Added: 3 years ago
From: allianceforaging
Views: 19,524
Sort by time | Sort by thread (beta)

Link to this comment:

Share to:
see all

All Comments (12)

Sign In or Sign Up now to post a comment!
  • I was one of the first to receive ballon valvulary through the neck area instead of the groin. At 2 they planned to do ATV but me and the other patient's surgery's went so well ATV didn't need to be performed.

  • I received surgery at a few months old. This was an experimental surgery that had only been performed on another patient once. They first part of the surgery was to open the valve the second part was called musical chairs and they switched valves and replaced the not working one. Luckily with the 60 doctors from around the nation and experts at Ohio state university medical the second stage didn't need to be performed. I feel proud knowing other kids will receive the same life saving surgery.

  • im joining the club cus i got it aswell and im getting the surgery soon :/

  • i was also born with this and i've had 2 open-heart surgeries and countless procedures before my 15th birthday

  • I have aoritc stenosis, but Im not sure how severe my symptoms are. Its hard to compare with others. I feel some heavy breathing just now writing this text. But I hva been tested thoroughlly, and Im just on the "above the surface", so to speak.

    Anyone been through this who would explain how the symptoms manifest themselves? thx!

  • well my beeches im thirteen and im getting surgury in 2 months

  • He just described me. I'm 46. My Aortic Valve will be replaced in about 3 weeks.

    Stay Tuned

  • @probob97 i was born with aortic stenosis at 36 i had a mechanical valve put in my aortic then 4 years later i got strep hooked on it..was life flighted to cleveland clinic,,i have a homograft valve in my aortic.......hopefully u wont have a mechanical valve put in.... i am 52 now......i am suprised i have made it this far

  • @woj50 i was born with it and in going into open surgury 4 it in 2 months and im thirteen. beeyatch

  • i was born with 2 aortic valves or flaps...And your sopposed to have 3. im 16

  • arrg. i was born with this. my normal bp is like 87/60. im 21

  • I know that the valve can be replaced with a biologic or a mecanic valve. Hope you consult a medic frequently so you wont have to have surgery. I wish you well.

Loading...
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more