Added: 1 year ago
From: AmazingGrace160
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  • @kauthaku23456 This IS my chair. When I was 15 I got Guillian-Barre Syndrome. It took me 2 1/2 years to relearn how to walk. I use my chair here b/c I have a severe form of dysautonomia. About two years ago I found out my GBS was chronic and my paralysis came back again even worse this time. Yes I am paralyzed badly now and use THIS chair and am waiting on one that will better fit my needs. I'll post a vid abt it when it comes in.

  • @AmazingGrace160 I am so sorry I am feeling very sad that I did not know about this GBS. I am paralys too spinal injury since 2006 december , I am using folding wc but too is bulky. I am here in Mumbai, India. If you do not mind I want to make friendship with you

  • @kauthaku23456 you don't have to be completely paralyzed to use a wheelchair. There is what is called "incomplete paraplegia or quadraplegia" where you have some ability to walk or move. I have had a chair since 2004 when I got Transverse Myelitis, took me 2 years to walk, like Nina, but I still have paralysis of my left leg, use a cane and a KAFO to walk. I use the chair when I am tired, or go to the mall..

  • @kauthaku23456 How completely ignorant of you.

  • I think my wheelchair looks much better^^

  • I see no reason for HATERS to cuz at anyone trying to help others.

  • paraadrian11: F*** YOU!!!!

  • @dinoking200 Well, if your going to use that type of language I at least want an explanation why. ??

  • @dinoking200 fuck you back.

  • your wheelchair is ugly but you are good looking

  • @paraadrian11 LOL, thanks :)

  • @AmazingGrace160 I love this video. I watch it at least once a week, it puts a big smile on my face. That cat is hilarious, he's so funny and so cute. I showed this video to my brother whose a vetenarian. He knows of the behavior of cats and said this is typical of a cat screaming for attention from his master. Hope you're feeling better. I'm hanging in there and hope you do too.

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  • That looks very similar to the one I have now, except mine has a higher back. Extremely lightweight and the wheels come off and back folds down. Much much easier to push than the one I had before. Wheelies are the coolest!! And also come in handy for going up curbs!

  • Thats so cool that your excited about having your chair. I was born w/Spina Bifada and when i was a kid they only had old clunky E&Js but i got my first quickie back in 1990 and it was a red used quickie and i kept it for atleast 10 yrs now i have a newer TiLite TR its totally rules over any other chair out there....keep going strong !

  • @TiLiteJoel OOOOwwww I want a TiLite SO bad!!

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  • my sister had an accident and she is a complete parapeligic. what would be the best wheelchair

  • Nice wheelchair! I've got a Quickie Helium which is very light, but really heavy with the Yamaha powered wheel system that I've got. I've been a part time wheelchair user since 2007 as I have M.E. Our kitty Beatrice also loves to sleep in my wheelchair! I put a towel over it so my cushion doesn't get covered in her grey fur lol! You have great wheelchair skills. I can do wheelies to get up curbs etc. but not sustain them.

  • I say let's start a fan club dedicated to Aiden the Cat!

  • Also kick ass! I've never seen someone who could spin on a wheelie o.o

  • Eck :x The issues with how much they can cost is a bit of insanity :s

    Prime example - I dont know the specifics of what they're called, but I -think- theyre power wheels? They have motors in them to help with manual chairs..Essentially glide on their own, to cause less stress on your arms.

    But theyre expensive! They're like .. 7 grand :/ Its crazy :x

  • how can someone dislike this

  • nice chair. i have one too, except it's a bit newer (Q7) as i have spinocerebellar ataxia 3 (SCA3) are those pneumatic tires? bec ause i noticed u move around quite easily. my tires r mako kik and they suck. its just plastic! no air! lol

  • @bradblaes Thanks for the comment :) These are actually bicycle tires. I had to have them because of where I live.

  • haha love your wheeley! I dont have a wheelchair but school has sports wheelchairs for disabled ppl so they can do pe but i went in one, i tried your trick and i managed to keep the wheeley for about 3mins which is quite good for someone who has never done one. I want to know what part of ur body is paralized? I wish i was in a wheelchair so bad as they are awsome!

  • Why is it Custom made i dont get it? why cant u be in a normal wheelchair?

  • @unknownstudd69 This chair is nearly 6 yrs old. At the onset of my paralysis I was told I would never walk again. Also at the time I had lost 80% function in my left arm and was having some major problems with pressure sores and other things. I hope this answers your question, if it doesnt feel free to ask more :)

  • I'm so happy to have viewed this video of yours. I didn't realize that you can actually stand up. The last video I saw of yours showed you bedridden and unable to swallow or digest food. I too have an autoimmuned disorder but well I can function quite well. You're truly an inspiration and great source of encouragement. Good luck.

