Thank you for making this video. It makes me feel like there's finally someone who seems to care. So many people act like it's nothing, and knowing these statistics is heartbreaking when I look back and remember how many of my classmates in school made fun of the way I looked or acted when I had a seizure. It's not a laughing matter. I want to be a neurologist when I get done with school to help people with epilepsy, probably a pediatric neurologist.
Lost a friend to epilepsy yesterday evening... R.I.P. I don't think there's not enough awareness of Epilepsy so i appreciate your vid very much. Well done.
Nice video except for the part where you made the grave stoones yourself -.-'' and ANYONE with a little common sense should be able to understand that if someone falls unconscious while having heavy whole body spasms, that the person could get harmed from falling or hitting something....also anyone that has seizures should, for their own sake, be to paranoid enough not to bath alone if they know they can get random seizures...it is common sense, stupidity is what kills people.
@Pumanic I find your comment very insulting. Do you know how DEGRADING it is to have a seizure in front of someone? To have to ask your friends to drive you places because you can't? To not be able to go to clubs because of strobe lights? I may be epileptic, but I am JUST LIKE YOU. All we want is to live normal lives. What you're basically saying is that we're stupid to even try to live. If you lived my life, you would have wanted to kill yourself. Epilepsy is way more serious than you think.
Are you retarded? I too have seizures, and no, I don't find it humiliating. I too can't drive, and I have a horse, so every time I need to take her someplace, my friends help me out.
I go to clubs with stromb, I am a rave style dancer, but I wear taggs saying I have EP and I always have friends with me, friends that always know what to do and that my seizures aint the end of the world.
I AM JUST LIKE YOU, DUMBASS, AND IT IS NOT THE END OF YOUR WORLD TO HAVE EP!
SO to sum it up, smarty, you and me are no different, I just learned to handle the seizures a little bit better. Except for driving a car, there is little you can't do that seperates you from others. And if you are not completely socially incapeble, then you should have atleast a few friends to bring with you if you go out. I don't fear my EP nor my seizures, I warn people, my friends and people who work at the clubs and festivals. I avoid dangers as much as I can, but I LIVE.
As a side note, I LOVE to take baths, but I never take them unless I have people nearby. I go to bath hoses, festivals, clubs, conventions, carnvalls, you name it. I avoid standing on things or places where I could fall and hurt myself, I never sit facing the table at clubs, so I can fall to the floor without hitting something if I have a seizure. I can have atonic-myclonic and grand mall (tonic clonic) seizures several times a week/day. It only stops you if you want it too.
Heya,i think you've been a huge inspiration for epilepsy patients like me,thank you for sharing and letting people know whut it feels like and the awareness..your truly a gift from God...may God bless you always...keep safe and i hope all is good with you..
Hi my name is Erica im 25 and i have had epilepsy since i was in infant and until i saw this video i have never heard of sudep. This video was overwhelming and yet i still thank you for it. Thank you for spreading the word. To many people still know so little about epilepsy. To this day i still have battles. As i probably will til the day i die. Take care amy.
Thank you for the vid. I'm an epileptic. I have inhareted from my grandmother on my mom's (it skipped mom) side. I've been living with it for 9 months, and have been nearly seizure free during that time (I beleave that I have had a few petit mals, but not a gran mal). They say that I may grow out of it since it is genetic, but I kind of want to stay on the medication....just in case. I take karate (shudo-ryo style, the jujitsu version) Anyway, much Idahoan thanks! And may God bless you!
I lost a friend just over 11 years ago due to suffocation during a seizure. He was sleeping on the morning of his 15th birthday. He had been diagnosed with epilepsy not long before. I miss him tremendously...and this video has really helped me revisit the memory of him...and has given me some personal insight into his day to day life before he passed. Shawn Roger Reichel, I miss you, and love you.
This video is very touching, I to suffer from epilepsy. First time in 1999. I was in a car wreck hit my on windsheild, due to not wearing my seat belt. front seet passander I have 5 kids, was told I can not take care of children by myself. I dont see them every day! A kind word helpsI A headstone in video it said Nickie on it, that is how I spell my name and that's how it happened to me, but im not dead, Thank God! I just live with seizures! -angel lover
Thank you for video, very touching. My son had a near drowning as a result of seizure. In coma on life support. Too often seizures are taken forgotten.
