If you haven't tried restricting your diet yet you should. I had my first really bad exacerbation back in July. Trouble walking, problems with hearing, vision, muddled thoughts, trouble texting, horrible leg pain, and unbelievable fatigue. Three days after starting to restrict my diet my fatigue was 80 % better. Everything else has improved since then. Still have some occasional leg pain so I've started to fast every other day. Sorta.
I still Eat dinner on the day I fast. Seems to really be helping with the pain. I've cut out all dairy, ALL grains, most meat, all sugar (including most fruit), coffee, tea, soda, and alcohol. Basically down to white meat chicken, fish, greens, almonds, and water. Hard at first but well worth it.
@TheJinx4life Yes I have been trying the food changes for years, what seems to work for me is no red meat and gluten, i also stay away from dairy as much as possible.
What we put in our bodies does affect our ms. It is important to eat and stay healthy. I fast like that too. I eat at night. kinda funky. lol
I was diagnosed about a month ago.Its real helpful to have watched your vid. I really was starting to wonder if I was going crazy. Definatly wasn't helped by me limping and staggering to my doctors to be repeatedly told there was nothing wrong, and being looked at like a moaning wierdo.I saw a different Doc and he knew wot was happening.As you mentioned, when you describe symptoms, a lot of them don't sound like a big deal, but when you actually feel the symptoms they can be hellish !
Thank you for the response!! Yes being told there is nothing wrong can be very challenging and hard, that's why we fight!! When u have MS u gotta be a fighter ya know? I hear the first four years are the hardest, but we adapt. Just like Willow Trees.
Yes to the average Joe it sounds like 101 Datamations. lol But I am grateful that others can't comprehend at moments because its alot. haha
My fiance just released an album dedicated to his mother who has MS. Half of the proceeds will go straight to the MS society. Support good music for a great cause! Please!
I am sorry for how this terrible thing has affected you at such a young age. Recent microbiological studies have found that Vitamin D3 has immunosuppressive effects on the adaptive immune system. Animal models of MS also support this assertion. This evidence has lead to a number of recent clinical trials using Vitamin D3 therapy. Until the data come out, if you haven't done so yet, talk to your doc about taking about 5000 IU/day.
Have you ever considered that you might have Lyme Disease? I had MS symptoms and found out that I actually have Lyme Disease. This also happened to my brother. We are both getting better on antibiotic treatment. A great documentary to watch is called "Under our Skin" and it's extremely eye opening. In one study they took people who were diagnosed, and 100% of them had the Lyme bacteria. Something to consider since they don't know the cause of MS. Is it a Neuro form of Lyme disease?
@8grilla Yes I have definatly thought of this, I had asked to be treated once, never really got a reply...and was then told later that its a standard test. Witch it is not. I would way rather have Lyme than ms, what a wonderful life that would be lol
Hay I hope u get better or the symptoms go away :) I just got diagnosed and I feel like I have a long road ahead of me but there are people who have it worse, thank u for the video!!!!
If you haven't tried restricting your diet yet you should. I had my first really bad exacerbation back in July. Trouble walking, problems with hearing, vision, muddled thoughts, trouble texting, horrible leg pain, and unbelievable fatigue. Three days after starting to restrict my diet my fatigue was 80 % better. Everything else has improved since then. Still have some occasional leg pain so I've started to fast every other day. Sorta.
TheJinx4life 1 week ago
I still Eat dinner on the day I fast. Seems to really be helping with the pain. I've cut out all dairy, ALL grains, most meat, all sugar (including most fruit), coffee, tea, soda, and alcohol. Basically down to white meat chicken, fish, greens, almonds, and water. Hard at first but well worth it.
TheJinx4life 1 week ago
@TheJinx4life Yes I have been trying the food changes for years, what seems to work for me is no red meat and gluten, i also stay away from dairy as much as possible.
What we put in our bodies does affect our ms. It is important to eat and stay healthy. I fast like that too. I eat at night. kinda funky. lol
Thepurpleseahorse1 1 week ago
I was diagnosed about a month ago.Its real helpful to have watched your vid. I really was starting to wonder if I was going crazy. Definatly wasn't helped by me limping and staggering to my doctors to be repeatedly told there was nothing wrong, and being looked at like a moaning wierdo.I saw a different Doc and he knew wot was happening.As you mentioned, when you describe symptoms, a lot of them don't sound like a big deal, but when you actually feel the symptoms they can be hellish !
Thank you
EPICRATES100 1 month ago
@EPICRATES100 Thank you Epicrates100
What helps one helps another.
Peace Love and Harmony
Thepurpleseahorse1 1 week ago
@EPICRATES100
Thank you for the response!! Yes being told there is nothing wrong can be very challenging and hard, that's why we fight!! When u have MS u gotta be a fighter ya know? I hear the first four years are the hardest, but we adapt. Just like Willow Trees.
Yes to the average Joe it sounds like 101 Datamations. lol But I am grateful that others can't comprehend at moments because its alot. haha
Thepurpleseahorse1 1 week ago
This has been flagged as spam show
My fiance just released an album dedicated to his mother who has MS. Half of the proceeds will go straight to the MS society. Support good music for a great cause! Please!
itunes.apple.com/us/album/jnewryep/id476015357
Blessings
JessicaSunshineMusic 1 month ago
I am sorry for how this terrible thing has affected you at such a young age. Recent microbiological studies have found that Vitamin D3 has immunosuppressive effects on the adaptive immune system. Animal models of MS also support this assertion. This evidence has lead to a number of recent clinical trials using Vitamin D3 therapy. Until the data come out, if you haven't done so yet, talk to your doc about taking about 5000 IU/day.
harmagician1 2 months ago
@harmagician1 Yes I am on 10 000 IU/day. Though last month or so I've lacked taking them. Lots to take. lol
Thepurpleseahorse1 1 week ago
Have you ever considered that you might have Lyme Disease? I had MS symptoms and found out that I actually have Lyme Disease. This also happened to my brother. We are both getting better on antibiotic treatment. A great documentary to watch is called "Under our Skin" and it's extremely eye opening. In one study they took people who were diagnosed, and 100% of them had the Lyme bacteria. Something to consider since they don't know the cause of MS. Is it a Neuro form of Lyme disease?
8grilla 2 months ago
@8grilla Yes I have definatly thought of this, I had asked to be treated once, never really got a reply...and was then told later that its a standard test. Witch it is not. I would way rather have Lyme than ms, what a wonderful life that would be lol
Thepurpleseahorse1 1 week ago
Thanks, And oh I do. U stay strong too!! WE got this!
Thepurpleseahorse1 2 months ago
Hay I hope u get better or the symptoms go away :) I just got diagnosed and I feel like I have a long road ahead of me but there are people who have it worse, thank u for the video!!!!
adr3naline23 4 months ago
@adr3naline23 U are more than welcome my friend.
Anything i can do to make a difference. :)
Lynne
Thepurpleseahorse1 2 months ago