Added: 4 years ago
From: xKenxdrax
Views: 6,604
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  • Good luck getting off of those narcotics and everything else you mentioned. I have RSD in my right hand and was on those fentanyl patches, oxycontin, percocet, everything under the sun. I got the Ketamine treatment and it helped so much. Do you know what was worse than the RSD pain?.... getting off of the narcotics!!!! It sucks so much you have no idea. I recommend not lying to your doctor about your pain, and tell him/her that you need help.

    I dare you to get yourself clean.

  • I have had it for 3+ years, went from an extremely active person to a wheelchair in months. RSD is a monster, and people (esp. those in the medical profession) need to understand it is very real and it eats your life away. Pain is an entity in itself, and RSD makes you intamately familiar with levels of pain that others can not understand.

  • wow. i never realized you could get it in places other than ur neck! thts so sad tht ppl have to go through tht.

    I actually had never heard of it until I became a huge fan of Paula abdul a few years ago. Since she has suffered from it, i started looking into it.

  • All good advice. Update on me is that I am off almost all med and dr is pushing for the SCS. It will be that, or nothing, for treatment. It has been Hell -- no less Hell than others in this video -- for me trying to get by on such minuscule doses before SCS. My best to everyone on here.

  • same as me 1995 but it took the drs 2.5 years to find it plus i have got whole tremors good luck

  • I've had it since I was eleven in my belly and then it spread up my sides to my arms, neck, and face. It really sucks.

  • I found products that helped me.

  • Please don't do the Ketamine treatment!!! If the doctors aren't careful they can overdose you and nearly kill you, trust me, it has happened to my mom....TWICE!! It has had permanent effects as well!

  • Wow! I am so sorry that anyone suffers with RSD! I wish you the strength to get through each day, every day. Like many, I had never heard of RSD until I contracted it. I have even been to the Cleveland Clinic and there is nothing that can be done, like so many of you. I am sorry but you are not alone in this!!

  • My wife has rsd and found products that help Check out my vidoe samgerke

  • very well done! I have RSD. Im very glad you put the video up.

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