I pray for all ppl with epilepsy all the time during this video i did cry ! But at the same time am very happy there are people who talk and share things ! the worst thing of this illness is that you never know for sure its gone even if you dont have any seizure for years... than makes your life so limited and most of the time depressed and really sad you know especially for the ones who have children and think what if my children see me in that condition...its too damn sad !
It's amazing how few videos there are on general facts about epilepsy. Thanks for sharing & from someone like me who was diagnosed when i was 20, there is still life with epilepsy! Keep fighting, & educating..
Good video! I've had epilepsy all my life. I'm 46. My last seizure put me down, it broke my back and dislocated my shoulder. I've been out of work for over 2 years now....never to go back. It's been a tough journey, but I'm still alive.
I have Epilepsy as does my best friend and my twin sister. My friend has two car accidents due to a seizure while driving. She went 9 years without a seizure but then they started up again. She is no longer able to drive and sometimes has a seizure if she misses meds. We all take care of each other though. Seizures suck but we have to take care ourselves and make sure we do thing right and become educated abotu Epilepsy.
About 15 years ago I lost a friend, he had a seizure in his hot tub unsupervised, and drowned. Yes it's SO real and I just can't believe that people dare laugh. They really don't have a clue I guess. I don't drive, I have a seat in my shower, no bath, I take my meds, anything and everything withIN my power. That's all I can do.
This is a good video! I do not suffer from epilepsy myself, but since two month now I have a friend ho does. She is realy sweet, does not ask for much in life and shows courage I could never bring up! I hope that I can play a part in her living a happy life! whe cant change if we die, but in life all deserve happiness! This video makes me wanna try harder for her, but of course its up to her to how much help she wants to accept! Not easy beeing the "helped" all the time! She helps me to though!
im sorry for you true aim. its hard to understand, but the fact is...you dont how much damage it can cause. ive been an epileptic since i was 15 and im 24 now. i virtually cant go anywhere or do anything, cause of fallilng down and hurting myself. please try to understand man. and i thank the maker of this film.
Lovely video. It's such a shame that most people don't even know what the word epilepsy means. It's really great to see someone trying to raise awareness.
i just got through watching the video and i just want to say thank you for just even getting people to know a little bit more i have grand mal and petite or absent seizures the doctor is takin me off keppra and im scared not being on the medication but i know inside its healthier today is my first day all the way off my pills i guess i feel just lost... thank you so much!!
I just watched this for a third time and it is a great informative piece. Thank you! My son Daniel thanks you as well from heaven above....God Bless You Always, Love,CINDY
How are you? Thanks for stopping by again. I have often thought about Daniel since hearing your story and it saddens me each time. I'm glad my videos have some purpose and have been lucky enough to have met you through making them. I hope 2009 turns out to be all you hoped it would be.
I am so sorry to hear about Julia :-( Should ever you need to talk about it, feel free to message. Still, we do not know as much about Epilepsy as we need to, this is why you, myself and so many others didn't or don't know exactly how devestating it can potentially be.
I hope the year 2009 brings you much happiness, Phil. Thank you for watching my video.
Thanx for taking the time to do this probably gone status twice 45 M never let this bother me just accept this and go on I say this here because you said it in your video . know what, I have done almost all of the things myself, just in the last few yrs that are in your video, except for you show a body count . I,m ok though and in real people like that passing it is a wake up call to watch myself a little closer . thanks much Rick
This video brought tears to my eyes because people who suffer with epilepsy are not being diagnosed soon enough or get bullied to the point they commit suicide....there's no reason for those with epilepsy to continue to suffer when it's not their fault that they are different....
I've had seizures at work, and I work in a machine shop. I was very lucky, the only thing that has happened is superficial wounds (cuts) on my head.
macroevolve 9 months ago
I hope my seziers dont make die
killer247305 9 months ago
Thank you for making this video. It makes me feel like there's finally someone who seems to care. So many people act like it's nothing, and knowing these statistics is heartbreaking when I look back and remember how many of my classmates in school made fun of the way I looked or acted when I had a seizure. It's not a laughing matter. I want to be a neurologist when I get done with school to help people with epilepsy, probably a pediatric neurologist.
kodocha2010 11 months ago
Lost a friend to epilepsy yesterday evening... R.I.P. I don't think there's not enough awareness of Epilepsy so i appreciate your vid very much. Well done.
