Trach Baby Rebekah Talking With Passy Muir (Speaking) Valve

[ANG3LK1LL3R]

Truly beautiful. I myself a parent of infant with a tracheostomy. my 11mo old son has one due to having a condition called bi-lateral vocal cord paralysis. I am looking forward to the day i can hear his voice.

[bellamor33]

I bet you were so excited the first time you heard her "voice"!! what a blessing in such a trying time :)

I am wishing you all so much luck and sending many prayers!

[LostJedi26]

When she's breathing, it sounds like her airway is clogged with mucus. Is that type of difficulty breathing normal for her?

How is she doing now? I'll go check the journal you linked to up top.

[buddzoo]

She doesn't have any diificulty breathing with a PMV. She thinks its funny to get phlegm in the back of the trach and make noises. Her SpO2 level is great with a PMV and she wears one 24x7 (unless capped). We've had sleep studies to make sure it is safe. Now, a year later, we were hoping to actually decannulate, but she still has obstruction from her tongue when she sleeps. So no cap when sleeping, and no decannulation (yet), but we are still fine with using a PMV around the clock.

[robertanita]

Awwww, she is sooooo cute. Lovely video of a beautiful baby! Thanks for sharing!

[castaway]

What condition does she have? I have posted videos of my niece who also has a trach. She has a trach due to having a floppy epiglottis.

[buddzoo]

@castaway If you expand a description of the video, there is a more detailed explanation of her condition - Trisomy 18 - Edward's Syndrome.

[buddzoo]

@castaway If you expand a description of the video, there is a more detailed explanation of her condition - Trisomy 18 - Edward's Syndrome.

[mary2587ful]

shes so lovely..i also have a trach baby but he doesnt have a passy muir valve thats why we cant hear him talking..i just wish here in philippines has an availabe passy muir valve..

[mary2587ful]

hi! your baby is so adorable.i also have a trach baby but he doesn't have a passy muir valve that's why we can't hear him talking..

[5150maddness]

Look at those loooong lashes like butterfly wings

[77apollox]

Thank you for your input we also chose to do the tracheostomy and we were able to take him home 1 week later so for us it was a great decision. I am so happy that she is making noises. I hope that your blessings continue to come. :) Thank you for the feedback and for putting the video on the internet. It is nice to see and we will be adding a video or two also to show progress.

[cloudmag0985]

Shes so adorable my son also has a trach n hes begining to makes sounds and its great to hear him..I still need speaking valve hope to get one soon..God bless : )

[77apollox]

We are debating a tracheostomy for our son who is 11 days old. Now that you are in a year or so how is the communication. I would be really curious. BTW she is adorable and what a blessing. 

[buddzoo]

@77apollox For Rebekah, the tracheostomy was a life-saver! She is now two and makes many noises and wears the passy muir valve 24x7. She cannot speak in words (she is very delayed due to her condition), but she talks in her own way. :-)

[applez1002]

awww she is s cooperative lol how cuteee

[sarljc]

Oh gosh, I wish I could play with her and talk to her......PMV are sooo great....HUgs

[AshlessandAnt]

looks like she was just talking up a storrn

she is very cute !!

[AshlessandAnt]

looks like she was just talking up a storn

[Takaangel]

I love your baby! <3 <3 <3 <3!!!!!!

[TheAlexasmama]

Really Cute. How is baby doing?

[jrodriguez1808]

God bless her...

[Xoxobunnybabeboo]

soooo cute i feel sad god bless her

[prolikereal2]

her eyelashes are long n beautifu indeed

[tileman291]

nothing better than hearing those sounds! I loved getting the PMV for my baby a few mths ago! Congrats! =)

[tdhssp]

She is BEAUTIFUL!!

[tracyphilippi]

Makes me want to cry...so sweet!

[HendricksFl]

That is so,so sweet.Just amazing.I love her!