Added: 1 year ago
From: cmiser1
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  • Everytime I read the spoon Theory and watching this video...It just makes me cry. It is so hard for me to get people to read the spoon theory on your website, so maybe this video will help. THANK YOU SO MUCH!

  • sickness is nutritional....

  • There Is No Spoon!!!!!!!!

  • This is a perfect way to explain to a person with lupus

  • This is the best explanation I have ever read/seen/heard. I can actually send this to people now to help them understand how my illness M.E and fibromyalgia affects me daily. I love the bit about getting out of bed each day, I usually feel just waking up costs me half my days worth of spoons and then I have to work out in my head how many spoons I have left and how to spend them wisely and just working that out costs a spoon :) Thank you for sharing this and making it a little easier to explain

  • It's the PERFECT explanation for a life of pain. I suffer from Fibromyalgia and it is always so frustrating to try and get people to understand. Thank you! I like how you have the view that what you experience is a blessing because you see what others take for granted. I will try to do the same thing when it gets so hard. Thanks again! Good luck :)

  • Earlier this year i became quite sick ad had may weeks of term and when i got back ppl treated me like dirt because they thought i was preggo and all that jazz, then on day i was alking to my PE teacher explaining my sicness and why i was away nd she said she'd heard the rumors so she decided i should just talk to my class and let them know what was going on, that night surfing the web i came across this and the next day red it to my year 9 class. i've never seen so many girls crying in my life

  • I have Transverse Myelitis and your spoon story is so important to me and help me explain to my friends why some days I struggle just to get thru the day.. Thanks again

  • Man to think about it there was times I remember throwing things in the kitchen all alone ...wow thats so not me .I do enjoy hearing storys HELPS ME so much

  • ((HUGS)))) Girl you have put that out there in such an awesome way ...you know for years I have done things that I enjoyed..like cooking the biggest part of thanksgiving and Christmas dinner the past few years things would get to me like why don't someone HELP me with this and yet I would not ask..Being overly tired and frusterated ..Because do not forget was something I loved doing and I so love my family.Was dignosed with Lupus a few weeks back and lung problems ..atleast now I know

  • Your Spoon Theory has really helped me help my family and friends understand what my life is like now. Thank you so much for all you do Christine!

  • I don't have lupus, but I do have fibromyalgia, arthritis (osteo and psoriatic), chronic pain...... This is such a great video to explain how I feel and why I can't always do the things I want or my friends and family want me to do. Thank you.

  • I love, Love, LOVE the spoon theory!!!!

  • Thank you sooo much for sharing "The Spoon Theory" is perfect for what I try to tell people about how I have to slooow down! (I suffer from Multiple Sclerosis, and "The Spoon Theory" works!

  • My stupid ex is using this theory because she's "Depressed" (She's not. She's an attention whore. I know what depression is like because I am clinically depressed, as is my friend, my aunt, and ) and uses this theory on "how she feels." I think it is an insult to this theory, and to this person or anybody who REALLY has a serious condition.

  • That is so cool! I want to use this theory!!! :D 'm 18 and I had it since I was thirteen.. :D. Screw the people that dislike the video..

  • Thank you so much for finding a way to explain and make people understand.I have Fibromyalgia and never quite found a way to make people see and understand,in future I pan to use this to try and make them understand.

  • Thank you for this Christine. I suffer from endometriosis and spasmophilia and probably something else that hasn't been proparly diagnosed (I get really sick from most foods and drinks). I have a hard time explaining to people why I can't do what they do.I don't look sick most of the time and I do put on a brave and smiley face, but even if they know me well, they still don't seem to have a clue or simply 'forget' that I'm sick. Maybe I can use the spoon theory next time. thanks

  • Thank you Christine, your spoon story is all the explanation needed for someone who is in Chronic Pain. I am crying as I write this, as the words you used and your explanation using the spoons, is everything I wish I could have put to words to explain my condition (Fibromyalgia). Even to myself!! Our lives are different, and I always was so hard on myself for not being able to do what I once did.

    Your theory puts a true light on people suffering with painful conditions and disabilities.

