Added: 4 years ago
From: abovell
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  • Little man I went through wut u r hang in there

  • OMG bless him he is a beautiful boy i hope things get better for him and you.

    God Bless, Stay SAFE.

  • I see this suffering and my heart moves into my throat.

    That it is in my power to do something to alleviate this suffering is one of the reasons why I'm studying medicine.

  • my praayers are with u little man, hang in there

  • I did not mention any names but I put you on our church prayer list today, may the Good Lord be with you when this happens.

  • I'm watching this stuff because I am a music teacher, and thus I come in cotact with alot of people each day. I recently found out one of my students is on nitro for a heart condition and it made me think that I need to know a little about emergency first aid, so I have one question, is the patient usually in any pain afterwards and is holding them and cradling their head all you can do to make them comfortable until help arrives?

  • Everyone is slightly different when they have seizures and my advice would be to ensure they are in a safe place, away from anything that could harm them while they are thrashing about, if possible put them in the recovery position or at least their head to the side (if its not in spasm) to avoid choking on saliva. Comfort and privacy are always good and call an ambulance once they are safe. Its great that you are finding out about this stuff .. well done !!

  • @Maestrp37388 My niece has seizures and Im trying to learn as much as I can about her condition. They usually arent in any pain and only cradling their head and comfort words are the only thing you can do when a person is having a seizure. If it's not a spasm--then place them on their side -make sure there's no music or no noise around. After the seizure is over the person could be reeally sleepy or go to sleep right away.

  • You said he is not awake but to me he looks awake o.O

  • @KaiserVadin He is asleep when the seizure starts and is unconcious during the seizure and afterwards he comes round for a minute or so and then falls back to sleep.

  • what on his stumic ??the wire ??

  • ill pray for him

  • is he still alive at the end

  • @Jaxxon10 Yes he is still alive, the seizures don't kill him they are just bursts of electricity in the brain that he has every day and he recovers afterwards and is just usually left a bit sleepy.

  • @abovell phew! im glad they are just bursts of electricity :) i thought he could have been really hurt... i hope he overcomes this!

  • i beleive in a God can do anything, Keep your faith in him!!

  • god bless.

  • aw poor baby :( io hope everything gets better

  • My daughter has mito and seizes like this pretty regularly. I agree with you that I'd rather have people know and be informed rather than just assume things about my child.

  • the poor lil guy.

  • Hi-I see he has a G tube -does he have an underlying condition besides epilepsy?

    And how is he doing now? My niece has epilepsy so Im trying to inform mysel.f more on her condition.

    Blessings to you and your family

  • He has an undiagnosed neurological disease. Possibly metabolic and possibly de-generative although he has remained stable for 3 years, thank goodness. He can't walk, talk, see, has no muscle tone so can't sit or hold his head but is still a happy, content and healthy boy. The epilepsy is def. the worst part of his condition. Great to hear you are educating yourself for your niece's sake, thats really lovely! If you have any epilepsy questions, feel free to ask, I've seen the lot ! Take care

  • @abovell Thank you for your message. My niece has Mitochondrial Disease-she has low muscle tone-issues with fine and gross motor skill-and some sort of learning disability- doctors still DONTt know his she'll be at the same level as her peers, or not- Which is a bit frustrating - however just like your son epilepsy is the worst part for her condition. She's a happy child-she's 4 1/2 HAPPY girl. My fear is not recognizing when she has ONE! She's got many kinds!

  • They think Nathan's cond. is prob mito. too but can't define it. He is very severely affected though, sounds like your niece is much less so. He has so many szs that we don't worry too much about each one, just the big ones and also his never really need treatment so we're lucky in that way (so far). I really hope things work out for your little niece .. keep up the good work x

  • aaaaaaw im soo sorry!

  • Thanks for sharing and educating all of us.

  • I'm in nursing school and I'm studying neurological illness right now. Thanks for posting this video; it helps me to visualize and understand what I might see in a clinical setting. My heart goes out to you and your family.

  • I'm a nursing student too, about to graduate this May. Good luck with the program!

  • Omg my girl frnd just had he seconed sezier it's a horrible thing to watch someone u love do this shit and u have no controll I hope your son gets better best of luck to yous

  • aww! poor little thing!!! he's so adorable. no child as young as he is should be going through this......or any age!

  • Thank you for sharing Nathan's experience to help educate others.

    On January 29, 2010 the medicine LamictalXR was approved for generalized tonic-clonic seizures in kids 13 years+ (medicine is also approved for partial onset seizures). This is really good news. The Wall Street Journal and many other news sources ran this news. Do a Google search for this news to read about how it can help families through these tough experiences. (YouTube will not accept a URL to share the news).

  • I am a medical student currently taking a neurology course. From the bottom of my heart, thank you for sharing. May God bless Nathan and you, his courageous parents.

  • Wow.

  • What's a tonic seizure?

  • I'm sorry.  God bless him.

