Pure Carmen - From Birth Until the Day Before She Died

[0mikr0n]

>baby born with birth defect that murders it before it has time to grow

>"thank you god"

I'm really, really sorry, maybe I just don't understand. But why thank God for creating a syndrome, giving it to a baby, then making said syndrome reduce their quality of life and kill them before they have the chance to grow into someone like you? Sorry again...

Is everyone making a political statement here, or just rationalizing? What happened to this child was terrible. Why -thank- its creator?

[marjanf56]

i cared for a child that had metachromatic leukodystrophy...she fought so hard but finally passed at the age of 13 years..her onset of syptoms was at age 2..she was the sweetest child id ever cared for.. my heart goes out to this family

[xenahead]

She is so beautiful. And your other children were trying to help her feel better. There is so much love in your family.

[manyinone1]

Carmen was a beautiful baby. She is watching over you. I'm so sorry for your loss.

[CosmicFroggie]

God makes no mistakes. When He knew this precious angel only had a limited time on Earth, He gave her to the best possible parents who would give her th emost love and comfort in that time!

[angryman1007]

i see im in the sad part of youtube now....

[janemoore6]

this really made me cry,it break my heart,as a mother my heart goes out to you and your whole family.she is very gorgeous little baby girl,

[Elenator18]

this made me cry....how heart breaking.... her laughs were lovely...and it made me realize how to look at my baby bro and thank that he is here....thank you for sharing your moments with your child...may she rest in the hands of our glorious god

[sveinis95]

aww Cute ^^

[ebonics4everyone]

These kids are angels that show us the path to heaven. They are exponentially spiritually evolved over the average person with our obsessions with food, fashion, looks, sex, money and all the vulgar things we obsess over every day. We may not get to go to heaven, if we don't get a grip on ourselves. Seriously. Learn from these kids.

[kartastic123]

so small so beautiful makes me so sad to see such a gorgeous little angel pass away.my prayers go to the family she was a very beautiful little girl. R.I.P Little Angel Carmen 

[ByeByeBelly]

This must be the hardest thing you could possibly go through. Its so unfair. Shes so beautiful

[193848663]

she is so cute and she left a huge mark in her parents hearts which her parents will carry on for the rest of their live now shes making god happy and sing with the angels

[femf8tal]

OMG!! Carmen's laugh is contagious. Love the choo choo. Sorry for your loss. You were blessed to have her. She was blessed to be loved endlessly. I wish things were differently. The world would be better with more Carmen's and Crilly's. My respects.

[stankoopertv]

She is so cute sorry for your loss

[Jesssicccax]

Beautiful baby...RIP angel...

[TheAndroidNerd]

1 dislike... obviously satan

[Domino3869]

Beautiful little one, I'm so sorry for your loss. Hugs from Canada.

[TheMysterygirl34]

shes precious. so sorry for your loss.

[andreaorr1]

My heart broke when you said what are we going to do without you and gently stroked her face. She is so beautiful in every way. She had so much love around her. I am so sorry.

[1982kristylee]

so sorry for your loss what a beautiful little girl and so much love for her sister xx

[cassiopeiared86]

sooo pretty...

[galatia27]

so sad :(

[DnEmurillo]

What a beautiful Angel she is. I am so sorry for your loss.

[LightsWentOutIn99]

4:31, my heart broke. At least her pain is over now. She's with god :)

[baciandrio]

I'm so sorry for your loss, she's beautiful.

[SimonsGal123]

poor little girl i wonder how she reacted when she found out her lil baby sis died ;O poor family!!!

[ccbs82]

It's not fair that parents who actually love and cherish their kids have to say good bye to them because of these illnesses and yet I keep reading about parents leaving their children in sweltering hot cars as if their children mean nothing to them. We need more parents like the ones in this video.

[Buttify100]

:'(

[morganlmaynard]

sooo sad im so srry did u guys ever blow on her tummy? they normaly like that no she is in a better place god will look after her and she had a wonderfull time while she was a live yall were good!!

