Hello my name is Jennifer an my son Joel has Panhypopaturism an Hypo Optic Nerve Dysplagia. I wanted to ask you if you ever thought off the eye surgery? I'm just wongering what is th best hing i shoul do, due to how crule ppl are these days?
My name is Mariana and my daughter Estera was born with diabetic incipidus as well, I would like to know what hospital you went to for her transplant treatment?
If you could email me at Epicolumbia@gmail.com that would be wonderful!
Thanks so much and you are in our thoughts and prayers.
My son Jack has SOD the story is nearly identical to mine but Jack was a very ill baby and had go on life support for 6 weeks.
he made it - hes now 16 and over 6 ft hes adorable - hes doesnt write but has learnt to read slowly - he is developmentaly delayed - he touches everyone he meets and they never forget him - you are brilliant parents - i may try to do a video like this of jacksome day so you can see him and get plenty of hope from him xx
Your daughter is beautiful and adorable!!! She seems to have gone through some tough times, but, with and amazing mother and father (who love her) she seems to be doing great!!! SHE SEEMS SO HAPPY...May God continue to bless you and your family! = )
Your daughter is so precious, what a beautiful little girl! You are both strong parents and I think she knows how much you love her! Her smiles and laughs show how much she loves you and feels loved! God bless her!
Thanks for sharing your beautiful daughter! You are a lovely family. I am a nursing student working on a case study of septo-optic dysplasia. Your video added a tender moment to my research time. Wishing the best to your family!
This maybe a insensitive question, although it's not meant to be, but will she ever be normal? I've been keeping track of a person online introduced via a Pastor friend who had SBS, and the use of a Hyperbaric chamber has worked very well, perhaps this would help this little girl?
Thank you for sharing this with us; she is perfect and has* great parents.
jessikanne 1 year ago
Why was she gaining weight?
Tahbii 1 year ago
Hello my name is Jennifer an my son Joel has Panhypopaturism an Hypo Optic Nerve Dysplagia. I wanted to ask you if you ever thought off the eye surgery? I'm just wongering what is th best hing i shoul do, due to how crule ppl are these days?
JENNIFERDOWD100 1 year ago
This has been flagged as spam show
Hello,
My name is Mariana and my daughter Estera was born with diabetic incipidus as well, I would like to know what hospital you went to for her transplant treatment?
If you could email me at Epicolumbia@gmail.com that would be wonderful!
Thanks so much and you are in our thoughts and prayers.
EPIColumbia 1 year ago
what a sad story.:( the poor little girl and her family.
such a cute little thing too.
god bless. xx
TheCwgrl 1 year ago
Aw!! Your baby is so cute(: Just because it has a problem doesn't mean ppl have to mean~! well I LOVE YOU AND YOUR BABY IZZY! (: LOVE, Scout M.
scoutmoore 1 year ago
i just wanna say how i admire u and ur bf for takin such good care of this precious lil grl,. . . .
boricua916 2 years ago
just the sweetest stroy,god bless you,good mom and dad.
showmeyourscutie 2 years ago
Your daughter is so cute .. ! What is diabetes insipidus ??
Good Luck ! x x
taylapearl 2 years ago
My son Jack has SOD the story is nearly identical to mine but Jack was a very ill baby and had go on life support for 6 weeks.
he made it - hes now 16 and over 6 ft hes adorable - hes doesnt write but has learnt to read slowly - he is developmentaly delayed - he touches everyone he meets and they never forget him - you are brilliant parents - i may try to do a video like this of jacksome day so you can see him and get plenty of hope from him xx
BfCms 3 years ago
Your daughter is beautiful and adorable!!! She seems to have gone through some tough times, but, with and amazing mother and father (who love her) she seems to be doing great!!! SHE SEEMS SO HAPPY...May God continue to bless you and your family! = )
Gimarjo13 3 years ago
She is adorable and very lucky to have parents like you.
She will grow up to do great things.
mauimother 3 years ago
Your daughter is so precious, what a beautiful little girl! You are both strong parents and I think she knows how much you love her! Her smiles and laughs show how much she loves you and feels loved! God bless her!
angelkitty02 3 years ago
ant more updates on your baby? she is a beautiful little girl - and you are doing an awesome job with her...
timetravel21217 3 years ago
hey, yeah i have just put her newest vid on here, called izabelles story part 3
xx
holliemchugh 3 years ago
there is also a 4th video on here too x
blaa125 2 years ago
Great job. My grandson has SOD too! There are challenges that pop up from time time, but his smile and laugh make those challenges even more special.
Way to go Izabelle, keep up the hard work. Way to go mom and dad
Karen
miltondirtfarmer 3 years ago
Thanks for sharing your beautiful daughter! You are a lovely family. I am a nursing student working on a case study of septo-optic dysplasia. Your video added a tender moment to my research time. Wishing the best to your family!
slomalinois 3 years ago
my son is blind and autistic
born premature at 6 months
he has retinopathy of prematurity grade 4
he is also severly autistic
clazza01 4 years ago
how beautiful, my daughter has this condition but the opposite where she is underweight xx
katiebabi2008 4 years ago
wow is she precious,keep up the good work.hugs and smiles and prayers from the Holy Land. :) :) :)
green1smile 4 years ago
What a beautiful little girl. My daughter has SOD too. God bless you guys. You look like wonderful parents and your daughter looks very well loved.
rjpowe2 4 years ago
u have a quality most people will never have my daughter has the same condition and if you ask me its something to be proud of!
kjduffey86 4 years ago
oops JANIS!!
picturesoflily07 4 years ago
Hi Holly thank you so much for your comment on my daughter trying to sing Janice!
So glad to meet another mum!
You daughter is gorgeous and keep strong.. things will always get better with our kids. they do amazing things which i am sure you have seen!!
If you ever need a friend or have any questions sent me a message.
Good Luck, you're a great mummy!!!
xo
picturesoflily07 4 years ago
This maybe a insensitive question, although it's not meant to be, but will she ever be normal? I've been keeping track of a person online introduced via a Pastor friend who had SBS, and the use of a Hyperbaric chamber has worked very well, perhaps this would help this little girl?
killians45 4 years ago
ur coming on really well izabelle good 2 hear x
derbygirl85 4 years ago
She is precious. Very cute
AmericanIdolQueen84 4 years ago