Thank you so much for being a strong voice for rare disease research. This looks to be a wonderfully done documentary, I hope to be able to view the entire video. MaryM
Congratulations a wonderful video. I'm parent of a boy with Lowe Syndrome. In the case of Rare Diseases the Health 2.0 tool are not a choice, sometimes are the "only choice".
My 3 year old grandaughter has HPS5..... I fight for her future everyday, by spreading the word about HPS..... Thank you all so much for putting this out there and for the film makers for believing in something that means so much to whole lot of people, you all are an inspiration for all of us to keep up the fight for a cure...... Thank You !!!
ethantylerr91 My name is Ethan Green and I was diagnosed with HPS In 2009, but came to find out that had a similar disease called CHS, but I am proud to support HPS!
Jen Schwalbach sent me!
killpigfuker 7 months ago
@killpigfuker Me too!
MrsManson420 7 months ago
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I hope that a cure is found soon!
marijosep11t 7 months ago
I look forward to sharing this movie with everyone I know. Thank you for making this!
lvkoss 7 months ago
Thank you so much for being a strong voice for rare disease research. This looks to be a wonderfully done documentary, I hope to be able to view the entire video. MaryM
marymongmunnell 7 months ago
I hope that a cure is found soon!
dfeliu01 7 months ago
My 8 year old son has HPS and educating everyone on HPS has been a blessing. Thank you for all your hard work Donna.
4hope100 7 months ago
Congratulations a wonderful video. I'm parent of a boy with Lowe Syndrome. In the case of Rare Diseases the Health 2.0 tool are not a choice, sometimes are the "only choice".
marmayones 7 months ago
This has been flagged as spam show
my dad was saved by this research
unkamookie 7 months ago
my dad was saved by this reseacch
unkamookie 7 months ago
Great job....would love to see the whole thing!
mbmurtha 7 months ago
Great - wish for the cure soon :)
riteshsmile 7 months ago
Comment removed
KCfan7989 7 months ago
My 3 year old grandaughter has HPS5..... I fight for her future everyday, by spreading the word about HPS..... Thank you all so much for putting this out there and for the film makers for believing in something that means so much to whole lot of people, you all are an inspiration for all of us to keep up the fight for a cure...... Thank You !!!
missmari1966 7 months ago 2
Wow my comments are all messed up but hopefully u catch my drift lol
ethantylerr91 7 months ago
ethantylerr91 My name is Ethan Green and I was diagnosed with HPS In 2009, but came to find out that had a similar disease called CHS, but I am proud to support HPS!
ethantylerr91 7 months ago
My name is Ethan Green and I was diagnosed with HPS In 2009, but came to find out that had a similar disease CHS.
ethantylerr91 7 months ago
Amazing - I wish I had seen it at the conference. You are all amazing!
315ChickenLittle 7 months ago
I have a 6 year old son with HPS and this is his future. I'm really looking forward to a cure and thankful the awareness is spreading.
cradoosk1 7 months ago
This really puts life in perspective. I have a friend who is in this battle. I pray that a cure can and will be found soon.
lookallaround1 7 months ago
Really excited to be able to see the trailer - wait until you see the whole thing!
hkdawn 7 months ago