[AyooDaje93]

She's so beautiful..

[333pinkitty]

poor little baby. so sad to see the IV in her arm.

[funkyshammy]

So we can all see there is no god, because a god would not let little children like this little tacker die 10 months after being brought into this world. This is just so sad, poor family idk how you can go day to day without her i dont know what i would do if that happened to my little girl.....

[laurla521]

god bless u and ur family!!!

[skillynaomi]

this is so sad .... :( sorry for your loss

[velazquez773]

Im sorry for your loss. She had the cutest little laugh. God bless you and your family

[mrsrandom101]

I'm sorry she was such an adorable baby

[Klar1zze]

I am so sorry for you loss. I had no idea this disease existed... thank you so much for sharing a bit of the love and joy you had with Carmen in you lives.

[Linnas79]

Hartbreaking to watch that beautiful little girl when you know she passed away.

[ODAATaaangie]

I am so sorry for your loss, she was beautiful xx

[12clairebear]

R.i.p

[EurovisionSweden2011]

What? She cant be dead, she looked/looks healthy?"

[99berrykiss]

Tears streaming down my face. She is so beautiful. i am so sorry for your loss.

[Laprincessa69]

She really is a GORGEOUS baby girl. May your little angel rest in peace. & thank you for sharing your private moments with her. She knew how much love you & your fam had for her. :)

[euMaryus1997]

she was so cute and so nice and so pretty... this is so sad! :( I'm so sorry for your loss - RIP :(

[BaileyFlys]

she's absolutely gorgeous!

[XCupcake07X]

Thats making me cry and im only 11 years old :) RIP i love you even though i dont no you honey :)

[RobertBenedikts]

Thank you for sharing this beautiful video of your beautiful girl. I am sorry for your loss. God bless.

[mylovesofmylife]

Sweetness

[maggie4fun13]

Wat a beautiful baby girl... so sorry about ur loss

[TheNova1960]

Your daughter was so lovely...thank you very much for sharing her life story. God Bless you and your family.

[GODSGIRL201]

Was she blind,and what did she die from?:(

[GODSGIRL201]

Aww. She had the cutest laugh,and tight eyes ever. so srry for ur loss!::(

[GODSGIRL201]

aww. she had to cutest tight eyes ever.

[kja125]

I am so sorry that this happened to your beautiful baby

[kimmy4364]

Beutiful Little Girl and I loving Familly My Heart goes out to you all and taken to soon

[hamlethamlet123]

Beautiful little girl, taken far too soon.....so sorry for the loss of your little girl <3

[Shayles89]

I am so very sorry for the loss of your daughter! Carmen looked like such a precious little girl, taken away far too soon <3

[avrilXlavigneXO]

she is soo cute ! Im sorry for your loss :( This is so sad :/

[lana1slo]

what a beautiful girl!! soo sad

[buffyxangelll]

i'm sorry for asking but was 4.20 her last day?

I'm so sorry for your loss!

With much love, Anna

[MrGweedo9995]

now i will never get that cute little baby out of my head

[Xhellhound666X]

So perfect. Thank you for sharing her spirit with us. I know my heart will always remember her. God bless you and your family. Your beautiful angel is up above smiling down on you xoxox

[nickiaaaaa]

your other kids are so wonderful too, you all love her so much x

[nickiaaaaa]

aw wot an angel

[luv4cascy]

she is so pretty ..what a gorgeous angel

[RoxySongbird]

1:50 A very beautiful moment. Pure and innocent. Moments like this make me count my blessings, much as this little girl was to you and your family. I wish you all the best.

[oxDessyxo]

she is so precious r.i.p <3

[slicekitten]

She is so beautiful, thank you for sharing your angel with us...

[purity26]

her brother and her sister she kept things active for her! :D Beautiful children!