FallschirmjagerElite 1 year ago
Nice video except for the part where you made the grave stoones yourself -.-'' and ANYONE with a little common sense should be able to understand that if someone falls unconscious while having heavy whole body spasms, that the person could get harmed from falling or hitting something....also anyone that has seizures should, for their own sake, be to paranoid enough not to bath alone if they know they can get random seizures...it is common sense, stupidity is what kills people.
Pumanic 1 year ago
@Pumanic I find your comment very insulting. Do you know how DEGRADING it is to have a seizure in front of someone? To have to ask your friends to drive you places because you can't? To not be able to go to clubs because of strobe lights? I may be epileptic, but I am JUST LIKE YOU. All we want is to live normal lives. What you're basically saying is that we're stupid to even try to live. If you lived my life, you would have wanted to kill yourself. Epilepsy is way more serious than you think.
kodocha2010 11 months ago
@kodocha2010
Are you retarded? I too have seizures, and no, I don't find it humiliating. I too can't drive, and I have a horse, so every time I need to take her someplace, my friends help me out.
I go to clubs with stromb, I am a rave style dancer, but I wear taggs saying I have EP and I always have friends with me, friends that always know what to do and that my seizures aint the end of the world.
I AM JUST LIKE YOU, DUMBASS, AND IT IS NOT THE END OF YOUR WORLD TO HAVE EP!
Stop your whining.
Pumanic 11 months ago
@kodocha2010
SO to sum it up, smarty, you and me are no different, I just learned to handle the seizures a little bit better. Except for driving a car, there is little you can't do that seperates you from others. And if you are not completely socially incapeble, then you should have atleast a few friends to bring with you if you go out. I don't fear my EP nor my seizures, I warn people, my friends and people who work at the clubs and festivals. I avoid dangers as much as I can, but I LIVE.
Pumanic 11 months ago
@kodocha2010
As a side note, I LOVE to take baths, but I never take them unless I have people nearby. I go to bath hoses, festivals, clubs, conventions, carnvalls, you name it. I avoid standing on things or places where I could fall and hurt myself, I never sit facing the table at clubs, so I can fall to the floor without hitting something if I have a seizure. I can have atonic-myclonic and grand mall (tonic clonic) seizures several times a week/day. It only stops you if you want it too.
Pumanic 11 months ago
Heya,i think you've been a huge inspiration for epilepsy patients like me,thank you for sharing and letting people know whut it feels like and the awareness..your truly a gift from God...may God bless you always...keep safe and i hope all is good with you..
Peace
-Gus-
guschamber 1 year ago
Hi my name is Erica im 25 and i have had epilepsy since i was in infant and until i saw this video i have never heard of sudep. This video was overwhelming and yet i still thank you for it. Thank you for spreading the word. To many people still know so little about epilepsy. To this day i still have battles. As i probably will til the day i die. Take care amy.
Philly Angel
blueyedgoddezz 1 year ago
Chelle,
Thank you for the vid. I'm an epileptic. I have inhareted from my grandmother on my mom's (it skipped mom) side. I've been living with it for 9 months, and have been nearly seizure free during that time (I beleave that I have had a few petit mals, but not a gran mal). They say that I may grow out of it since it is genetic, but I kind of want to stay on the medication....just in case. I take karate (shudo-ryo style, the jujitsu version) Anyway, much Idahoan thanks! And may God bless you!
19foreverocker80 1 year ago
Hi,
thanks for the vid. I am a 25yr old mother to 3 and in the last year my epliespy has started to flare up again after 4years being free.
I really needed to see this today so thank you!
It is so hard for us!
You encouraged me to keep going to keep fighting for more awareness.
xxx
ThePinkThunderstorm 1 year ago
I lost a friend just over 11 years ago due to suffocation during a seizure. He was sleeping on the morning of his 15th birthday. He had been diagnosed with epilepsy not long before. I miss him tremendously...and this video has really helped me revisit the memory of him...and has given me some personal insight into his day to day life before he passed. Shawn Roger Reichel, I miss you, and love you.
