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From: timjana
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  • 2:26 what you all came here for

  • I've been twitching the same EXACT way! I've been recommended to see a neurologist by a doctor. I don't twitch all through the night. I get peaceful sleep. My twitches don't hurt. It is a good idea to find a way to keep pressure on that one spot throughout the day. I began twitching out of nowhere a few months ago. It started as small twitches then it grew into large twitching. I've maintained good health throughout my life. Please contact me if you wish.

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  • @angelwing978534

    STFU dont make fun of it.. asshole! she sure suffers - she even cried! -.-'

  • @MrEmreD Sorry, i was just saying she can be an actor. =_= Eesh ppl these days. And i do feel sorry for her OKAY? kthnxbai

  • huntington's disease?

  • awww :( hope you are better.. keep you in wishes.

  • hi, this is Katie's older sister again. Sorry its taken so long so a response to anybody, but our dad ran this account and was killed in an accident last year. An update on Katie, the twitching has stopped, although she is getting migraines that do limit her a lot.

    She has been seen by the Mayo Clinic and multiple neurologists in Omaha and Lincoln. I'm sorry to say, but this was real, and we were desperate for answers. Thank you all for your advice and warm wishes.

  • Just wondering what the treatment was that made her get better. I have twitching over my whole body. What did they come up with?

  • @seekjesus1st that's the sad part. They never actually figured it out. Ultimately the twitching just stopped. I believe that the official diagnosis was a unknown neuromuscular disorder, but I might be wrong about that. Instead she gets horrible migraines that disable her for days.

  • Hope this girl gets better!

    Good Wishes!

    :)

  • She's so beautiful.

  • With the advancements in medical science, it should be possible to remove/correct the nerve/muscle causing it. If the stimulus is coming from the brain and can't be corrected, then as a fix-when-needed measure, it's possible to put a small ball, smaller than a pingpong ball, on an elastic strap on her back. She can turn it inwards so as it pushes the spot when the twitching starts. You've probably tried something like that already, but if not .....

  • could u get out of her face geez

  • wow, no negative comments toward this girl, i don't believe it!!!

  • give NUCCA a shot. correction of primary disaffrentation and elimination of asymmetrical dural tension and compression can do wonders!

  • Could she has recieved the Gardasil/HPV shot ? Look up into it. I've been injured by it. Doctors think that i may have motor neurone disease, lovely isn't it ? Hope your daughter is well by now

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  • I dont know what it is But i'm sure hoping that she will get well :(

  • I am not a dr but the spams in her neck look like dystonia, have they looked into cervical dystonia?

  • Tapworm or other parasites some immature may have got to the brain hard to diagnose though - brain related either way

  • What about the EEG test?

  • maybe seizures

  • may seizures

  • Hello. Yes, to whereisthekarma statements. The twitching can be caused by Lyme disease. I used to have it on the left side of my face, but it has gone with treatment for the Lyme.

    I am also positive for Babesia, another tick-borne disease, that you can catch at the same time as the Lyme. I would periodically get the red dots on my body. I am undergoing treatment for it now. Be forewarned, do some research. The tests can be unreliable!

  • Has she ever been tested for any tick borned infections? Lyme can make you twitch, and Babesia will give you a rash with red dots? Most drs are very ignorant about tick infections. Please seek out a specialist. If you need help doing this please contact me at wheresthekarma@yahoo.com.

  • if she is still like this, perhaps you could get a brace that she could wear on her upper torso that would apply pressure to the problem areas.

  • i feel so sorry for ur daughter but let me ask u, arent there any treatments for this?

  • I hope she feels better.

  • i get twitches like that but i dont jerk, i know what she is feeling. Can you message me about this because im the same way and i dont know what to do anymore.

  • Is it curable? ... i mean, she can get rid of it if she has something stuck on that muscle... although, i don't think she would be able to move her arm :S

  • The poor thing. Has it improved? You should check her magnisum level.

  • She's totally cute :)

  • can't you just make some sort of contraption that will keep pressure on that spot.

  • Try medical marijuana. I know, when you see the words you go YEAH RIGHT. I've seen people with a similar problem who had MS and as soon as they started smoking, the twitches and ticks just stopped. If you can't get medical marijuana, I'm sure someone knows where to get some so just try it. It CANNOT hurt. It is 1000x less damaging than tobacco and alcohol combined and there have been 0 deaths recorded from solely smoking marijuana. Ever. If you want more information, look up the movie The Union

  • Agree with the Lyme idea. Did you have a Western Blot test done? Lyme disease is funny sometimes it doesn't show up. Second third and fourth opinions. Doctors will often tell you it's nothing when they can't figure it out.