[djdancer00]

Precious beyond words! So sorry for your loss, she was just beyond beautiful

[SannaBreeze]

You have an absolute gorgeous daughter. Very happy and content. It is obvious there is a lot of love in your family. It is sad to see how she was getting sicker, but watching this beauty made me smile. How ever little time she got, she picked the best mom, dad and siblings to spend it with. <3

[biblecow]

i cant stop crying after watching this video....i have three wonderful children my youngest is 8 months and i just cant imagine or comprehend what you and your family went through. I do know in every picture she looked very peaceful and happy, her smile is absolutely melting :) , now she is truly at peace, god bless you and your family.

[SpongeBobChristmas]

What does her disease actually do? xx

[jdrizzo21]

wow she was such a smart and sweet baby, im so sorry for your loss, i was crying this whole time..

[momichisan]

hello, I really hope you don't mind my telling you this. I found little Carmen's videos after my baby was born, and since I think of her every day. I'm so fortunate to have my healthy boy, he's almost 14 months old.

every time I start to get impatient with him, when I feel I'm losing it, when I feel too stressed, I remember Carmen. then I kiss kiss kiss my Santi for her. then I kiss him some more. thank you so much. I'm really sorry for your loss, she was beautiful.

[AnimalGuardian71]

It has never made any sense to me how someone who never even had the chance to live, can be taken from us so soon. I'm sorry. She'll always be alive and healthy in your hearts and minds, until you meet up again. Blessed be.

[Smartyypannts003]

What a beautiful baby you have, my condolances to your family & friends. :'(

[catsplatable]

Thank you for sharing your beautiful daughter with us, love and strength to you and your family xxxx

[bajsihanden]

Oh what a beautiful baby she was, she seemed so happy. I'm sorry for your loss. You had a lovely baby, so sweet!

[JadeSeeking]

This is so heartbreaking. I could hardly watch it, nevermind live it. She is so beautiful and perfect. You made her life wonderful for as long as God let her be with you...

[soniabensmom]

this video absolutely broke my heart I am so sorry you had to watch your beautiful little girl go through that.

[d0NSKiEb00]

SHE WAS SOOOOO BEAUTIFUL :(

[jenjen21ification]

Sorry for your loss. She was so sweet.

[iamtheacm]

Carmen was so lovely and sweet. I am so sorry you lost your baby! My prayers and deepest sympathies are with you and your beautiful family.

[cryredd]

Goodness...what a beautiful little girl...such a sweet video with such a sad end...God bless you

[smoke10108]

I almost felt like tearing up while watching this video. I'm so sorry about your lost! She looks such a beautiful little darling. God bless her!

[LandonsMommy2590]

She is very beautiful! She looked so happy in the video!

[vrjk223]

one of the best videos ever. Thank you for sharing your daughter with us.

[flaviaitamara]

jesus só colhe as flores mais cheirosas é chama de volta os anjos mais iluminados!!! saiba que vcs verão sua carmem novamente e esse dia será glorioso!! ela agora está ao lado de jesus!! e não fiquem tristes pq sua carmem está bem e feliz ao lado de todos os anjos e flores q jesus resgatou dessa terra!! sejam felizes!! leiam joão 13:07. carmem é maravilhosa!!!

[dianeperigo]

She is gorgeous!! What a beautiful baby and obviously very loving parents. So sorry for your loss...

[lizbetbathory]

A child's laugh is so pure, I wish you had more of hers

[Americangirl787]

What a beautiful baby girl. This breaks my heart. I can't see the end, I only watched half--I know it makes me a coward but I just can't. Oh God Bless......

[Jemeraldx]

I'm so sorry she's really beautifull. x

[emzzizme]

aww such a beautiful babyyyyy

[CO0LTUBE]

heaven has a beautiful angel

[MsCh3la]

its comforting to know that there is such sweet angels in heaven...

[blondeballinbabe]

So cute. She had fuzzy hair. lol :)

[sagittarius813]

awwww she is soooooooo adorible

[akrammit]

You guys are the most lovely family. Her big sis sure could make her happy.

