Living with Multiple Sclerosis - getting a Tysabri infusion

[MrSavage116]

Hello Lauen Parrott I to am a MS recipient and I've been taking Copaxone for a year. I heard of the medication Tysabri from my neurologist today, so I decided to do look at some articles and video footage on it. Your story is both inspirational and intreging; so thank you for your week by week observation of being on that medication for the 1st time.

[rentas813]

i will thank you...lauen parrott

[laurenvparrott]

@rentas813 Great! I wish you the best!

[rentas813]

well i was on copaxone it did not work for me i was getting relapses and more lesions, let see if tysabri works for me i just stated 0n 8/4/11 i will keep you posted....

[laurenvparrott]

@rentas813 Yes, please keep me posted! I wish you the very best!!

[Trinna2003]

Hi Lauren, i was just diagnosed with MS, and my neurologist prescribed me to take rebif injections 3 times a week, i havent started taking it yet, im kinda scared of giving myself injections,in your opinion do you feel that the tysabri infusion is better?

[laurenvparrott]

@Trinna2003 Hello! I started giving myself Copaxone injections. Tysabri is definitely a lot easier, but your neurologist knows your case the best. I would listen to them - I actually gave myself shots for 5 1/2 years - you get used to it, trust me! I wish you the best with everything!!

[OneManTagTeam]

1st November 2010 & I'll be going through this for the first time too

[laurenvparrott]

@OneManTagTeam Good luck!!

[sunflower3412]

I am 18 and I have ms too what is tysabri like

[laurenvparrott]

@sunflower3412 Hello! I love Tysabri! It has made me feel amazing! Most importantly, I've had no more lesions or relapses. I also have no side effects. It's amazing!

[chickashachicks]

Hi again Lauren, all these videos help, thanks again!



[laurenvparrott]

@chickashachicks No problem! Thanks for writing!

[chickashachicks]

Hi again Lauren, all these videos help, thanks again!

[miasmom9999]

How are you doing on the Tysabri Lauren? I am do to start it soon...I hope it is working well for you!

[laurenvparrott]

@miasmom9999 I am doing great! I feel amazing! It's been almost 3 years for me!

[yofra]

Hello Lauren, hablo muy poco English solo queria preguntarte las bondades de este nuevo tratamiento he leido tus comentarios y parece todos muy bien..........saludos desde Venezuela

[laurenvparrott]

@yofra Hola! Non habla español pero esta medicación está trabajando sí muy bien!

[agnessmash]

i love Tysabri! :)

[laurenvparrott]

I'm so glad!!

[bearcats2819]

Hi Lauren, Its Josh i dont think you know me yet but i was just diagnosed with MS in October. I was just wonder what Tysabri is. Thanks so much for you videos. =)

[laurenvparrott]

Hi Josh! Tysabri is a medication for MS. It is an infusion that you get once a month...like I'm getting in this video. I've been on it for over 2 years and I feel amazing!

I wish you the best!

[JQ73]

HI Lauren,

It' James again, I was wondering how long have you been on Tysabri?

[laurenvparrott]

Hi James! I am actually getting my 28th infusion tomorrow!! I feel great!

[JQ73]

Good to hear your doing well, I'll be getting my 38th infusion the 24th of this month and like you I feel good! Chat with you later

[jragusa5775]

Lauren,

I am educating myself on MS and Tysabri b/c my aunt will be starting Tysabri soon. You are adorable and so helpful in explaining the process. Thank you for that. Please continue to stay positive. Thank you for all of your video posts. YOu have helped me so much. Even though I don't know you, you are now in my prayers! I admire you. You are a beautiful person, inside and out. God Bless.

[laurenvparrott]

Thank you so much!! I'm so glad the videos have helped you! You are so sweet to be watching videos to help your aunt. I wish you both the very best! Please keep in touch :)

[XopherPaul]

Lauren, I can't begin to tell you how much I admire your spirit & determination to help others comprehend what it can be like living with MS via these videos. I've been on Rebif for 2+ years but cont'd having relapses & new lesions on each MRI. My doc reco'd Tysabri & your videos helped me decide to go for it; 1st infusion next week! I'm curious tho about your taking steroids right up to & even during your 1st infusion since Tysabri is strictly monotherapy & that is counter to TOUCH protocol...?

[laurenvparrott]

Hello! Thank you so very much!! Good luck with your first infusion of Tysabri!! I bet you will see great results! You can be on steroids while taking Tysabri because Tysabri is NOT an immunosuppressant drug. You can talk to your neurologist if you're scared. Good luck!

[laurenvparrott]

Hello! Thank you for writing! I am so glad that you're doing well! Thank you so very much for helping to put Tysabri on the market. It is working so well for me and many others! I wish you the very best!

[DAVEBLISS2007]

Dear Lauren,

What a wonderful brave young woman you are. Despite you fears and worries, you manage to laugh and joke. You have a big heart and I wish you much love and success. You are a credit to the human race.

Dave.XX

[laurenvparrott]

Dave! You are so sweet! Thank you very much! I tend to laugh a lot because it definitely helps me! I wish YOU the best and please keep in touch!!

