I feel very, very lucky, knowing that, while I have Crohn's Disease, and several other medical problems, I could have something much worse. FOP is, to me, one of those "much worse" diseases that I could have had. To know that one day the disease will eventually surely kill you, no doubt about it, would be terrifying. It sounds slow and painful. This young woman must be very brave. I hope that watching successful, happy people like her can inspire me to be less bitter about what I have.
This disease is horrible, i feel so sorry for her for what she went through, i'm glad she has a loving family. I hope the cure comes really soon. You have a great attitude, live with it, i learned this too and it helps so much better to live with it then been sad or bitter over things in our lifes. Thanks for sharing, best of luck.
@griffin7564 No, because the more you cut the more the second skeleton grows. When they cut off her arm that is when she got diagnosed because of the swelling on the opisite/remaining arm. I thought the same thing until I heard the doctor say it just worsens the condition. This disease really sucks :(
I'll bet if someone makes it to adulthood I would think it would stop progressing because they'd be done growing. Such a tragedy about the amputation. I wonder if they couldn't find the spot that is sending the message to the new bones to stop.
They should, but adulthood is just a combination of growth genes switching off - and the bone growth switch is jammed on, so whilst all other growth processes may stop at adulthood, this metamorphasis continues...
@lostindreams3 Um, it doesn't work that way. The oldest person with it was 40 years old and he still experienced these bone growths the entire time. It had nothing to do with maturing.
beautiful, just beautiful. Im very proud of her ( y )
xXdenee 4 months ago
I feel very, very lucky, knowing that, while I have Crohn's Disease, and several other medical problems, I could have something much worse. FOP is, to me, one of those "much worse" diseases that I could have had. To know that one day the disease will eventually surely kill you, no doubt about it, would be terrifying. It sounds slow and painful. This young woman must be very brave. I hope that watching successful, happy people like her can inspire me to be less bitter about what I have.
HououMinamino 11 months ago 3
Aww what an inspirational young woman. I hope they do find a cure for her and all other sufferrers of this horrible disease. Xxx
ozmonto 1 year ago
OMG SHE IS VERY BRAVE AND KINDHEARTED!! ashley thank u for being so brave that we will get to know about this disease through u. =)
fareastern00 1 year ago
This disease is horrible, i feel so sorry for her for what she went through, i'm glad she has a loving family. I hope the cure comes really soon. You have a great attitude, live with it, i learned this too and it helps so much better to live with it then been sad or bitter over things in our lifes. Thanks for sharing, best of luck.
keenandwhat009 1 year ago
i shed a tear watching this.
aznvtec204 1 year ago
so FOP happen in the birth proccess, including DNA?
markkochubey 1 year ago
couldint they just keep taking the extra bone off? having amputations is better then dying..
griffin7564 2 years ago
as part 3 clarified, surgical intervention simply triggers further ossification events
contingocoins 2 years ago 5
no because more bone will grow in it its place
banksiegirl182 2 years ago 3
@griffin7564 No, because the more you cut the more the second skeleton grows. When they cut off her arm that is when she got diagnosed because of the swelling on the opisite/remaining arm. I thought the same thing until I heard the doctor say it just worsens the condition. This disease really sucks :(
berryblitz07 2 years ago 3
if you try and remove the bone the body will 'heal' the damages area with more bone and just make it worse
cartercool90 2 years ago
I'll bet if someone makes it to adulthood I would think it would stop progressing because they'd be done growing. Such a tragedy about the amputation. I wonder if they couldn't find the spot that is sending the message to the new bones to stop.
lostindreams3 2 years ago 5
They should, but adulthood is just a combination of growth genes switching off - and the bone growth switch is jammed on, so whilst all other growth processes may stop at adulthood, this metamorphasis continues...
catherinespark 2 years ago 2
@lostindreams3 it don't work that way. her body treats her muscle like bone. there is no "spot sending a message to the new bones"
TheUTubeRebel 4 weeks ago
@lostindreams3 Um, it doesn't work that way. The oldest person with it was 40 years old and he still experienced these bone growths the entire time. It had nothing to do with maturing.
onecrazyfrau 1 week ago