Added: 4 years ago
From: Shira2
Views: 2,618
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  • Great stuff, guys. I was diagnosed with SMA as well but not type 1. Living testimony that fighting it does work. As she gets older, you must keep her moving....

  • Amazing to see Shira is now 5 years old! Her dad (and family) have done a wonderful job with her! Given the circumstances, Shira seems to be thriving in her own way under the constant care of her father and I pray that SMA Cure is found soon!!

  • WOW YOU GUYS ARE AWESOME

  • Good job you guys! Dont stop fighting. You inspire me.

  • I have type 2, as well as my younger brother Alex. He is much weaker than me. I give you a lot of credit for what you do everyday... last year the same thing happened to him, and he was intibated for a month because of collapsed lungs from a cold that turned into full pneumonia within a day. I am 17 and he is going to be 16 soon... research is getting so advanced... I hope it not only benefits the lives of me, him, and your little Shira, but every other person fighting this. =] She is adorable.

  • I know someone with SMA they are 17! :) She is in my prayers!

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