Added: 4 years ago
From: sharminatorg
Views: 9,398
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  • What breakthrough treatments are you suggesting in this video?

    May I ask also where you gathered your datas about the donations going directly towards research? And in which location of the world does this happen?

    If the number of researchers increase every year and the amount of donations increase proportionally to the public's awareness, why has research not reached a cure as yet, do you think?

    It is a very interesting video you made there, KEEP SMILING and DONT GIVE UP 

  • I am a disabled person who is starting a group of disabled people, disabled children and disabled adults who want to have fun and make some

    $ for your self and a charity of your choice or yourself to pay medical bills or buy a van or power wheelchair. Wheelchair bound or major walking problem being almost wheelchair bound. MDA, MS, CP, SCI, DAV, Cancer Hospital, Camps

    Wheelchair Disabled, or Blind or Deaf are also needed.

  • she is an inspiration. what is the song?x

  • Ordinary Miracle by Sarah McLachlan

  • @SandDancerHellie

    Thank-you, she is my sister :)

    The Song is "Ordinary Miracle" by Sarah Mclachlan

  • I'm fifteen and my sister will be 14yrs old in a few days. She has type two sma. She has been in a powerwheelchair since the age of two, and she is awesome, a fighter and is funny. Your daughter is beautiful!! Keep fighting for a cure, and we will too.

  • @mledawn14

    I am fifteen two, and my sister, Rebecca (who this vid is about) has the same type of S.M.A, I know how hard it is, it is good to know that there is people that know what it is like :) <3

  • i feel sorry for you. i know your feeling. i have SMA TYPE 3. its not easy you know.. getting tired all day. and when people bump you down, you cant stand up again...(if im not tired).. i hope the doctors find a way to us a bit stronger soon... but like the donctor said to me.. my muscle are just getting weaker.. its not "broken".. i though i was going "broken" at first.. but i took a little wrong xD

  • Very beautiful video!

  • I am proud to say that I am running in this years Rebecca Run and honoured to be doing so. See you there!!

    God Bless.

    JD

  • my baby girl passed away 3 years ago from type 1 sma. Good luck for your beautiful daughter!!!!

  • What a beautiful child. Thank you for sharing. Have 2 little girls with SMA II. Hang in there!

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