LinZTheCOKid 1 year ago
i also have epilepsy and have never heard of someone dying from it until i met nathan scanlon. his sister toni died from a massive seizure.
madkittyjoey70 2 years ago
This video is very touching, I to suffer from epilepsy. First time in 1999. I was in a car wreck hit my on windsheild, due to not wearing my seat belt. front seet passander I have 5 kids, was told I can not take care of children by myself. I dont see them every day! A kind word helpsI A headstone in video it said Nickie on it, that is how I spell my name and that's how it happened to me, but im not dead, Thank God! I just live with seizures! -angel lover
angel73lover 2 years ago
Thank you for video, very touching. My son had a near drowning as a result of seizure. In coma on life support. Too often seizures are taken forgotten.
obechiro 2 years ago
Good job! My partner has generalized seizures. He copes with adversity like a saint. I am grateful to you for the work you're doing. Nice job.
DBHuntington 2 years ago
I pray for all ppl with epilepsy all the time during this video i did cry ! But at the same time am very happy there are people who talk and share things ! the worst thing of this illness is that you never know for sure its gone even if you dont have any seizure for years... than makes your life so limited and most of the time depressed and really sad you know especially for the ones who have children and think what if my children see me in that condition...its too damn sad !
engji15 2 years ago
It's amazing how few videos there are on general facts about epilepsy. Thanks for sharing & from someone like me who was diagnosed when i was 20, there is still life with epilepsy! Keep fighting, & educating..
yoshiwrenn 2 years ago
Good video! I've had epilepsy all my life. I'm 46. My last seizure put me down, it broke my back and dislocated my shoulder. I've been out of work for over 2 years now....never to go back. It's been a tough journey, but I'm still alive.
LordThor 2 years ago
There really should be a cure for Epilepsy!...
kittypride2 2 years ago
I have Epilepsy as does my best friend and my twin sister. My friend has two car accidents due to a seizure while driving. She went 9 years without a seizure but then they started up again. She is no longer able to drive and sometimes has a seizure if she misses meds. We all take care of each other though. Seizures suck but we have to take care ourselves and make sure we do thing right and become educated abotu Epilepsy.
Yoshiko11 2 years ago
About 15 years ago I lost a friend, he had a seizure in his hot tub unsupervised, and drowned. Yes it's SO real and I just can't believe that people dare laugh. They really don't have a clue I guess. I don't drive, I have a seat in my shower, no bath, I take my meds, anything and everything withIN my power. That's all I can do.
SaraESainsbury 2 years ago
my friend just died from a seizure today this shits hella real r.i.p brandon hawthorne
kennyrayl 2 years ago
This is a good video! I do not suffer from epilepsy myself, but since two month now I have a friend ho does. She is realy sweet, does not ask for much in life and shows courage I could never bring up! I hope that I can play a part in her living a happy life! whe cant change if we die, but in life all deserve happiness! This video makes me wanna try harder for her, but of course its up to her to how much help she wants to accept! Not easy beeing the "helped" all the time! She helps me to though!
KungVanargand 2 years ago 2
im sorry for you true aim. its hard to understand, but the fact is...you dont how much damage it can cause. ive been an epileptic since i was 15 and im 24 now. i virtually cant go anywhere or do anything, cause of fallilng down and hurting myself. please try to understand man. and i thank the maker of this film.
groundnpound07 2 years ago 6
This comment has received too many negative votes show
LOL this is freakin hilarious
oTRUEAlMo 2 years ago
I wish everybody could see this video.
I was born with epilepsy and struggled with it my whole life.
And ppl bullied me for it.
I nearly died a few times.
I've had to get stitches in my chin after falling into the concrete...
and ppl think this is a joke?!?!
BULLSHIT!!!
xPunkxPrincess7x 2 years ago 3
I have epilepsy I had 3 seizure I think... And still Alive lol
nctrls2 2 years ago
Lovely video. It's such a shame that most people don't even know what the word epilepsy means. It's really great to see someone trying to raise awareness.
rachel5085 2 years ago
Interesting video.
yogafan6500 2 years ago
hi my jon and i too have epilepsy and my girlfreind does too the condition should be taken much more seriously lives can be saved find a cure!!
jonster88 3 years ago
There is nothing we can do about it expect be careful, what's the point in scaring ourselves.
