We were tested also honey, and we were both clear!!, in Decs case it was a one off!! In my eyes Declan was normal and i was so so glad to have in my life even if only for a short while!!, hope all goes well with results xxx
I am going thru the hardest think of any humans life. A few weeks ago one of my cousins lost her son at 6 months old. He was born with Miller Diekers Syndrome. On of our aunts had two children with this same syndrome. I knew immediatly that I had to get tested. I am 26 years I found out that maybe I would never be able to have a normal child. I got tested last Monday and I have to wait 2-3 weeks for the results waiting for them has been the hardes think in the world.
I'm so sorry for your lost. I have a 9 yrs. old lissencephaly boy. Not one day that I don't think of about it. Hold on to all the love and wonderful times he was with the family. He will always be with you. You are blessed with a handsome boy!!
i felt very sad today, i had many and strong familiar problems, after i saw this video, i think i could stand more just if i want to. Thank you, you helped a complytely stranger to live with more happiness
Thank you so much for you video although I have to say it was kinda eri for me because he is the spitting image of my child. I have never heard of lissencephly until now. Mine has Microcephly, Cerebral Atrophy and Cp. I find it so heart warming to see others share there heart warming stories. God Bless
We were tested also honey, and we were both clear!!, in Decs case it was a one off!! In my eyes Declan was normal and i was so so glad to have in my life even if only for a short while!!, hope all goes well with results xxx
ckelly1804 9 months ago
I am going thru the hardest think of any humans life. A few weeks ago one of my cousins lost her son at 6 months old. He was born with Miller Diekers Syndrome. On of our aunts had two children with this same syndrome. I knew immediatly that I had to get tested. I am 26 years I found out that maybe I would never be able to have a normal child. I got tested last Monday and I have to wait 2-3 weeks for the results waiting for them has been the hardes think in the world.
jcjazmin 9 months ago
R.I.P DECLAN,NEVER FORGOTTEN
REALTALK1NZ 1 year ago
I'm so sorry for your lost. I have a 9 yrs. old lissencephaly boy. Not one day that I don't think of about it. Hold on to all the love and wonderful times he was with the family. He will always be with you. You are blessed with a handsome boy!!
CuteeBeauty 2 years ago
i felt very sad today, i had many and strong familiar problems, after i saw this video, i think i could stand more just if i want to. Thank you, you helped a complytely stranger to live with more happiness
XMUTAZIONX 2 years ago
Thanks honey, im glad i could have helped in someway. Since that video was made Declan passed away on the 15th December 2008 . Take care x
ckelly1804 2 years ago
caroline RIP i hope your okay my mum will come along i think what you say is truee because the courage of DK is onle of a kind i am very sorry
abigail watkins
magerets daughter .... i cannnot apoligies moree
absdababs 3 years ago
Thank you so much for you video although I have to say it was kinda eri for me because he is the spitting image of my child. I have never heard of lissencephly until now. Mine has Microcephly, Cerebral Atrophy and Cp. I find it so heart warming to see others share there heart warming stories. God Bless
sweetpea4912 3 years ago
I couldn't do it, be as strong ... forgive me. :( What makes it so much harder is he's so cute - say a prayer for me.
*StormSpinner1* in Texas
stormspinner1 3 years ago 2
I f you love something so strong you can hsndle anything xx
ckelly1804 3 years ago
Gorgeous little man; God bless you!
txstoryteller 3 years ago
Beautiful xxxxxx
chunkyrich 3 years ago
What A Gorgeous Lil Boy! Declan.... Please Stay Strong... Be Brave Hunni...
Lots Of Love
Sian xXxXx
LittleAngels14 3 years ago
Beautiful slide show, so nice to have such lovely memories. So pleased to be friends with such a lovely family x
abovell 3 years ago
Thank Dec and Mom for sharing this wonderful video. Hugs handsome young man. MJ from Angel Wings
marijeighn 3 years ago
Thank you honey, both our boys are angels and i will forever thank god for giving me one to hold in my arms!!!
xxxx
ckelly1804 3 years ago
lovely video hunnie, he is ur double lol and a gorgeous boy love u both to bits xxxxxxxxxxxxxxxxxxxxxxxxx
kylie1981xx 3 years ago