    Also, how is her fluid intake? Have her drink a couple extra glasses of water a day. I'm sure she's not dehydrated but you'd be surprised what too little fluid can do to your muscles. Good luck. I'll say some prayers for relief for your whole family, especially Kate.

  • aww :(

  • rub your neck it will fix it

  • Hi lady, Try some Chinese Acupuncture may help!!

    Peace!

  • Awww poor bby....im so sorry you have to deal with this im really sorry.

  • Its Lyme

  • @RKovecses how can you be so sure? i mean if it was as easy as looking at a video im sure the Doctors that did all the blood tests / scans / etc would have seen it right away, there would have been no need for those tests or this video if it was that simple.

    Really hope the Doctors find out whats wrong, hate to see how upset she is.

  • Treat her for lyme disease.

  • Lyme disease or rocky mountain spotted fever or any of the co-infections that can go along with lyme disease.

  • Man she is really cute too.

  • let's see what Dr. House says..

  • may I suggest something for quick fix? what if you get a patch/sticky tape or something, stick plastic fingers/or a small ball onto that patch/sticky tape, and stick it on her back? It's not a long term solution but it may provide temporary relief...I really hope you will get well :(

  • may god help her i be in my prayers

  • I would say develop something that pressures that spot.

  • She has a nice body.

  • thats so evil shooting this!!

  • what about Lyme Disease?

  • i have a twin brother, his name is joshua and he has autism. i have seen my brother do this SO many times! i think it is the autism, but we don't actually know. :(

  • @TruForYouTut- its not atisum, 1.) people with autism dont open up and talk about what is going on 2.) this looks very involuntary not controlled

    - i know because by neighbor has autism and i have this problem

  • My girlfriend has something that looks very similar to this. She has had it since January and all the tests from the doctors come back negative. They see it as nothing wrong and suggest its psychological, but she has no idea why it would be as she has no problems or anything. It is really getting to her after these months. She is able to control it enough to keep it away, but once it starts she cant stop it again until it calms down.

  • I find it interesting that if you apply pressure to certain spots the twitching stops it must be a nerve signal problem telling her muscles to contract when they shouldnt be.. or some sort of muscle condition, had she seen a rheumatologist yet? might be a good idea..I do hope you feel better hun, that must be awful to live like that..I will pray for you..

  • Could be turrettes

  • I think she has ADHD maybe.... , i have it and i get twitchy too but i never get it that bad. How is she now ? Also if she ever got hit on the head as a kid or any time during her life, it could possibly affect her too. I wish her well !!!!!!!!! <3

  • i hope she gets better. seriously, no one deserves this.

  • that would drive me fucking crazy

  • More: Consider epilepsy, or some other movement disorder. Ask about EEG, and EMG. The mood changes and irritability can be from lack of good sleep. Hang in there and get pushy if you have to with the doctors to get them to find out what's going on. Good luck to you, and let us know what's happening.

  • I would definitely go see a neurologist. I don't know what would cause this and the red dots on the hands, or whether they are related. The first thing to do is start a log of what she has had food, beverage and medication wise. You may have to rely more on memory as to what she's had within the previous 24 hrs of an episode starting. Look for patterns - stuff she's had prior to an episode happening that happens more than a few times. More next post

  • im not just sayin this but i had a leg twich while i was sitin dow and i kneed my self in the face almost broke my nose

  • did the twitching start small when all of this started? How long has the twitching been going on ? I am 23 and I have been twitching all over my body 24/7 for 6 months. It's not as bad as yours where it jerks my body but it is localized all over my body. I am worried its getting worse, did your twitching progress from subtle to severe after the last coupleof months?

  • I agree with some of the previous posters recommending magnesium supplementation. However there are other things to be considered, such as her medical history. My 1st question would be, does she have any history of drug use? Even short term marijuana use has links to anxiety disorders which could lead to symptoms parallel to hers. My next questions are whether or not she has ever been diagnosed with attention deficit disorder? has she ever taken any medications to treat it? good luck plz update

  • oh my gosh i feel so bad. all I can say is speak to all medical sepcialists. maybe if you speak to more doctors they can find out soomething

  • I actually do something like this sort of spasming when I get mad.

  • This is pretty serious! She should get cured!

  • possible cervical dystonia....Iam not a doctor...

  • She may need MAGNESIUM supplementation, try 300mg twice daily.

    Magnesium deficiencies can cause headaches and muscle twitches and spasms, as well as depression and panic attacks among other things.

