My fiance has Hydro and had to have a shunt revision 4 weeks ago. It's her 24th shunt revision in 23 years so watching this video is like watching the last month replayed, although she's only needed one operation this time. Shunts can be tricky things. Hopefully, yours will last a good while (my fiance's previous one lasted 9 years, which can be a double edged sword as it can't be removed now without risk).
PS, you guys rock! I'm off to find you on FB and hopefully hear more tunes \m/
im 26, and was born with spina bifida and consequently have hydrocephalus as well so i've been there MANY times b4 just as u, great vid let me know if theres anything i can do 2 help out im in the USA by the way.
My fiance has Hydro and had to have a shunt revision 4 weeks ago. It's her 24th shunt revision in 23 years so watching this video is like watching the last month replayed, although she's only needed one operation this time. Shunts can be tricky things. Hopefully, yours will last a good while (my fiance's previous one lasted 9 years, which can be a double edged sword as it can't be removed now without risk).
PS, you guys rock! I'm off to find you on FB and hopefully hear more tunes \m/
ZoahLord 2 months ago
im 26, and was born with spina bifida and consequently have hydrocephalus as well so i've been there MANY times b4 just as u, great vid let me know if theres anything i can do 2 help out im in the USA by the way.
DuecesRWild85 2 months ago
Your very welcome ;)
amandaleewalker 3 months ago
you are incredible.!all the best for the project n hope u stay healthy for the rest of your life.God bless u.:) xoxo
dilla89 4 months ago
@dilla89 Thank you so much for your kind words. Your support means a lot. XX
86renez 4 months ago
Great job on the video you brave girl XOXO
amandaleewalker 5 months ago
@amandaleewalker Thank you hun! Glad you liked the video. XX <3
86renez 4 months ago
OMG, you are so brave, I really hope things get better soon for you! Take care!
lilypolo01 5 months ago 4
@lilypolo01 Thank you so much! <3<3
86renez 4 months ago