I don't go swimming by myself, I take my medication. Little else I can do.
vamp666babe 3 years ago
Epilepsy needs to be cured before anyone gets hurt again.
marshmellowfan 3 years ago
i just got through watching the video and i just want to say thank you for just even getting people to know a little bit more i have grand mal and petite or absent seizures the doctor is takin me off keppra and im scared not being on the medication but i know inside its healthier today is my first day all the way off my pills i guess i feel just lost... thank you so much!!
jewlife420 3 years ago
Did you get my e-mail from me, yet?
ukburger 3 years ago
Hi Chelle,
I just watched this for a third time and it is a great informative piece. Thank you! My son Daniel thanks you as well from heaven above....God Bless You Always, Love,CINDY
hiltongal 3 years ago
HI Cindy,
How are you? Thanks for stopping by again. I have often thought about Daniel since hearing your story and it saddens me each time. I'm glad my videos have some purpose and have been lucky enough to have met you through making them. I hope 2009 turns out to be all you hoped it would be.
Love
Chelle x
ChelleAmy 3 years ago
SUDEP took my sister, Julia, in 2003. Until then, I didnt believe that anyone died from epilepsy...
philcross73 3 years ago
Phil,
I am so sorry to hear about Julia :-( Should ever you need to talk about it, feel free to message. Still, we do not know as much about Epilepsy as we need to, this is why you, myself and so many others didn't or don't know exactly how devestating it can potentially be.
I hope the year 2009 brings you much happiness, Phil. Thank you for watching my video.
Chelle x
ChelleAmy 3 years ago
great video!
CUREepilepsy!
Eriqo666 3 years ago
hi
you done a great thing with that keep it out hun and how are you doing?
deadpool5321 3 years ago
Hey hun! I'm doing good thanks :) How are you? x
ChelleAmy 3 years ago
Great Job! :o)
andeepandee2 3 years ago
great video,well done
claudiasebel 3 years ago
so sad:( For the people watching this video and think epilepsy is funny your just low.
andrewtom3d 3 years ago 4
@andrewtom3d So does this mean that no matter what everyone with epilepsy are going to die then?
killer247305 9 months ago
Thanx for taking the time to do this probably gone status twice 45 M never let this bother me just accept this and go on I say this here because you said it in your video . know what, I have done almost all of the things myself, just in the last few yrs that are in your video, except for you show a body count . I,m ok though and in real people like that passing it is a wake up call to watch myself a little closer . thanks much Rick
wichitarick 3 years ago
My MIL Cousin who had a seizure in his sleep which clame his life he was also autistic. He was only in his 40's
dolphinsweet 3 years ago
BRAVA!
A masterpiece..
You are a hero.
You have all my admiration.
Livio is smiling with pleasure from the Sky...
God chose you for this role: to avoid other dead and to inform you the people and you do this with courage, mastery and determination.
I'm with you in every moment and you have always my heartfelt prayer.
Thank you from me and my sister,Annalisa.
TiuAndria 3 years ago
ChelleAmy, thank you for another wonderful and informative video. My son Daniel is missed everyday and I pray this will help others!
Hugs and God's Blessing to You!
CINDY
hiltongal 3 years ago
More heros we have lost,
Tina (24 yrs) Amanda(8yrs) Livio (11 yrs) and Holden (a very young adult)
my9pandas 3 years ago
These kinds of videos are so important.
My greatest fear is my baby girl being in status and losing her. Or missing a night seizure and losing her than......
Thank you for a great job well done.
Your a brave warrior, and wonderful friend.
love,
Ryn
my9pandas 3 years ago
Well done.
ukburger 3 years ago 2
Great video once again. You are truly amazing for giving up your time to dedicate to issues like this which are rarely discussed or known about.
Your videos are refreshing, wish more people would use youtube this way.
Keep up the good baby. I love you xxxx
j0nny84 3 years ago
This video brought tears to my eyes because people who suffer with epilepsy are not being diagnosed soon enough or get bullied to the point they commit suicide....there's no reason for those with epilepsy to continue to suffer when it's not their fault that they are different....
rainbwlzbn 3 years ago