MRI of knee to ankle, aggressive fibromatosis (Desmoid Tumor)

[missdauris]

I've been suffering from Fibromatosis for almost 6 years. Its attached to my brachial plexus. Affecting the nerves in my arm and spine. Restricting movement in my neck, arm and shoulder. The pain is the worst.

[parkster50]

I also have aggressive fibromatosis.  I have a large one behind my knee, in my calf, on my ankle, and one middle of the sole of my foot protruding through my toes. Yeah there is like a 100% reocurrance rate.

[jethromayham]

Remove the tumor or the leg? Or is it too late?