But you don't look ill! :P Seriously though- I'm always saying to myself I should upload an information vid about my illness and everything and I never get round to it.
The two of you are so darling! Having CFS myself, I understand every single thing you're talking about. It's good to try to inject some humor like you have. At least no one can take away our ability to laugh, even though it's hard so much of the time. Thanks for sharing this video! Will you post more??
@Suzanne42 Yes! After returning to this channel for the first time in a long time today, I feel really inspired by everyone's comments/responses to start making videos again!
Hiya, i also have ME/CFS...... its a nightmare im 16 and i cannot even get an official diagnosis in wrighting i just get told verbaly all the time...... i often need support getting up and down, in and out of bed etc..... i lost ALOT of my independence now!! I agree with what you said not many people do understand it and just pass it off as you being a drama queen etc....... but im with you guys awareness needs to be made!!!
@60reeve I completely understand - it was the same for me when I was diagnosed (or not) in 2007. I felt like so much had been taken away from me. Try and stay positive though, and I really hope you feel better soon :)
But you don't look ill! :P Seriously though- I'm always saying to myself I should upload an information vid about my illness and everything and I never get round to it.
neelubird 2 weeks ago
The two of you are so darling! Having CFS myself, I understand every single thing you're talking about. It's good to try to inject some humor like you have. At least no one can take away our ability to laugh, even though it's hard so much of the time. Thanks for sharing this video! Will you post more??
Suzanne42 3 months ago
@Suzanne42 Yes! After returning to this channel for the first time in a long time today, I feel really inspired by everyone's comments/responses to start making videos again!
plzsupportme 3 months ago
Hiya, i also have ME/CFS...... its a nightmare im 16 and i cannot even get an official diagnosis in wrighting i just get told verbaly all the time...... i often need support getting up and down, in and out of bed etc..... i lost ALOT of my independence now!! I agree with what you said not many people do understand it and just pass it off as you being a drama queen etc....... but im with you guys awareness needs to be made!!!
60reeve 3 months ago
@60reeve I completely understand - it was the same for me when I was diagnosed (or not) in 2007. I felt like so much had been taken away from me. Try and stay positive though, and I really hope you feel better soon :)
plzsupportme 3 months ago