PSC has been around for 40 years but no progress why ? -- no funding. We want to raise monies funding research into the aetiology of PSC. Scientist have developed the technology to do genome wide scanning and have used it to superb effect.
On the fundraising stuff... the PSC Trust asr now offering RECYCLING way to help the charity and environment......
You can now in the UK recycle your unwanted mobile phones + accessories and printer ink (Dell, Canon, Lexmark and HP) cartridges for donations to charity. A FREEPOST address is provided. See the PSC Trust website for more...
Rather sad that PSC is not considered "sexy" illness despite the number of young dying -- perhaps the Trust needs to appoint a spin doctor to raise awareness ?
For animals we have all the time but our children and future generation needs us too -- please visit the site and see the good work being done. I have volunteered, have you?
This issue affects mainly the young and we otherwise never hear of the condition as it so often is included as a liver only disease. No known cure yet. Good luck with your touching presentation and I enclose £10 and hoping that fund-raising is a success.
Catfantastic... seriously, this is a great video and accompanying music for the real life choices that we all have to make when confronted with such geneuine requests.... Having researched the website, I have donated, its painless, knowing that 100% of the monies go towards the sufferers and all the great volunteers remain unpaid. Please donate to this worthwhile cause and help save real lives....
This is not happening to some strangers its happening to someone who's close to my heart -- he is a son of a living human being. Thank you for taking the time to view this clip take care, "Life is of precious time, so use it wisely"
In this fast moving world, we only think of others when events affects us. The website is serious, their help line friendly - surely we all hope we do not have to go through what a number of families had too since January - loosing their loved ones. Please give or at least pass it on others. Life is precious as someone who lost one who was and will always be precious.
This is not happening to some strangers its happening to someone who's close to my heart -- he is a son of a living human being. Thank you for taking the time to view this clip take care, "Life is of precious time, so use it wisely"
there is no evidence that after a transplant, you are free of psc!
IKANBILES 3 years ago
More people assisting will make all the difference between giving someone life and hope and misery and pain
Please help
IKANBILES 3 years ago
We need your help to set up a PSC genome data base to help others. We are close to achieving our goal.
Please help - every little helps
IKANBILES 3 years ago
PSC has been around for 40 years but no progress why ? -- no funding. We want to raise monies funding research into the aetiology of PSC. Scientist have developed the technology to do genome wide scanning and have used it to superb effect.
Please help us to raise funds
IKANBILES 3 years ago
On the fundraising stuff... the PSC Trust asr now offering RECYCLING way to help the charity and environment......
You can now in the UK recycle your unwanted mobile phones + accessories and printer ink (Dell, Canon, Lexmark and HP) cartridges for donations to charity. A FREEPOST address is provided. See the PSC Trust website for more...
NewForestUK 3 years ago
Anymore ideas for fund raising?
IKANBILES 3 years ago
Anyone for a London marathon to raise funds or other ideas.
IKANBILES 3 years ago
Rather sad that PSC is not considered "sexy" illness despite the number of young dying -- perhaps the Trust needs to appoint a spin doctor to raise awareness ?
IKANBILES 3 years ago
For animals we have all the time but our children and future generation needs us too -- please visit the site and see the good work being done. I have volunteered, have you?
IKANBILES 3 years ago
This issue affects mainly the young and we otherwise never hear of the condition as it so often is included as a liver only disease. No known cure yet. Good luck with your touching presentation and I enclose £10 and hoping that fund-raising is a success.
John
London
johntheb1 3 years ago 2
Very warming Appeal to humanity. I would recommend everybody donates to a just cause.
shauny0077 3 years ago 4
Very warming Appeal to humanity. I would recommend everybody donates to a just cause.
shauny0077 3 years ago 4
Catfantastic... seriously, this is a great video and accompanying music for the real life choices that we all have to make when confronted with such geneuine requests.... Having researched the website, I have donated, its painless, knowing that 100% of the monies go towards the sufferers and all the great volunteers remain unpaid. Please donate to this worthwhile cause and help save real lives....
NewForestUK 3 years ago 3
This is not happening to some strangers its happening to someone who's close to my heart -- he is a son of a living human being. Thank you for taking the time to view this clip take care, "Life is of precious time, so use it wisely"
IKANBILES 3 years ago 2
In this fast moving world, we only think of others when events affects us. The website is serious, their help line friendly - surely we all hope we do not have to go through what a number of families had too since January - loosing their loved ones. Please give or at least pass it on others. Life is precious as someone who lost one who was and will always be precious.
IKANBILES 3 years ago 2
This is not happening to some strangers its happening to someone who's close to my heart -- he is a son of a living human being. Thank you for taking the time to view this clip take care, "Life is of precious time, so use it wisely"
IKANBILES 3 years ago 2
5* thanks for sending
lindamac 3 years ago 4