[cassiesmum]

Looks to me that the best therapy that little girl recieved was from her big sister!

[xTheCommodore]

She was so precious, I am very sorry for your loss. Your family has many wonderful memories of her though I'm sure! Best wishes to you all.

[mus3n]

What a beautiful video, you must be a strong family to be able to share your life with Carmen. She looked like such an angel, and I'm so sorry for your loss. Life's not always fair, and not easy to understand.

[banana25628]

I am crying so hard right now like I honest to god have by ever cried this hard and it makes me so sad that you had to see her go throughbt eveyday and we siblings and she lived for ten months sobshe was starting to do things but could not because of her disease and it makes me so sad that it is not even a hold I knew so if I knew a child who died at ten moths if I am crying non stop now who knows what I will do! I pray for you both and for your little angel on heaven

[cassiesmum]

OMG, thats so sad.

[JMC663]

This brought me to tears, why do such beautiful innocent people have to suffer, I have a healthy 2 month old baby and am very lucky, my heart goes out to you both your baby appeared very happy in her short life.

[Xelig00n]

Despite her brain function becoming worse every day, she still managed to smile.

That tells something about how good her short life must have been to her.

[instagasm]

my heart goes out to you and your family. r.i.p sweet little angel.

[cashmerekisses82]

she is so beautiful... and with a contagious smile! I was smiling, even though I was crying. God bless you all!

[teamoggy]

That must have been devastating seeing her slip away. I had tears just watching. She adored you all, you could tell. Just like you all adored her. So sorry for your loss. Take care. xx

[thatsthenewme]

rip sweet baby :'( she was such a beautiful baby...

i send my best wishes to the parents~!!

stay strong

[letmicit22]

I am so sorry about the lost of your precious Carmen. I have a five month old who is very small and can not do alot of things that babies her age can do. She has to see the genetics doctor in Dallas in May. I am just praying for the best but I know its all in Gods hands.

[boo23081986]

thats so terrible, it mades me so sad as i have lil baby at home, and i cant imagine what i would do if anything happend to him. i really feel for you guys and i hope u are staying strong!!

she was such a beautifull girl, hope an angels will look after her1 lots of love.

[DanniD]

So sad :(

she whas a beautiful baby.

[shelly10111]

What a beutiful baby, im truly sorry for your loss god bless your family.

[LittleKidMoment]

Im so sorry for your loss.I have lost a loved one from this reached disease.

[sweetsmile1]

she is so beautiful!!! God bless your family.

[NickJonas431]

how come she had a iv in her arm

[bcrilly69]

Whe n she was first at the hospital, she went through many tests to come to her diagnosis since the condition she had (Krabbes disease) is so rare (1 in 100 000 births). They took a lot of blood and she was having trouble eating so they wanted to keep her hydrated. The other tube you may have seen in the video is a g-tube - she was fed through this directly into her stomach because she had trouble aspirating her food.

Thanks for taking the time to get to know a little about Carmen!

[mafaldacrumbwitty]

What a beautiful baby girl she was. And thank you for raising awareness about Krabbe Disease. No child should suffer that way.

[gomaxigo]

thankyou for sharing this video with us. People like you guys help us learn about how so little time we have and to cherish every minute of it as a family having laughter and time with one another is precious thankyou! hugs from crystal in nz

[rsjm021]

What a beautiful baby. U can see how happy she made ur family n how happy use all made her. Im so sorry for ur lose I couldnt imagine the pain of losen a cild I did lose my mth old nephew n I know that pain. Thank u for sharing such a beautiful baby with us.I love her choo choo song its beautiful.God Bless u all!

[sarahmjones2]

I love your family videos... I love how much Ella loves Carmen. Such an amazing big sister!

xoxo

[melmacjack]

wonderful...so many smiles and giggles....she just loved you all so much, you could see it in her eyes.

Mel xx

[clevasheff]

Thank you for sharing Carmen with all of us.  She is such a beautiful girl!!