of the house. She deserves a better live than the one she is living. GET TO WORK ON IT! Stop waiting on the government. Take action.

[nightgangl7]

how come they cant get help from the goverment like medicaid wont it cover the medicine?

[notapplicable66]

Tysabri costs $40,000 a year for a 1 iv a month threatment. Highway robbery.

[notapplicable66]

The three ms vaccines are, Neurovax, Tovaxin and BHT-3009. All of which are going through phase 2 clinical trials. Some people have success battling ms with Prokarin, a histamine patch. And LDN, Low Dose Naltrexone.

[josiejose]

It's called the epstein barr virus (EBV), the virus that causes Mononucleosis.

[karena321]

Oh my goodness, I have never heard of this. I had Mono, and I received a head trauma from an auto accident in the 11th grade, back in 1971, and that was 32 years ago!I am so appalled!! Thank you for letting me know( as if I can do anything about it now!)Neverthless, thank you for the information.

[gphx]

@notapplicable66 Ya but 90+% of people who don't have ms had EB too.

[notapplicable66]

You're reading old stuff I wrote 2 years ago. Things have changed a lot. It looks more like EB has nothing to do with it.

[gphx]

@notapplicable66 Fair enough. I gladly stand corrected. =)

[fryerbj]

If anyone would like to make a donation to help Jackie they could send to proventus who I am sure will forward on to her. Jackie MacDonald.

Please make out any cheques to her.

Thank you all for taking the time to view this video and the many others.

Brian

[fryerbj]

1207 people have looked at this video.

If each one sent Jackie £5 then a least she could try the serum that may help her

[WarPaint13]

I'd send her $10 USD! ... That's actually a really good idea. YOU should set it up, get a mailing address up on you tube for donations for these people- it might work!

[WarPaint13]

Did she say 'GOAT SERUM' ? what's that? ... Help- anyone?!?!

[fryerbj]

Look at proventus web site

There may be your answer??

[WarPaint13]

I found it on a BBC website- For anyone else interested, it's called Aimspro

[7mumfred7]

does Jackie know that NICE has just approved (July 2007) reimbursment for Tysabri ? It is better than any other MS drug, none of which NICE has ever approved before. There is a video by a guy on U-Tube here called "Tysabri Recovery", I suggest that all MS-ers take a look at it.

[midnightsky2007]

well done to all the people that help the aweareness of suffers, especially my dad brian who had devoted 99.9% of his time to helping the preventus group and ms sufferers.

[Sefardisafran]

Shame on "her majesty and the pm of UK" remember, what goes around comes around. Wishing you lots of Luck Jackie! Luis M. Hoboken NJ

[provpeter]

why have people got to live like this it is about time Health Charities began helping them not lining their own pockets with big wages and pensions.