I need to go get my 2nd MRI DONE,anyway,i have really bad balance, and i have more vision problems plus,when he was,putting in this sharp thing well,and some parts of my feet don't feel it the same at all anyway,the doctor said more and likely,It more to do with my software,of my brain.
I'm a medical student and this was very moving for me to hear. We are just starting to learn neurology and your video really helped my understanding of MS. Thank you for talking so eloquently about your diagnosis.
@mwahahahahahahah Thank you, you are the first person that ever said that I spoke eloquently about anything. I just speak from the heart trying to let other know from my perspective. I appreciate your response and I'm happy to help anyone that I can.
@Tituskatt I was dxed with MS 1 1/2 yrs ago & am on Copaxone. After watching your video, I thought--that's me!! I still don't really believe I have MS, although 3 neurologists have told me I do. Even though I was dxed a short time ago, the neurologists all believe that I have had it for about 15 yrs. I have RSD, have also had a cervical fusion and have hypothyroidism. I thought my symptoms were related to these conditions. Please keep up your moving videos. They make a difference.
My fiance just released an album dedicated to his mother who has MS. Half of the proceeds will go straight to the MS society. Support good music for a great cause! Please!
@djwqoijdio try rhis look left then rright do you see double vision? you need to see a neurologist and get MRI's and a spinal tap done to diagnose for MS. i hope your insurance ccvers it.
@djwqoijdio my main symptom is medial rectal palsy in my right eye. and some balance problems shakiness but nothing real bad i can live with that. my MRI and spinal say i have MS but im still optimistic.
@xxdufffxx Please don't be depressed about the diagnoses. Unfortunately we are faced with difficult situations in life and we can deal with them. Be there for your Mom and try to help out when possible. There is a lot of information on the internet and talk to the Dr to see what can be done to help her. You can always send me a message if you need to talk. Take care and just know there is a lot of things that can be done to help your Mom out so it isn't as difficult. Take care!!
@xxdufffxx i know what you mean my intire family has it (no joking) but its not that bad my mom has injactions and they work really well they dont cure ms but they just stop it from getting worse :)
Hi, Tituskatt. Have you tried holistic therapies and detox? I have FM and refuse drugs point blank. I've also noticed that FM sufferers on medication seem to be worse off than me. Drugs have side effects and in general are toxic. That why an OD kills you. I hope you can look into homepathic, ayurvedic and other hoplistc therapies. And thank you for being brave enough to make a video. You look great! : )
Help Jeff Johnson raise money to find a cure for Multiple Sclerosis. Visit his fund raising home page at nationalMSsociety website and add /goto/jeffjohnson to the URL
i was diagnosed with ms (rrms) my symptoms are mild. after seeing your video i wonder if my symptoms will become worse. i have tingling in half my hands my dr said its carpal tunnel i dont know.
@tboy221 I was told I have carpal tunnel numerous times. I would insist on getting an MRI or at least an Xray of your cervical spine. After I had an MRI, it was found that I actually had a compression of my spinal cord, (sorry I don't know the medical terms right now), and I had to have surgery to have a cervical spinal fusion. I truly am not trying to scare or worry you, just urge you to go to your Dr and insist more be done. WE have to be in charge of our own health. Good Luck!
@Tituskatt first i would like to tell you without you getting upset i think that you are pretty. next i was diagnosed with MS due to O bands found in my csf lesions in my MRI's
@deathiinabox studies have shown, or so I've read, that although marijuana can assist with spasticity and pain, it can have a deleterious effect on cognition (not to mention it is a depressant and MS patients are prone to depression).
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore this blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
I'm sorry to hear of your troubles. It's really good that you are letting people know what MS is like. I'm worried I might have MS.
I have been told I have an autoimmune disease, but my doctors can't decide which. I'm suffering from peripheral neuropathy, eyelid twitching, visual problems (such as blurring, double vision, and scotomas), bowel and bladder dysfunction, gastroparesis, lung granuloma, swollen lymph nodes, cold sores, livedo reticularis, raynaud's phenomenon and pseudo seizures.