[chattychattytania]

I do have a few questions. How do you deal with the pain, after you've done every thing you can think to get rid of it? Do I use heat or ice? And the other thing is, will the muscle spasms (mispelled) get less once I start a treatment. The pain in my neck and the muscle spasms keep me up most of the night.

[laurenvparrott]

Every person is different and has different kinds of pain. I would talk to your neurologist and determine the best solution for you. Some people take Motrin, Tylenol...etc. When you start medication there is a very good chance that the pain will get better. I have the most pain when I am stressed or depressed, so I think that it might take you some time to figure out what works best, but I promise - you WILL be fine!

[chattychattytania]

I have just been diagnosed with MS. It was a shock to get the news, but it explains all the health problems I have been having. I have started any treatment yet because like I said I was just diagnosed. I learned last friday that I had MS. I was in the ER saturday with a really back headache and pain in my neck. They gave me morphine and sent me home. Met with a nurse practitioner and she gave me muscle relaxers and pain medication,

[laurenvparrott]

I'm glad that you have an answer to your health problems...I felt exactly the same way! I want you to know that everything is going to be fine. It's very shocking to hear this news, but drug companies are really making progress and I feel confident that you will do very well! Please let me know if you have any questions!

[mar81828]

lauren, you are so sweet and so strong, all the best!

god bless you and your family, you all in my prayers,

be good

marlena

[laurenvparrott]

Hi Marlena!

Thank you so much! That means a lot to me.

God Bless!

Lauren

[sarbearuk]

hi there, i am just waiting for my letter to start this Tysabri,in England (royal hospital in Hull).

cant wait seem ages, im looking forward to it,

it was 12th feb 2008, and now its 16th april how long will it take lol,

sar x

[laurenvparrott]

Hi Sar, I hope you can start as soon as possible!

[peteandginger]

Hi Lauren, I`m studying M/S in one of my classes

at SAC. CITY COLLEGE and your videos here are invaluable, our prayers our with you and yours,keep up the good work!

[laurenvparrott]

Thank you so much!!

[avrillavigneissexy]

Hi just to let you know that my mum died of multiple sclorosis last year,i am 12 and i still cope. (WELL I THINK I DO!)

And i just whanted to let you know that there are load's of people out there in the world that suffer's from this desese.

(please reply)

(aiden) XX

[rronfsc]

Hi, I've started watching your vidoes lately and I think you are doing a great thing for anyone who has this disease.

You seem like a very brave lady and I wish you nothing but the best of luck.

I don't know if you are religious or not, either way my wife and I will pray for you.

It can't hurt lol.

Keep your spirits up and peace.

Sincerely, Ron

[laurenvparrott]

Hi Ron! Thank you so much for writing! I'm definitely a person who has a great belief in faith and I think that it's my faith that keeps me going!

I really appreciate you writing and especially appreciate your prayers!

God Bless,

Lauren :)

[NikiBoBicki]

Hi! My name is Niki, I'm 27 and I live in Newfoundland (Canada). I got diagnosed with MS 11 days ago. I start rebif injections this week and I was so nervous so I looked on YouTube to see if I could find anyone talking about what it's like to get treatments,and looking for young people with MS to relate to. I have to say, you are just so positive and strong! You have handled your relapse with such grace! I will be watching to see how you are doing, thanks for being you and posting your videos! N

[laurenvparrott]

Hi Niki! I'm so glad you're writing to me! I am delivering my first speech as a patient advocate for Tysabri on 2/28 and I'm going to talk about how getting an MS diagnosis is NOT a death sentence! It's definitely a bump in the road but it's definitely manageable!

I wish you the best of luck and please write if you have any questions!

Lauren :)

[laurenvparrott]

Hey! I will look for that comment - thank you for mentioning it! Can't wait to hear some news from you!

The job is great, (except for the smoke at night from the bar) but I'm making money so that makes me happy!!

Talk to you soon,

Lauren

[jermeal385]

hello lauren been watching all your videos have a question tysabri is that for spms

[laurenvparrott]

Hello! I'm not 100% sure but I think Tysabri can be used on all MS patients. I would talk to your doctor but I'm pretty sure that anyone with MS can take it.

[7mumfred7]

Lauren - just checking in, curious for an update, I re-watched this video instead, and thought I would make a comment just to be the first one here .... well that's what I thought, getting a Tysabri infusion is so simpler than injections 3 times per week ...so here's to long-term benefits from it, and may you never see that kind of devastating relapse again.

[laurenvparrott]

Hey Steve! This is one of the unanswered comments you were talking about! I'm so sorry it took so long to write back! I think I may have emptied my BULK email one time and deleted all those comments! I don't really go back and check all my videos! I'm sorry for the delay! Thank you for the message!

[7mumfred7]

Hi Lauren,

Bumping into you everywhere ! Also I have a message from you, and I will answer when I have some news.

My guess is that by now you have 10 messages every time you log on. No I wasn't referring to my own comments, there is another video with comments from what looks like an interested doctor, I thought I should mention it as it seemed he wanted real feed-back.

Anyway, I hope the new job is still going great.

Steve