  • I have Grand MAl and i had my mother died in it ,she drowend in here own saliva..i feel for everyone and i haveat least some comfort since i have had it for 30 years ,If you have Harmony and no stress at the same time you eat right and see that people around care and dont be scarred because of it...//Mvh Snell1975 my name on youtube

  • He's a very cute boy..

    I'm extremely sorry.

    God Bless your family and keep all members safe.

  • Do his seizures hurt him at all.?? xx God Bless. He is beautiful

  • I am unconscious during a seizure, have no signs warning me when one is going to happen and I have no memory during the recovery period afterwards which can be 10-15mins. I've been sitting on the sofa at the beginning and still sitting there when my conscious comes back. Only knowing that I had a tonic clonic via clues such as the headache I always have after which has a unique feeling from other headaches, disorientation, drowsyness and other such signs.

  • Trying to remember the recovery period (what bits you can) is like trying to remember a dream.

  • Hi

    I would rather people ask like you have than be ignorant and not understand epilepsy, so thank you!

    I have not had a seizure myself but I have been told that they do not hurt and that you are not aware you have had one (although there are different types and they vary a lot). Sometimes if they hurt themselves when falling or bite their lip then obviously that hurts but the seizure itself doesn't. Type in epilepsy on google and you will learn more. thanks

  • will he be ok?

  • I am epileptic, and have seizures up to 15 a year, but I was wondering, are some people completely aware of themselves having a seizure, even if it is a grand mal?

  • omgg poor babyy

  • tonic seizure is not dangerous at all...with good and perfect treatment, he can get well soon as a normal person...GOD bless him...

  • God bless you Nathan and Nathan's Mom. He is so beautiful. I hate the helpless feeling of watching your child go through this. You just want to kiss the boo boo away, but you can't.

  • omg this is so sad may god bless him and his family

  • this made me cry. poor little guy! i also heard the david grey in the background. i love him!

  • Little angel. I know how it is to have seizures. I love you.

  • why does he have a tube going into his stomach?

  • Hi, he has a tube in his stomach (gastrostomy) so that we can feed him directly into his stomach rather than via his mouth. Due to his muscles not working well, if he swallows food and drink can enter his ait pipe and choke him. It allows us to keep him nourished and prolong his life too. It has been a god send.

  • possibly for nutrients or something or a medicine

  • omg i am crying how sad to these type of children like this. Why do people have to be sick it is not fair for them they want to be like regular people but they can't becuz god has to create them with some stupid seizure and they want to live normal but they can't omg this just touch me so hard with anger i just hate it y some people have to be born with sickeness it is just not fair :''( when they grow up what r other ppl going to think of them, they want to be normal jesus help these people plz

  • I have seizures, and I live a normal life, and nobody thinks of me as anything. In fact I have done more with my life then most people who arent sick. Maybe you should understand it isn't the illness, but who you are as a person that makes you who you are. YOUR PERSONALITY! People dont look at me and say here is a girl with seizures they look at me, and say what a successful person. Capiche?

  • that made me weep.

  • that is so sad... my fiance is 33 yrs old hes epileptic and in motorized wheelchair im very protective of my fiance very much

  • He is so precious. My thoughts and heart goes out to your family. He is a strong one.

  • THANK YOU - yes, hard to watch.

    I have been having seizures for 2 1/5 years now & no one knows why... I'm so tired of "The Medical Profession" having no compassion/understanding for what we go through. Bless your baby.

  • Hi

    Sorry to hear about the onset of your seizures, they are awful and still so little is known about them. Just as an idea, have you heard of the Ketogenic diet or Aitkins? look it up on google, this is the next step for us .. good luck x

  • I stumbled upon your videos today while just browsing.

    First, let me say that you all have a beautiful son, and are truly blessed.

    Thank you, though it is hard to watch, thank you for educating others about epilepsy. Yes, it's hard to watch, but it is a reality for many people, and when faced with it, you do what you have to do.

    I love your videos and have subscribed. They are wonderful, and Nathan is a doll. Everytime he smiles in a video, I do too.

    I look forward to more updates!

  • good luck! i will pray for you and your family.

  • i will be praying for you good luck, and god bless you

  • i will pray for your child when i go to chapel, i hope he gets better some day soon. it kills me to see his pain thankyou for sharing this video , it makes me realize how unfair life can be to people... god bless you and your family and especially your precious son.

    much love , Zoe

  • aww bless

    i will pray for that kid

    xxx

    god bless

  • I'm going to say a prayer for that precious little man. Life is so unfair!!!

  • poor baby. hope he grows out of them. how old is he now ? i have absent seizures that last between 15 secs and 1 min

  • Nathan is almost 4 now, unfortunately he shows no sign of growing out of his seizures. He has an underlying metabolic condition so it is unlikely he every will. He is very brave and content though so we will get through it. Sorry to hear about your absence's, epilepsy is such a mystery and horrible condition to have. Take care

  • oh. so sorry to hear that x x x im sure you will God Bless

  • OMG! TAKE THIS OFF

  • take your face off, its disturbing everyone.

  • Wot? you have never even seen my face, you dont even know me!

