Cholangiocarcinoma (Bile Duct Cancer) Surgery

[qiblahtravel]

my father has just been diagnosed with Cholangiocarcinoma and been given a life expectancy of a few months. Contact details of Dr Visser at stanford would be much appreciated. please email me on osman@qiblah.co.uk or call on 0044 7590678817. thanks

[twillafontenot]

I am so very sorry. I feel very grateful for each and every day, but my heart aches for you. It was strange I was diagnosed one day to the year of my mom's viewing---so please take care of yourself. There is nothing like the loss of a mom. My mom was loved deeply and she is deeply missed. I know one day we will be reunited in heaven & what a glorious day that will be! I trust God is bringing family closer to Him! I pray God blesses you during the Christmas season. Lovingly, Twilla

[jamdic70]

My mother died from cholangiocarcinoma, it was only two montns since she was diagnosed to the day she died

[twillafontenot]

I truthfully did not have alot of symptoms. Mainly just fatigue and alot of bloating. They have found that most people with this cancer also have stomach issues---usually ulcerative colitis is a link. I ate fried foods and felt like I swallowed a golfball and they found out I had gallstones. By God's grace, that is when they found the tumor. Usually, people are jaundice bf they discover it. God is good. Blessings and Love!

Twilla F

[funkyflights]

@twillafontenot

Your very lucky.... My grandfather died from this disease in 3 weeks after getting Jaundice. I believe god is good but I always wonder why he would choose someone to live but yet others die...especially children ... I feel god allows free will to play out and you were fortunate...I"m not saying miracles can't happen I"m just saying I can't imagine god choosing you to live but letting a 4 year old child die..makes no sense... I"m glad your ok though...

[rebelyelln1]

What are the signs and symptoms of this?

[santosomar]

I am very sorry for all who have gone through this... My father in law just went through this two days ago and luckily the surgery was a great success!!! Initially, there was not a lot of hope based on the diagnosis. However, the doctors were able to remove the tumor completely. Hopefully, everything continues ok...

[0742167378]

at some point the dr. says something about a vaccine. can they make a vaccine based on someone's cancer? to be used of course only that person

[auzerais310]

Today happens to be the 1 yr anniv. of my Cholangiocarcinoma surgery (Aug3rd 2010) at Stanford Hospital here in CA. I was first diagnosed in July at Santa Clara Valley Medical Center in SJ, & my docs told me my tumor was far too advanced and aggressive to risk surgery. But within 2wks, Dr Visser at Stanford did a 10hr Whipple miracle & "got it all" - along with most of my liver&pancreas! Since then we've been 100% cancer free for a year (without needing Chemo or Radiation therapies!!!)

[azariah636]

I wish my dad could of had this!! Thanks for posting!

[szqsk8]

Amazing! It's interesting how one doctor tells you that you have months or a few years at best and another doctor gives you a new lease on life.

[twillafontenot]

@szqsk8 God is good!

[lucybar10]

Who was the doctor and what hospital was this performed at? Does anyone know?

[twillafontenot]

@lucybar10 The dr. is Dr. Joseph Kuhn, Baylor Dallas. Blessings!

[R74noble]

@lucybar10 I have an auto immune disease called PSC or Primary Sclerosing Cholangitis, Diverticulosis/itis, gallbladder out and checked very frequesntly for Cholangiocarcinoma...

[eliserchi]

thanks a lot...yes,this gave me hope and i need it,really.My housband was diagnosed two months ago.He had a parcial reseccion and he will get chemo and radio soon.but all what I read, all informations, all words are so...terribles..I only cry and cry and only can think our little daugther and I'm so scared...thanks a lot again,thanks.sorry 4 my english...I'm from europe but i wanted to thank u.

[shawnprissy143]

@eliserchi 7 years ago my uncle norman jetty was diagnosed with stage 4 cancer of the brain(worst of the worst), we cried daily because the Dr said for us to cherish the time he has left because he was deteriating fast, the Dr said there is no hope for him, they did everything they could and today he is still here with us in good health with no signs of cancer, that shit is weird and a miracle, your husband will make it...my uncle is a M.D Anderson's miracle story ,look him up...proof and hope.

[eliserchi]

@shawnprissy143 Thanks 4 your words and I'm happy 'couse your uncle is doing well..My husband died a month ago..the doctors weren't wrong about his posibilities.He had a terrible end..42 years,a little child,a wife who loved him so much and a good man.Now i don't know were god is..or if it's there.Thanks again

[shawnprissy143]

@eliserchi I admire you for going through and dealing with such a rough time in your life, i know the pain you are going through i know nothing about....but what i do know is........you are the definition of life. you may breakdown and cry at random times especially when you wake up because the grief is overwhelming but soon you will progress and discover happiness again..i promise u

[eliserchi]

@shawnprissy143 Thanks a lot...i'm better now..life goes on..you were right.Thanks for your words.

[MrDerek1273]

I have stage 4 cancer, but too many tumors for surgery.

[horacioinzunza]

@MrDerek1273 my mom has this type of cancer do more information she got this surgery in st vincent hospital in los angeles ca they specialize in peple with cancer and one year later the tumor came back all her suffering with chemo therapy did not work it actually ruin her immunie system even more so i suggest more inforamtion in chem therapy and this procedure

[twillafontenot]

@horacioinzunza I am so sorry about your mom. How is she doing?

[twillafontenot]

@MrDerek1273 I am so sorry! I pray God watches over you and gives you hope.

[Lupy5]

@MrDerek1273 Are you okay? What treatment are you doing?

[Jabbaro123]

Whoa.