I was FINALLY diagnosed with Cushing's Disease in 2009 and found Dr Ludlam in September of same year. I was poster child for this horrific disease. Him and staff were excellent and by end of October, 2009 I had the surgery to remove tumor-also had to remove about 1/2 of pituitary. Mayberg did the surgery. Life is not the same. I have a 'new norm' but it is good! I owe my life to these guys.
I think I have This disease. I have all the symptoms! Im scared, but I know I need to see my doctor and find out. I will make a appt. tomorrow. I pray I dont have it!!!!!
@mzmary25 were you able to be tested? if the doc gives you crap and says stuff like 'there's no way you have it' (I, along with many others, had that happen to me about 5 yrs before I was finally diagnosed) just insist on getting the dexamethasone suppression test-very simple blood test. It's always better to know than not.
@TheDayzgirl No I dont have it. I did blood work and I had to urinate in a container for 24 hours to test disease and everything tuned out fine. But sometimes I still think I have it because I'm still experiencing the symptoms and Im not trying to sound paranoid but Im a patient at kaiser and I think they alter test results sometimes. I dont know. I could be wrong but for now, tests say negative.
@mzmary25 I hear many complain about how difficult it was to get a confirmed diagnosis from a doctor...at least they were willing to test for it. Don't give up. I went w a y to long with this disease (15+ yrs) before being diagnosed. Symptoms can come and go. I know for fact. Docs don't understand that. Try to go to a 'cushing's doc'...like Seattle Pituitary Center or Dr Findling...it could be cyclical for now. Or get doc to test on days your really present symptoms...
I am sorry... but to say that you trade a really really bad disease for not as bad a disease is not true for many. I've had my adrenals out and it has been a struggle to get the damn dosage right. I can't hold a job and I can't go to College because this is a problem. Besides that this has been one of the best explainations I've seen.
Do you also have a vd on Addisons Disease? If not could you make one?
@funtimeslaugh - No, being stressed will not result in this disease. It is caused by a pituitary tumor; however, the cause of the tumor is inconclusive. Anxiety is a symptom of Cushing's. If you think you might have it, please seek out an endocrinologist who specializes in pituitary disorders.
@funtimeslaugh they actually do not know what caused a small percentage of people (mostly women) to have a tumor that decides to crank out the 'stress' hormone in huge amounts. I had Cushing's (post op 2 yrs) but no one correctly diagnosed it until 2009 (38 yrs old). I know now looking back at my symptoms that I had this disease at least since my mid-20's but possibly as early as my pre-teens. It really manifest itself after I married to a high stress guys and owned my own business. Go figure
I was FINALLY diagnosed with Cushing's Disease in 2009 and found Dr Ludlam in September of same year. I was poster child for this horrific disease. Him and staff were excellent and by end of October, 2009 I had the surgery to remove tumor-also had to remove about 1/2 of pituitary. Mayberg did the surgery. Life is not the same. I have a 'new norm' but it is good! I owe my life to these guys.
TheDayzgirl 1 month ago
I think I have This disease. I have all the symptoms! Im scared, but I know I need to see my doctor and find out. I will make a appt. tomorrow. I pray I dont have it!!!!!
mzmary25 3 months ago
@mzmary25 were you able to be tested? if the doc gives you crap and says stuff like 'there's no way you have it' (I, along with many others, had that happen to me about 5 yrs before I was finally diagnosed) just insist on getting the dexamethasone suppression test-very simple blood test. It's always better to know than not.
TheDayzgirl 1 month ago
@TheDayzgirl No I dont have it. I did blood work and I had to urinate in a container for 24 hours to test disease and everything tuned out fine. But sometimes I still think I have it because I'm still experiencing the symptoms and Im not trying to sound paranoid but Im a patient at kaiser and I think they alter test results sometimes. I dont know. I could be wrong but for now, tests say negative.
mzmary25 1 month ago
@mzmary25 I hear many complain about how difficult it was to get a confirmed diagnosis from a doctor...at least they were willing to test for it. Don't give up. I went w a y to long with this disease (15+ yrs) before being diagnosed. Symptoms can come and go. I know for fact. Docs don't understand that. Try to go to a 'cushing's doc'...like Seattle Pituitary Center or Dr Findling...it could be cyclical for now. Or get doc to test on days your really present symptoms...
TheDayzgirl 1 month ago
I am sorry... but to say that you trade a really really bad disease for not as bad a disease is not true for many. I've had my adrenals out and it has been a struggle to get the damn dosage right. I can't hold a job and I can't go to College because this is a problem. Besides that this has been one of the best explainations I've seen.
Do you also have a vd on Addisons Disease? If not could you make one?
motorgirl85 5 months ago
@motorgirl85 He explicitly states that for any given patient it only may be true.
ZacharySmith89 4 months ago
I just got diagnosed with this and it runs in my moms family. I look like shit. Im skinny but who knows how long thats going to last.
bostongirlsandy 10 months ago
@bostongirlsandy how are you doing? have you located the tumor and had it removed?
TheDayzgirl 1 month ago
so when youre really stressed all the time, you will likely develop this kind of disease? answer me asap please
funtimeslaugh 1 year ago
@funtimeslaugh - No, being stressed will not result in this disease. It is caused by a pituitary tumor; however, the cause of the tumor is inconclusive. Anxiety is a symptom of Cushing's. If you think you might have it, please seek out an endocrinologist who specializes in pituitary disorders.
Neduvas 1 year ago
@Neduvas thank you ive taken topical steroids for the last 7 yrs and have gainned weight allot since ill look into this
eroc1234 10 months ago
@funtimeslaugh they actually do not know what caused a small percentage of people (mostly women) to have a tumor that decides to crank out the 'stress' hormone in huge amounts. I had Cushing's (post op 2 yrs) but no one correctly diagnosed it until 2009 (38 yrs old). I know now looking back at my symptoms that I had this disease at least since my mid-20's but possibly as early as my pre-teens. It really manifest itself after I married to a high stress guys and owned my own business. Go figure
TheDayzgirl 1 month ago
He and Dr. Mayberg (neurosurgeon) saved my life. There are no words to express my gratitude and how amazing he is!
jrende71 1 year ago 2
@jrende71 Mine too! They are truly amazing...
TheDayzgirl 1 month ago
Chances are I will be booking an appointment with your office soon. Hoping this is relatively painless. heh. Thanks for the great overview!
ashadowwebdesign 1 year ago
Great video, Dr. Ludlam!
arubiana 1 year ago
God bless you Dr Ludlam! He is a cushie life saver!
tnwar330 1 year ago