@IONFLEX Yes, they do quite a lot. I will feel sick for a few days and start to get better, but then it will come back a week later, and sometimes even months later. I go through periods where I can't feel parts of my body or I will have tingling in my hands and feet. I also have abnormal sensations in my spine or around my torso. Sometimes I have problems breathing, seeing or swallowing. I get spasms in my abdominal muscles. I have migraine hallucinations. I have no idea what is going on.
@blobvision I see...Well, I would say this is typical for MS, but you should consult a neurologist nevertheless. He would probably ask you to do a brain MRI as well. I'm sorry this is happening to you...
@IONFLEX I did when I was put on Copaxone, but now that I have been taken off I have gotten back to haveing quite a few and often. Sorry for the long lapse I have felt awful and wasn't up for vlogging. I am back for awhile, I hope!
@blobvision Unfortunately, we have to be our own personal advocates for our health. I know it's very difficult, but you need to keep a journal and keep records of all appointments and procedures. I find that the binders that the kids use for school is perfect. You can write symptoms, procedures and keep copies of any paperwork concerning your problems. This way when you go to your Dr or see a new one you can give exact dates, symptoms and any other information that they may need. Good Luck!
I need to go get my 2nd MRI DONE,anyway,i have really bad balance, and i have more vision problems plus,when he was,putting in this sharp thing well,and some parts of my feet don't feel it the same at all anyway,the doctor said more and likely,It more to do with my software,of my brain.
MRSMORRIS74 1 week ago
I'm a medical student and this was very moving for me to hear. We are just starting to learn neurology and your video really helped my understanding of MS. Thank you for talking so eloquently about your diagnosis.
mwahahahahahahah 1 month ago 2
@mwahahahahahahah Thank you, you are the first person that ever said that I spoke eloquently about anything. I just speak from the heart trying to let other know from my perspective. I appreciate your response and I'm happy to help anyone that I can.
Tituskatt 1 month ago
@Tituskatt I was dxed with MS 1 1/2 yrs ago & am on Copaxone. After watching your video, I thought--that's me!! I still don't really believe I have MS, although 3 neurologists have told me I do. Even though I was dxed a short time ago, the neurologists all believe that I have had it for about 15 yrs. I have RSD, have also had a cervical fusion and have hypothyroidism. I thought my symptoms were related to these conditions. Please keep up your moving videos. They make a difference.
shamm101577 5 days ago
This has been flagged as spam show
My fiance just released an album dedicated to his mother who has MS. Half of the proceeds will go straight to the MS society. Support good music for a great cause! Please!
itunes.apple.com/us/album/jnewryep/id476015357
Blessings
JessicaSunshineMusic 1 month ago
@djwqoijdio try rhis look left then rright do you see double vision? you need to see a neurologist and get MRI's and a spinal tap done to diagnose for MS. i hope your insurance ccvers it.
tboy221 2 months ago
@djwqoijdio my main symptom is medial rectal palsy in my right eye. and some balance problems shakiness but nothing real bad i can live with that. my MRI and spinal say i have MS but im still optimistic.
tboy221 2 months ago
MS is very common in Scotland due to the miserable, freezing weather.
karezza6 2 months ago
My mom was diagnosed with MS 2 weeks ago. I'm getting depressed day by day thinking about her future... dijisjfisajfduifdsfhs
xxdufffxx 2 months ago
@xxdufffxx Please don't be depressed about the diagnoses. Unfortunately we are faced with difficult situations in life and we can deal with them. Be there for your Mom and try to help out when possible. There is a lot of information on the internet and talk to the Dr to see what can be done to help her. You can always send me a message if you need to talk. Take care and just know there is a lot of things that can be done to help your Mom out so it isn't as difficult. Take care!!