    PN55

  • i dont have lupus i have MS but does anyone have any spoons they can spare? ive used all mine already :(

  • Thanks for this...I have Ankylosing Spondylitis....the hardest thing for me when healthy people say just do this or do that, try this or try that....like it will magically go away....I just had to share this on my fb...thanks for using one of your spoons to put this together for us.

  • Thanks so much for putting this into a format that everyone can understand a little. While the details of illness differ the choices are very much alike. It's good to have a way of explaining how I have to live

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  • While I do not have Lupus, I DO ha Multiple Sclerosis and EVERYTHING you described here, from how many spoons one has to get through a day, is absolutely on point! Watching this will definitely help me explain how I feel, what I am going through daily, not just to friends, but to my wife and family. Thank you again, this helps me greatly.

  • Thank you so much for this! I was told about your Spoon Theory yesterday and tears came to my eyes as this person was reading bits & pieces from your site. Finally a way to explain what it feels like, and that's just scratching the surface! I have been having this terrible, at times debilitating, pain in my legs for about 7 years and doctors STILL don't know what it is. I hope through your theory my family will have a better understanding of why my behaviors vary so significantly unpredictably

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  • I have ME/CFS and I can relate strongly to your spoons theory. Thank you for giving me a way to express a little of how my disability affects me to my own friends.

  • I have Reflex Sympathetic Dystrophy. I use the Spoon theory to explain. Thank you.

  • OMGosh. I have fabry disease. Lupus and fibromyalgia are common misdiagnoses for this rare disease. I can totally relate to every single word.  It is hard to "look OK" but to feel soooo lousy sometimes. Thank you for doing such a good job of explaining it.

  • Thank you so much for providing me with the word I needed so much...

  • Wow this is absolutely amazing! I asked my psychologist several times how I could manage to better explain my CFS to other people, friends, family. This post has helped me more than ten appointments.

    I will try to use the spoon theory in the next-best chance.

  • good stuff

  • My daughter sent me this link. Great Video! She has "Dercum's Disease" and several other health problems. Dercum's is the 3rd rarest disease - very painful and debilitating and no one really knows much about it. No Dr.'s willing to learn and only on-line support groups. The only Dr. that knows anything about it is in California - way to far for her to visit - even if we could afford the trip. There is NO CURE - and only minimal pain management available to her. NO ONE UNDERSTANDS THIS DISEASE.

  • My AHHA moment today after watching this. I need to have this video near by anyone asks me why I'm not "my oldself" anymore. Or why don't I do anything anymore, or why don't do alot like I used to. Thank you to my friend and to you for sharing your spoon with me.

    D

  • great video! i just subbed to u

  • Thank you for giving us a way to explain what Lupus feels like, on a good day! I'm from LI originally, and would go to a diner with you any day of the week. I'd rather have a "bagel all the way" though, while you have your fries. The bagels in Wilmington, DE just don't measure up!

  • @davethewriter Hope your sister in law is nice ;)

  • The meek shall inherit the earth, and the Lord preparest a table before mine enemies...we give our suffering to you, Lord, and we Praise Your Holy Name above all Names....one day, even the rocks will shout out that Jesus Christ is Lord....let us never forget that our praises are like a sweet smell to the Lord. Thank you Jesus.

  • The Lord our God remains faithful. In our sufferings we are also incredibly blessed. As for mankind and the sorry state of things in this world, His Will be done. We can only pray for Mercy for poor sinners and for the atonement of our sins, for the sake of His sorrowful Passion and for all humanity. The weak continue to lead and our King remains incredibly Merciful. Thank You Jesus. Amen. ~Jesus I Trust in You~

  • Your vid was sent to me and has enjoyed corresponding with BritishSnail and others...lovely concept and I have begun using it, also.

    Those who suffer burdens seem to be picked out to do so. Why? Only God knows, but I can tell you one thing. I'm a doctor and was in a car accident. Now I have dysautonomia, and the whole dysautonomia community has been welcoming and grateful for whatever contributions I can make.

    I see you relate to many people. Thank you.

  • Christine, thank you so much for this wonderful explanation. Since I "discovered" it years ago, it has really helped to explain the debilitating effects of Fibro and CFIDS and everything else I live with every day. For we all know that chronic illnesses are NOT solitary beasts. They tend to run in PACKS with other chronic illnesses. I can not begin to really express my gratitude to you. I am in AWE of your bravery and eloquence.

