i'm 22, and was diagnosed with endo the day after my birthday (how lucky). i had to stay in the hospital for 3-4 days. found out i had a huge cyst on my right ovary. it ruptured when i was at my boyfriends house and i collapsed on the floor. then had lap surgery and found out i had endo. when it kicks in i cry and scream it hurts so bad. usually dilaudid (opiate painkiller) helps. now taking BC and it's been okay. i know this is so hard for you and everyone else. i hope you feel better.
I feel like im looking in a mirror right now. Searing pain, shaking, chills, cold shivers up my spine and in my pelvis that feel that they make it cramp up worse. Never ending pain. mind shattering. No matter what I do. Its so hard to think and keep a train of thought. Just....idk. I feel so guilty cuz its my fiancées birthday and I can't find the strength to do anything...This is unbearable, thanks for making this video so maybe more people can understand.......I don't feel so alone right now.
my pain peaks about every 3 months, as far as the absolute worst goes, you describe the EXACT same thing im going through, makes taking care of a 5 yr old, cant walk, i pee and cry from pain, most would scream but i cant let my kid see me that bad, last 3 months have been bad all the time, no break, just days of more or less pain, no insurance and no money, this blows
Hey there fellow endo. I find that eating any kind of food hurts once the food travels far enough down to apply pressure to my abdominal cavity. I hope you're doing better today. I'm feeling exactly as you are at this moment. You're not alone. Any updates?
Hi hun I have it just like you !! so much pain that some times I want to kill my self, but I have a wonderful husband and so lucky to have a son after 4 losted babies, benn back and to , to the docs and feel they and I can do no more and I am just getting so bad and its wearing on my heath thank you hun for posting it has helped me x
Teen aged girls need to be told that cramps are not normal. I thought for years that the extreme pain I had most of the month was supposed to happen.
Tell your doc if you have cramping. I waited so long I had to have a complete hysterectomy.
I can still remember the pain, hydrocodone did not even touch it..
The doctor said mine was the worst he had ever seen, and as soon as I woke up he smiled and said, "Wow, you must feel so much better now!" I said, "Well let me recover first ok?" Good luck!
Yes, I get hot flashes and night sweats. Yes, my acne is back and i must struggle to keep it under control. Yes, once in a while I am seething (as Suzanne Summers says) but other than that I'm doing well. I think the add back therapy is probably a big factor in that. And, it is def better than dealing with the pain! Anyways, just wanted to let you know that it is not as scary as it seems. At least not for me, yet!
Hey, I don't know if you remember me but I wrote you about 1 or 2 months ago. I had my first laperoscapy about 2.5 months ago. No pain since. But, I remember telling you that I was scared to take the lupron and you said that you had not heard any good things about it. Well, I am almost half way through and it is honestly not that bad.
i'm 22, and was diagnosed with endo the day after my birthday (how lucky). i had to stay in the hospital for 3-4 days. found out i had a huge cyst on my right ovary. it ruptured when i was at my boyfriends house and i collapsed on the floor. then had lap surgery and found out i had endo. when it kicks in i cry and scream it hurts so bad. usually dilaudid (opiate painkiller) helps. now taking BC and it's been okay. i know this is so hard for you and everyone else. i hope you feel better.
ThaMunchkin007 11 months ago
I feel like im looking in a mirror right now. Searing pain, shaking, chills, cold shivers up my spine and in my pelvis that feel that they make it cramp up worse. Never ending pain. mind shattering. No matter what I do. Its so hard to think and keep a train of thought. Just....idk. I feel so guilty cuz its my fiancées birthday and I can't find the strength to do anything...This is unbearable, thanks for making this video so maybe more people can understand.......I don't feel so alone right now.
inspyeredsoul1616 1 year ago
my pain peaks about every 3 months, as far as the absolute worst goes, you describe the EXACT same thing im going through, makes taking care of a 5 yr old, cant walk, i pee and cry from pain, most would scream but i cant let my kid see me that bad, last 3 months have been bad all the time, no break, just days of more or less pain, no insurance and no money, this blows
taleana2002 1 year ago
Hey there fellow endo. I find that eating any kind of food hurts once the food travels far enough down to apply pressure to my abdominal cavity. I hope you're doing better today. I'm feeling exactly as you are at this moment. You're not alone. Any updates?
TheUrbanhippy 1 year ago
Hi hun I have it just like you !! so much pain that some times I want to kill my self, but I have a wonderful husband and so lucky to have a son after 4 losted babies, benn back and to , to the docs and feel they and I can do no more and I am just getting so bad and its wearing on my heath thank you hun for posting it has helped me x
jessiejones3 2 years ago
Teen aged girls need to be told that cramps are not normal. I thought for years that the extreme pain I had most of the month was supposed to happen.
Tell your doc if you have cramping. I waited so long I had to have a complete hysterectomy.
I can still remember the pain, hydrocodone did not even touch it..
The doctor said mine was the worst he had ever seen, and as soon as I woke up he smiled and said, "Wow, you must feel so much better now!" I said, "Well let me recover first ok?" Good luck!
barabas29 2 years ago
Keep on surviving with this. Those of us who have been through the pain know what you are going through!
StellaisBack 3 years ago
Yes, I get hot flashes and night sweats. Yes, my acne is back and i must struggle to keep it under control. Yes, once in a while I am seething (as Suzanne Summers says) but other than that I'm doing well. I think the add back therapy is probably a big factor in that. And, it is def better than dealing with the pain! Anyways, just wanted to let you know that it is not as scary as it seems. At least not for me, yet!
StellaisBack 3 years ago
Hey, I don't know if you remember me but I wrote you about 1 or 2 months ago. I had my first laperoscapy about 2.5 months ago. No pain since. But, I remember telling you that I was scared to take the lupron and you said that you had not heard any good things about it. Well, I am almost half way through and it is honestly not that bad.
StellaisBack 3 years ago
i <3 you for this video blog you do. you make me feel human, normal almost even.
since i to am in your boat. i was trembling from pain, while on demerol today. and im still not at my period even yet.
thank you.
brokendoll8777777 3 years ago