Tituskatt 2 months ago
@xxdufffxx i know what you mean my intire family has it (no joking) but its not that bad my mom has injactions and they work really well they dont cure ms but they just stop it from getting worse :)
rini12309 1 month ago
Hi, Tituskatt. Have you tried holistic therapies and detox? I have FM and refuse drugs point blank. I've also noticed that FM sufferers on medication seem to be worse off than me. Drugs have side effects and in general are toxic. That why an OD kills you. I hope you can look into homepathic, ayurvedic and other hoplistc therapies. And thank you for being brave enough to make a video. You look great! : )
1slamicLife 3 months ago
This has been flagged as spam show
Help Jeff Johnson raise money to find a cure for Multiple Sclerosis. Visit his fund raising home page at nationalMSsociety website and add /goto/jeffjohnson to the URL
Ekorn999 4 months ago
i was diagnosed with ms (rrms) my symptoms are mild. after seeing your video i wonder if my symptoms will become worse. i have tingling in half my hands my dr said its carpal tunnel i dont know.
tboy221 4 months ago
@tboy221 I was told I have carpal tunnel numerous times. I would insist on getting an MRI or at least an Xray of your cervical spine. After I had an MRI, it was found that I actually had a compression of my spinal cord, (sorry I don't know the medical terms right now), and I had to have surgery to have a cervical spinal fusion. I truly am not trying to scare or worry you, just urge you to go to your Dr and insist more be done. WE have to be in charge of our own health. Good Luck!
Tituskatt 4 months ago
@Tituskatt first i would like to tell you without you getting upset i think that you are pretty. next i was diagnosed with MS due to O bands found in my csf lesions in my MRI's
tboy221 4 months ago
Medical Marijuana. That is all.
deathiinabox 5 months ago
@deathiinabox studies have shown, or so I've read, that although marijuana can assist with spasticity and pain, it can have a deleterious effect on cognition (not to mention it is a depressant and MS patients are prone to depression).
sauceykat 4 months ago
There is now a Reformed Multiple Sclerosis Society that is urging for the medical community to check out Dr Paolo Zamboni's discovery that MS is caused by poor blood drainage from the brain. The answer to restore this blood drainage from the brain is angioplasty. Watch the before & afters for this surgery called CCSVI on youtube- simply amazing. In just 24 hours a world of difference. Standing on one foot eyes closed in just 24 hours!
2ndSamuel710 6 months ago
u are so brave ,,
badder002 7 months ago
I'm sorry to hear of your troubles. It's really good that you are letting people know what MS is like. I'm worried I might have MS.
I have been told I have an autoimmune disease, but my doctors can't decide which. I'm suffering from peripheral neuropathy, eyelid twitching, visual problems (such as blurring, double vision, and scotomas), bowel and bladder dysfunction, gastroparesis, lung granuloma, swollen lymph nodes, cold sores, livedo reticularis, raynaud's phenomenon and pseudo seizures.
blobvision 9 months ago
@blobvision Do you get like long periods of good functioning between the exacerbations?
In other words, do your symptoms come and go?
IONFLEX 8 months ago
@IONFLEX Yes, they do quite a lot. I will feel sick for a few days and start to get better, but then it will come back a week later, and sometimes even months later. I go through periods where I can't feel parts of my body or I will have tingling in my hands and feet. I also have abnormal sensations in my spine or around my torso. Sometimes I have problems breathing, seeing or swallowing. I get spasms in my abdominal muscles. I have migraine hallucinations. I have no idea what is going on.
blobvision 8 months ago
@blobvision I see...Well, I would say this is typical for MS, but you should consult a neurologist nevertheless. He would probably ask you to do a brain MRI as well. I'm sorry this is happening to you...
IONFLEX 8 months ago
@IONFLEX I did when I was put on Copaxone, but now that I have been taken off I have gotten back to haveing quite a few and often. Sorry for the long lapse I have felt awful and wasn't up for vlogging. I am back for awhile, I hope!
Tituskatt 5 months ago
@blobvision Unfortunately, we have to be our own personal advocates for our health. I know it's very difficult, but you need to keep a journal and keep records of all appointments and procedures. I find that the binders that the kids use for school is perfect. You can write symptoms, procedures and keep copies of any paperwork concerning your problems. This way when you go to your Dr or see a new one you can give exact dates, symptoms and any other information that they may need. Good Luck!
Tituskatt 4 months ago