Added: 4 years ago
From: faithm
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  • check out research at optimox tod (backward) com

  • Have you checked out natural iodine? I've read some research and it's supposed to stabilize heart rhythms. Interestingly, many antiarrhtymic drugs are based off iodine. =)

  • Thanks for the info :)

  • There's a reason for everything....and thanks for these videos, it helps me try to understand my own heart problems :) Keep the Faith!

  • Thanks. You too :D

  • Well I hope you get better. This is the first video I've seen by you but I'm rooting for you girl. Go eat some veggies and get that heart working properly!!

  • Perhaps they do't do many. My cardiologist is a "big time" doc. Travels everywhere....Russia included....very smart guy. The hospital and doc I used have done many many. Look up cardiac ablaion online and it should give details and I believe it even says on there that the patient is awake...not sure though...it's been years. I don't handle being put to sleep well either!

  • Well the good thing is that if you ever have to have the ablation it requires NO anesthesia! I'm so happy that the magnesium is working for you!

  • lol, sweet. maybe the couple of hospitals i use are just overly cautious? I dont know. they both would want to make me sleep for it. thanks for the tip.

  • If you're only having skips that's so great and so much better for you! Oh and no stroke...no nothing for me :)

  • You really should see about a second opinion. Even if you like your doctor it never hurts to be safe. WOW on the medicine helping you...that is wonderful. As for the occasional skip mine does that even after the surgery and always will probably, but it's only a slight bother (hardly even notice now). The ablation does have it's risks (like every surgery) but honestly it's close to harmless. You can even stay awake during it and go home soon after (no scars).

  • Well the reason it's risky for me is because I've been worked on and I didn't take well to being put on anesthesia last time. I've been on it several times in my life. I have a 5% chance of dying (where normal is 1-3) if they just ablate without finding the nerve, but if the do the test that finds the nerve I'll have a 60% chance of death. It'd be silly to ablate random nerves. Magnesium is a mineral that i can just take over the counter. it works WAY better than any med they've give me for it.

  • Hey, hope all is better with you now! I went through the same thing for years (300+ beats everyday) and then had an ablation.Things have been good for years now! Have the ablation. It's nothing...easy! My lung collapsed and that was the only complication(which is also nothing)! I had 12 holes burnt (an extreme amount). You might also want to see another doctor,a lot of people have this and don't die,seems like you're being told a lot of negative things that just aren't true!

  • I may try to find a different doctor. Taking magnesium totally helps me, cept for the occasional skip. They don't know what is causing it and they say as i mentioned that it'd be too dangerous given my history. Man, i'd rather get an ablation than an ICD. They said even if i got i might get another damaged nerve so it wasn't worth it. Wow it's a blessing that you never had a stroke (or if you did that you seem to be doing well).

  • That's a good one to post about the MSG poisoning!< ...

  • my, that sucks! I have heart failure but it's reversed so i guess maybe thats why i dont pass out. i don't have cardiomiopathy yet though.

  • SHIT! I have this same stuff Ventricular Tachycardia, Cardiomyopathy, congestive heart failure. I get to pass out every now and then from it. Pisses me off to be 44 and fucked.

  • So what exactly makes it hard to breathe for you? The atrial flutter?

  • I was born with heart disease. Part of that was that I had a hole in my ventricular septum (easy to google if you want need). Oxygenated blood was getting mixed with deoxygenated blood so my whole body was low on oxygen. My lungs didn't get enough oxygen to form properly when I was a baby. The majority of the blood vessels I had died off because of this too. So, it's not hard to BREATH, but hard to feel at rest. It's like being out of breath without the whole panting thing going on.

  • thanks. i pray God blesses you with a long life of health :)

  • wow I have the same exact thing wrong with my heart. I am 15 and was diagonsed last year. my normal heart rate stays around 150 to 200 on a dalily basis. My heart rate has gotten up to i think 450 bpm. So yeah I was at a point where my doctors told me to go home and be comfortable that I was going to die so yeah I know how weird this is so yeah I think its cool someone else has the same thing that I do!

  • wow, i hope you have a lot of luck in the future. i found that if i avoid foods with msg/free glutamic acid, i get a lot less of those attacks and palpitations. google "hidden sources of msg", and read some sites on it. it might help reduce the symptoms like it does for me. (and a lot more benefits too)

  • i have surpraventricular tachycardia and ive been to the hospital twice in a week before. well. that was in the beginning of the school year and i went to the ER during gym once. scarryyy stuff but now i have a monitor that i bring to school and i have to take it back and forth from school to home everyday so they can get it recorded when it happens and im supposed to get this surgery that will fix it once they figure out whats wrong.