    You may also notice reducing calcium in the diet may help.

    Hope this info helps

  • I too have suffered from the same ailment, on my left shoulder. I've been close to being diagnosed with Dystonia; HOWEVER, I requested to seek alternative treatments before an "official" diagnosis be made. I refused all Meds. My ailments started in July'07 and as of March'09 I found someone who has extensive knowledge with the muscle anatomy and has helped me. Though I am not at my 100% mark, I no longer suffer from spasms. Contact me by email so I can provide you with more information.

  • Have you considered heavy metal poisoning or inhalant poisoning from somewhere?

  • Awesome, God's on the task! Whoah, I was worried us humans would actually have to do something.

  • could she wear something that pushes on the muscle ,so it would help her???

  • How long has she had this condition?

  • This seems like classic cervical dystonia. I have the same and was recently diagnosed by my neurologist although it toke awhile before anyone figured it out as my twitching is milder. I am having botox injections on the 20th which lessen the twitching in many people. I realize this is hellish as my life also has been but on hold. Good luck.

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  • One important piece of information is missing from the video... Does the twitch stop when she is doing overhead tasks? Such as getting things down off high shelves, or hanging out washing?

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  • And i dont want to seem rude or judging but drug test her.... Cocaine can cause twitching like that.

  • If she's bulimic that could affect things. ALSO, that could be an early sign of ALS so keep an eye on it.

  • I have dystonia as well i do get botox shots,thought i was doing better now my left arm spasms more,im glad they are showing this to have poeple aware

  • Get your doctor to send you get some botox injected into the muscles that are affected. This weakend the muscle and should stop the movement, though only for three months so you'd have to go back for more. I am a twitch in my cheek muscles and this is the treatment I am receiving as there is no underlying cause to it.

  • LMAOOOOO

  • youll get better..=D

    good luck!

  • dystonia? poor thing.... i hope you find answers soon sweetheart. keep your head up

  • that sucks :T

  • The muscle that stops the twitch is part of a muscle group called the trapezoid. Is there a possibility that she tore the muscle at one point? It could also be caused by problem with some vertebra in the area around the 'x's.

    Have you seen an accupunctuist or chiropractor?

    Seriously...I doubt that it isn't anything some good holistic therapy wouldn't cure.

    Hope to see another video someday of Katie cured!

  • I saw a thing on the TV once where women in Africa had a similar condition because of something that had gotten into the drinking water. They twitched EXACTLY like this.

  • I'm so sorry. I hope this is not painful. You are a very pretty girl! Don't let this take over your life!

  • You are a beautiful girl, I am so sorry this is happening to you. I hope it causes you no pain, and that dr's can find an answer and a cure for you. XxX

  • Katie..u r so brave! I know ur tired! Going thru it & explaining it, is so exhausting! Try humming Katie the sound waves some how help distract the spasms. I hope it helps at least 4 a few. DON"T let it take over! ur beautiful!!

  • She has a gangster ass song stuck in her head, she's bopping to the beat!

  • are the muscle spasms painful? and can she feel the muscle tense up before it starts moving?

  • hope your ok. prayin for you

  • Parkinsons Disease

  • Ask the Neurologist to schedule an EEG to check for seizures.

  • katie has already had 2 EEGs

  • poor thing : (

  • I think she have some kind of dystonia.

    God bless her.

  • Hope it's nothing serious! Hope Katie is okay! I have you in my prayers, Katie! Get well soon, Katie!

  • thats how my tics first looked.

    before i got diagnosed with tourettes

  • Try the University of Iowa Hospitals and Clinics - they do wonders there!

  • this is katie's older sister. no she hasn't done e or anything else of that nature. we have tried putting something on the spot and she has also been hooked up to a machine that shocked the muscle. those only provided temporary relief. the good news is that she has been accepted by the mayo clinic and will hopefully get some answers.

    Hey bug, i think i'm hungry for a hug.

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  • 5:16

    "No, I look like crap."

    No, you don;t.

  • Blood posioning? Has she ever done E any other drugs??

  • (i thought i had posted this, so my apologies if it shows twice)

    According to my mother, it may be a problem with the nervous system. She recommends you try an acupuncturist.I also think, as the person above suggested, that you try pressing on that spot for relief. I hope you get this sorted out. Good Luck!!!

  • Poor girl. I imagine it would affect her social life. 20yo's need strong social interaction. Have you tried a chiropractor or physiotherapist? You may also want to try wrapping/taping something around Katie's torso with something beneath the tape pressing on that spot for relief until a professional cure is found. Good luck!

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