  • im with you

  • i mean this from my heart he is one of the bravest 2 year olds i know hope he gets better

  • this might sound really bad, but did he say fuck? is that common to do in a seizure?

  • Nah, that was him struggling to breathe, and his snorting made it sosund like he said it

  • No he did not swear, the seizures have left him with severe brain damage and he is unable to speak (it would be a miracle if he could say the F word to be honest!!) he goes very stiff during the seizure and can not breathe then tries to get air in through the spasm and it sounds like he is snoring.

  • Thanks for posting this knowing that some people will not understand. We are dealing with a 2 year old having terrible seizures..he went code blue in the hospital this morning during a seizure...they have no idea why or what kind of seizure, they only know that hes having more than one kind at the same time. thanks again for posting this and helping in my search for answers. Good luck to your son and your family..I know its hard and nerve racking..God Bless...

  • I'm glad that you found Nathan's video of some use. Over the last 3 years he has had just about every type of seizure there is, he used to go very blue and its horrible, I know what you are going through. I hope they get some answers soon and some effective treatment. I would suggest you join an epilepsy support group, its been my saviour. I am on parents of kids with epilepsy (pokwe uk). good luck with your son and god bless x

  • my bro has epilepsy is very scary to see him have a seizure

  • Poor kid :(

    I suffer from epilepsy too, in a way im thankful that ive only had 1 grand mal but the other fact is my next could kill me because it lasted 45 and i went into status, im going through the same kind of thing i went through before i think its some kind of aura like i get really dizzy, everything starts to seem blurry, i dont feel real and i hallucinate, could i prevent this and could my next be as bad as my first please help im getting worried :(

    p.s i build up to them me thinks

  • Hi, it must be very frightening to know that you are possibly building up to a seizure, maybe anxiety about it could make you feel like one is coming on? if you are feeling very strange make sure someone is around you as much as possible just incase. i hope that you are not building up to one. i know little about actually having one as i've not had one and my son can't talk so I don't know how he feels prior to one. maybe you would benefit by joining an epilepsy chatroom ? take care x

  • Thank you for posting your son's video. Our grandson is in the midst of being diagnosed with some type of seizure disorder. Your video is very helpful and informative. I am so sorry that your boy has to suffer with his seizures. One day, the medical community will find an answer. Thank you again. Grandma

  • Hi Grandma

    Thankyou for taking the time to comment. epilepsy is horrible there is no mistaking that but some are lucky and can gain some control, i really hope your grandchild is one of these. i wish you all the best. anna x

  • So how old is he? I feel sorry for the nasty comments people are posting.

  • Hi

    Nathan is 3.5 years old. I am not upset by what people are writing, if 1 person benefits from seeing his video or 1 person learns something new about epilepsy then I am happy with that. Thank you though for your kind words. Take care

  • Marshie338, you said everything I wanted to say. Sadly, "You Tube" is dominated by immature young people who think it's entertainment only, rather than a vehicle to exchange and share information. How and why they end up watching a topic like this, is hard to understand. But they show up everywhere, and can't help themselves from leaving their silly, inane, juvenile comments - complete with first-grade grammar and spelling. Anyway... Thanks to the parents for sharing this experience with us.

  • i have grad mall

  • This video made me so sad - and some of the comments, even sadder. This gorgeous boy is special and he is brave. Thank you for posting this video. It is educational to those who want and need to learn more and inspiring to those with, and dealing with Epilepsy. I hope that he gets better soon, truly.

    Chelle xx

  • poor thing...:( he's so cute too

  • shut the fuck up No1chelseafanx... don't go making comments about the video to take it off... this poor little boy deals with having seizures everyday... he is extremely brave... so just because it makes u feel better to make negative comments like ---> "omg!take dis off plz" then just don't watch the video in the first place...

  • how dumb are you... really??? did u even read the description of this video... obviously not... it explains everthing there... think before u comment again No1chelseafanx.....

  • The nasty comments about this video defy belief. To see someone you love so much struggle with seizures is the most harrowing experience. The fact that there are over 35 different seizure type and the uneducated only know of 2 of those types, it is a necessity to show the differing types in the hope that correct diagnosis is made sooner rather than later. Well done for having the guts to show this, love and hugs to Nathan and his family for being so brave. Love Vix

  • aww, thats so sadQ

  • im taking biopsychology class this quarter and i just learned tonic seizure today. i had no idea what it is but now i see.

  • IDIOT

  • DO YOU HAVE NO RESPECT?

    I swear people disgust me!

  • please dont be nasty this is NOT funny.

    Hope you are doing Ok Nathan. You, Lewis and Declan are the bravest boys in the world!!! Keep Smiling darling :)

  • is he ur lil brother?

  • omg thats soo sadd<3 =[

  • Nathan is 3 years old.

  • Hey gorgeous bloke. We just got back from hospital. Lewis had a tonic clonic today, frightened the insides out of his daddy! We ended up going to hospital in an ambulance as it lasted for 6 minutes, they think its because of his infected PEG. Love you babe, see you 2 weeks today wahey! xxx

  • how old he

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