  • I hope it works for you! I have a 60% chance of dying during the test they do to find out what's causing it so they won't do it. Also, I found out that msg was causing my attacks. THe problems is there physically but the msg just activates it. google msgmyth, msgtruth, truthinlabeling (all as one word for them all) then go to those websites and read about what msg does. it MIGHT MIGHT be making your condition worse (but isn't the cause)

  • Where did you get the figure of 60% chance of dying during what I assume from your post is an electrophysiology (EP) test?

  • also i'm sorry you have to go through that, especially with school going on for you. That's tough!!! i dropped out of college because my other heart conditions were exhausting me too much. it's tough! God loves us though.

  • I have SVT a lot. For no reason at all. I may breathe and screw up my beat or bend down as it beats. It's very annoying.

  • research excitotoxins, and msg. it almost hospitalized me today!

  • greetings all. I hade a VT attack a couple of years ago. I was in the gym, my heart hit 200 plus. I had a defibrilator implanted, and I am on medication. The good news is that if you are lucky enough to survive the incident, you will live a LONG and FULL life.

    Faith, the worst is behind you, and you should insist on getting a defibrilator. They work and save lives. Hang in there!

  • I found out MSG was causing it!!!!!!!!!!!!! MSG IS IN EVERYTHING!

  • We all have our unique set of triggers. One guy I used to know had to give up *CINNAMON* because it was triggering his SVT! Caffeine is probably the most common trigger. Alcohol and smoking are biggies too.

  • during the summe ri was on vaca. in texas swimming in my aunt and uncles pool and for no reason my heart hit like 300plus and i was like shaking. of course my mom dint want me going to the ER because that would prob. ruin our vacation. it had happened twice before that and now its happened twice and sort of a third time. it only happened to you once and you had to get a defibrilator?

  • yes, in Canada health care is free. the doctor decided in minutes that I should have one. Two weeks after my first attack, i had an attack while walking to work, the medication had not taken effect yet, the device saved my life, no dought about it

  • yeah, its very dangerous. if your heart continues to beat like that, as in if it beats like that for a few hours, your heart can die or be damaged because it requires tons of calories that it just can't get fast enough. the ER doctor told me that if anyone i know ever had those symptoms to go to the heart doctor to get checked out. you should get it checked out at least.

  • i just went to the ER on saturday which was...uhmmm...the 29th i think? im on Adenolol now and it made my heartrate go down to 46 :-O so now im taking half of a 25mg pill. dont worry ive been checked out like 10 times and i go again on april 11th.

  • oh wow, good :)

  • Hi! I've had AFIB for almost 2 years now and in the beginning I was terrified. My episodes have increased even though I'm taking a beta blocker, but it gets easier with time. I know that your problem is more serious than mine but you seem to be adjusting very well. I applaud your courage. Any heart problem is devastating to the patient but with treatment and a positive attitude its a lot easier to cope. Good luck to you!

  • Thanks :)

  • I don't know what to say about all that, it kinda makes me sad. But I wish you good luck and am glad you're around :)

    Kris

  • Thanks, I'm glad to be around too :) I'm feeling a lil better :) Thanks for checkin out my vids.

  • I am really glad that you are okay. I DO care about you!! :) How'd you know? :)

    I hope the above comments can provide you with some insight, or at least, you have a friend who knows what's going on! :)

    BIG HUGS to you, Faith. You are an amazing spirit!

  • Thanks Becca! :D I'm glad you care, I really am. You're an amazing spirit too! It is good to know that someone knows what I'm going through. :)

  • She has been fine ever since. She suffered from this for over 3 decades, and the only reason they knew what was wrong was because she happened to be in the hospital when she had one of these attacks, and they were able to see what was going on. (She worked full-time at the hospital for like eight years before she got "lucky" and had an attack at work.)

  • wow! thats cool, sorta, hehe. for this last attack, they saw me go in and out of them. one of the ER guys seemed excited to see an entire episode start and stop. I WISH I COULD have the cath ablation! Maybe I will. I've had about 10 caths for different reasons in the past so I'm used to them, but I guess this is a dangerous procedure for me.

  • I seem to be set off by not wearing my oxygen enough (like in the video, but I wasn't long without it.). I'd go days without it except for when I was sleeping. And it was also set off by my inhailer albuterol.

    my oxgen drops down to 84% off of oxygen, and 89-96% on 2 liters or more depending on if it's a good day or not. But usually I'm around ninety percent with whatever amount of liters.

    i partly dont like wearing an oxygen tube on cam, makes it seem like i'm trying to get sympathy.

  • At least you're hot. I would do you!

  • That is so scary. My mom was suffering from supraventricular tachycardia too. My mom had a new surgery (new in 2000 when she had it) called catheter ablation, which sounds a lot like what your doc is suggesting. Believe it or not, it was an outpatient surgery. I think she was in and out in 8 hours.

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