  • Thank you so much for all the comments! It is so nice to hear from people who have watched the video.

  • Wow. Absolutely superb. I may use this 'language' when I go before a jury (my DLA Appeal) being charged with lying about my suffering as I have no positive test results and M.E. has no diagnostic test whatsoever. May God have Mercy on the souls of those who simply... do not believe 'the Word of God', for my life is 'His' will. All of the sick who offer their sufferings back to God, through our Lord Jesus Christ, have them returned to them as 'blessings'. Thank You Jesus. Amen

  • @BritishSnail : we are with you in spirit and in prayer. Check out the Peterson Clinic in Utah..they came up with a test for CFS/ME. It an HMRV test of your blood..you send it in to them ($ on your own, I'm sure). They have received much fame and welcome from chronic diseases sufferers, and I believe they are both doctors and have a child with CFS. HMRV = human: mouse retro virus. It is exciting news to many, although the mainstream may not have an open mind to receive this info. LoLv.

  • @DysautonomiaMD Thank you sweetheart, especially for all prayers for the sick here, as they are now dying by in the hundreds of thousands, in great pain and poverty. Those tests would hold no weight nor help over here and also, it is not a retro virus. They have discovered it is a virus, more recently. Prednisolone relieves my sufferings but I am only allowed it when desperate (flare ups and collapsed when I now struggle to even 'breath'). Thanks for your thoughts and considerations though x

  • Thank you for this, I've given the link to your Spoon Theory to all sorts of friends to try to explain what living with gastroparesis is like (beyond the fact that there's a whole bunch of stuff I can't eat & better days and bad days related to eating which they can see on a simplistic level.) It has even more of an impact seeing you read it & I'm going to put it on my Facebook page. Thank you!

  • Bravo for your spoon theory! Thanks so much for your nice friendship.

    Be Cosmic, ☸ڿڰۣ—☸ڿڰۣ—

  • I just sent this out to all of my Facebook friends. I have Intracrainial hypertension and Fibro, along with many other medical issues. I am a mom of 5 beautiful children, and a wife to an amazing man. I have told everyone I can about the Spoon Theory, They understand. but because they can not see my illness and I try so hard to hide any pain that I do have no one really wants to believe it =(

    Thank you for sharing your story and I hope all is well with you =)

  • I just sent this out to all of my Facebook friends. I have Intracrainial hypertension and Fibro, along with many other medical issues. I am a mom of 5 beautiful children, and a wife to an amazing man. I have told everyone I can about the Spoon Theory, They understand. but because they can not see my illness and I try so hard to hide any pain that I do have no one really wants to believe it =(

    Thank you for sharing your story and I hope all is well with you =)

  • I'm absolutely fascinated with Christine and her wonderful Spoon Theory! I've listened to it several times, yeah... ;-) I have Fibromyalgia, Multiple Chemical Sensitivity (can't eat the fries & gravy, my food is reduced to less than 20 items..) and get plenty of fatigue. I've subscribed to you, Christine! thanks so much for sharing & helping so many people. I tweeted you, facebooked you, voted you! Do you allow your video on other blogs, with proper links & acknowledgements of authorship? Hugs!

  • I've shared this essay with my friends and family so they can understand what it is like to have MS or in my mom's case fibromyalgia -- great vid!!!

  • Love your personality & your cheer. Glad the Spoon Theory can be used by many with invisible diseases. I have dysautonomia, dysfunction of the autonomic nervous system. Thank you for increasing awareness and sharing good.

  • Love your personality & your cheer. Glad the Spoon Theory can be used by many with invisible diseases. I have dysautonomia, dysfunction of the autonomic nervous system. Thank you for increasing awareness and sharing good.

  • I have Fibromyalgia so I definitely loved her explanation! (The constant smacking while she was speaking was a bit distracting though).

  • Thanks Christine, I love your Spoon Theory! I have Fibromyalgia and some other fun things, and I'm thankful I can use this to explain how I feel. I've been a Spoonie for several years. Yay for Christine!

    p.s. Now I want to try fries and gravy! lol

  • Great explanation... Thank you so much for sharing!

  • Thank you Christine...you are an inspiration!

  • please remember to subscribe to this feed for more great videos like this one! Thanks guys!

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