Acoustic Neuroma Gilly 6 Months after surgery

[chiripitio]

My respect !!! You are a winner and you valor Is so much !!! I was the same tumor and my face dont be the same.....I kwon the hard way .We are a survivor and You look that a beatifull woman .My best wishes .Thanks for your video.

[dosleemy]

hello gilly.my names danny fr malaysia.i had acoustic neuroma done back in 98.i cant sure bout the size of the tumour but its bout the size of a chicken egg.it took me 2 years to recover n during dat time i did a 2nd surgery n i think its called facial hypoglossalphosis or somethin like dat.i do understand hw u feel.lost all our self confident those times.by the way do u have epilepsy?

[xsammi84x]

Hi, I have just found out a few hours ago that I have an Acoustic Neuroma (3.5cm). I am online now looking at what this really means, how it's going to effect me and what treatment I will have to consider. This video has been very helpful, thank you :)

[newtube0410]

@xsammi84x --hello, i had a 4.5cm acoustic neuroma removed in jan of 09. i went to the best people for this, i dont know your location, but they are in los angeles, the house ear institute. i basically had to have the surgery or i would have died due to the size of the tumor, not that it is cancer, its not. my tumor was bending my brain stem and inbedded in my cellubilum (sp), so i had no choice but surgery. it is a slow growing tumor, just so you know.

[newtube0410]

@xsammi84x ---continued-- its a very scary thing, i actually didn't want to do the surgery. you just need to talk with your doc, or call the house ear institute, they have a webpage, but they are the 'best'. my balance is still bad and my face still doesnt work 100%, but better, i will never hear in my left ear. i wish you all the luck and god bless.

[1ufc72]

well i feel just great,,,the only person in the world that helped her trough all this 24-7 and she did,nt as much as mention me in the video....yes i,m her husband......go figure??????????

[Clearymartin]

Hi, thank you for the response and doing another update post. I found out in August - and sent my MRI all over to specialists, got answers from 3 and they were all the same. It should come out as it does not look like a normal schwannoma, it is speckled in appearance. So, my doctor scheduled it for 10/29/09 - Very brave to put that on the web and I really do appreciate it.

But seeing what everyone has gone through to get these removed, just made it so real.

Thank you again!!

[TheBoldnanny]

Good luck I wish you well keep us posted Laughter is a great healer have a good weekend kind regards G

[adrianalan1]

mi mother had a acoustic neuroma and she si fine now. How are you now? good is the big boss that gonna keppe safe you. Trust Him.

[TheBoldnanny]

I will post a new you tube at the

weekend and maybe you can let me know if you see an improvements in my face take care and do your research best wishes

[TheBoldnanny]

FINE ! , hope all this has not scarred you and I believe we are different and what will be will be I have just returned from a month in the sun and have to say I feel a lot better in my mind than I did !

I will post a new you tube at the

[TheBoldnanny]

yet as its fairly new and nobody is sure about the side effects years down the road ( THEY SEEM TO THINK IT MAY CAUSE CANCER TO THE TISSUE LEFT BEHIND AND ONCE YOU HAVE THE Gamma knife you  Cant have the surgery) all I can say is if I had thought of looking on you tube I would of not done the surgery I may have gone with the gamma as all people I HAVE VIEWED ON YOU TUBE THAT HAVE HAD THE SURGERY SEEM TO HAVE SOME KIND OF PROBLEMS , THOSE WHO SEEM TO HAVE HAD THE GAMMA SEEM

[TheBoldnanny]

life is not easy as my balance is still a little wobbly ,and with the way I now look and feel its hard asked about the gamma knife the doctors in the USA didn't seem to like that they say there isn't enough years  down the road !

[TheBoldnanny]

The surgeon told me in the worst case I may have slight facial paralysis for a couple weeks my balance may be off for a few weeks and that would be it ! and I would return to work in about three weeks , well as you see that was not the case , after waking up in intensive care I could not talk or walk for weeks yes I'M a lot better after intensive therapy they got me walking and talking and now I drive,

[Clearymartin]

Hi, I need to have a tumor removed. How big was yours, did you ever remember. I am going to Yale New Haven Hospital in CT --- but they DID tell me what to expect, you poor thing, can't imagine just finding out when I woke up. I sent my MRI out to a few centers, and got 2nd and 3rd opinions.

Can you update so I can see how you are now?

[TheBoldnanny]

HI Clearymartin IN ANSWER TO YOUR ? how big was the tumour 1.6 cm ,

I ALSO HAD SEVERAL OTHER OP IONS 3 FROM THE MAYO CLINIC AND SEVERAL in NY CITY i thought I did my research . yes i did ask what the surgery could do to me ( my worst fear was that I would wake and not have the same mind OR BE THE SAME

[TheBoldnanny]

(as I was very worried about them going into my head lol) my surgeon DR JAFAR JAFAR HEAD NERO DEPT and CHAIRMAN NY HOSPITAL WAS VERY MATTER OF FACT told me the worst that could happen was I would lose the hearing in my left side (I had already had lost hearing before surgery

The surgeon told me in the worst case I may have slight facial paralysis for a couple weeks

[TheBoldnanny]

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