Life with a Disability and Multiple Pterygium Syndrome Part 2

[kibbalis]

ther is people way worse off than you so feal lucky my son has a cleft palitt and a hole in his hart also hernias in a few places but i feal lucky after seeing some of the orher kids at the hospitol

[Ultramantaro666]

Ur awesum i can understand u and ur pretty nothin 2 werry bout:)

[sweetluvgurl]

@Ultramantaro666 Thank you. :) That's very sweet of you to say.

[mishakailana]

sweetluvgurl, thank you for sharing yourself with the world. You are an amazing woman. I am curious if doctors have asked you about reconstruction of the cleft palette. I have a Wire Graph supporting mine. Is that an option you would think about? Oh and don't ask me about when i had mine done, I only found out 2 years ago, when getting a molar pulled, did not expect wire cutters to be used and was asked when the wire graph was put it through the roof of my mouth, a question I cannot answer.

[sweetluvgurl]

Thank you so much for your nice comment. It's greatly appreciated. :) Doctors told me that I don't have a cleft palate apparently. It's just my mouth wasn't formed right. It's kinda crammed together more inside, making my teeth run together. Plus, I have excess gum. I'm gonna see about reconstructive surgery on my mouth. So, you had a cleft palate for a while and never knew? Did it affect your speech?

[mishakailana]

ick repeated information, I was unaware I had any kind of reconstruction of my palette. I assume a high arched palette not so much a cleft palette as that is more common to 45XO /46XY. last comment acted funny so i am rewriting. Just was looking for a little better explanation which i think you have provided. a high arched palette might cause the same speech issues, also feeding issues which is why i believe mine was done in infancy.

[GMPNY]

You've been through an awful lot and you speak very well. I had no problem understanding you at all. Thanks for sharing :-)

[sweetluvgurl]

Thanks a lot for saying that. :) My speech has always been one of those things that really bothers me

[GMPNY]

Thank you for the explanation. Nice of you to explain it all in such depth. Hang in there and keep up with your videos ☺

[sweetluvgurl]

Haha. Thanks. It's weird. I hate to talk. Yet, once I get going, it's hard to stop. :)

[XXY4LIFE]

Yeup that is a pretty rare disease you have. Hang in there you're doing great!

[PENALIMPLANT]

hang in there sweety, barium doesn't sound fun.

you deal with a lot that most people take for granted.

[sweetluvgurl]

Thanks. Yeah, a lot of people don't really know what all I deal with and how simple things they do without a simple thought is something that's a big deal to me. Trust me, a lot of people who I've had in my life just never understood me at all.

[mholt16689]

your speech is good

barium is yummy do u know where i can get some? ugh lol