  • @hotathlete2 Thanks for replying :D Im actually fully paralyzed from below the chest down again. I had gained my swallowing ability back for a few weeks but it is gone now along with my taste and sense of smell Im still living on my feeding tube 24/7 :( But I WILL NOT let this get me down. I refuse to! Sorry to leave such a downer reply...

  • @AmazingGrace160 Thank you Kristina for the reply. Good for you, don't let anything get you down. All is possible with God. I had placed a prayer petition for you at Lourdes(a place in southern france where people with advanced illnesses have been cured). I put a petition in for myself and I believe that's what led to much of my miraculous recovery from my autoimmuned disorder. You don't have to be Catholic, just believe in and love God. The petition can be done on the internet as well :)

  • Ur amzing gurl have a big heart ur cat so cute...hehe thank for sharing the video glad ur doing well sweet heart i saw ur other videos ur awsome helping otherz understand what ur going throu hun always pray for you :)

  • @MandyBooVLDarkMoon Thanks so much for praying for me :D! I can use it today actually, I was up all night sick and never fell asleep. :/ And my cat is really sick we think he has pneumonia so I have to take him to the vet,,his name is Aiden.

  • Quickie is nice my manual wheelchair is a quickie, Wheelchairs come with safe guards usually called back casters.

  • @wheelieblind This quickie is actually really old I have had it sense I became paralyzed in my early teens. Im surprised i havent outgrown it a lot. But I have out grown it and its giving me pressure sores now that Im fully paralyzed again so today Im going to be measured for a new wheel chair. Im actually going to try and get a TiLite custom fit but if my insurance cant im ok with it. Your right the quickies are really good this one help up for a long time.

  • Your right keep the faith and make the best of what God has blessed you with and realize everyday you have 100% of your life left because no one knows when your time is up. I was paralized at age 21 and just turned 59 residual damage but like you got to do what you gotta do. Live passion. I rehabilitated myself swimming and was soon walking and running about 90% recovery.

  • You have a very cool wheelchair. I have a very old wheelchair and trying to get a new one is very difficult, my wheelchair is about 7 years old so its missing a lot of stuff. Sometimes the wheels don't roll, etc. Can you help me with the process on how to get one? I know they are super expensive, I just got insurance and I've been trying to tell them that I need a new one but the process is taking forever.

    By the way, I use a wheelchair because I have spinal cord injury.

  • @haditadlimon Hi, You have your Dr write a prescription for one then you would have your PT or OT evaluate you for a new one. After that you have them call your insurance and YOU call your insurance and tell them you have met the criteria for a new chair. :) Hope this helps.

  • @AmazingGrace160 Thank you so much, really appreciate it! :)

  • @AmazingGrace160 I just did it, the process took a couple of weeks. The company sent me a wheelchair today but it is a huge one. I told me I need a very small one since I'm "fun-size" :) and the one the sent me it is very uncomfortable :( what company sent you your wheelchair? and Does the insurance covered it all?

    Thank you time! :)

  • @AmazingGrace160 I just did it, the process took a couple of weeks. The company sent me a wheelchair today but it is a huge one. I told me I need a very small one since I'm "fun-size" :) and the one the sent me it is very uncomfortable :( what company sent you your wheelchair? and Does the insurance covered it all?

  • Sorry for yours and every one else's diagnoses. :( but at least you can ride around in awesome wheel chairs and be bad ass rollers . :)

  • @outdoorsman443 Thanks! I should get my next one painted by the harley motor cycle team here they did that for a friend of mine who has muscular dystrophy. Maybe black with pink flames :D

  • Hi, nice meeting you. I'm 37 from Italy and in 2002 was diagnosed with Multiple Sclerosis. I've to say you're a very inspirational girl and I'm so sorry about all things happened to you, I wish you all the best. I'd like to talk with you sometimes, if you've a profile in Facebook, we'd talk. Hugs. Enzo.

  • @grifoit Im sorry, I actually only share my facebook with family that live far from me. But you can message me here on youtube :) So sorry you have MS I have a very close friend with it and have seen what a hard time she has with it.

  • im really sorry about you your in my prayers-ruinso(not my real name but my nick name) :)

  • Allencrutches:

    I have spastic paraparesis, which is an upper motor neuron disorder caused by a defect during development. It is progressive and will eventually leave me unable to walk at all. Even though I can use forearm crutches indoors, I still have to use a wheelchair out of my apartment because my legs give out constantly and I fall. Just because someone doesn't look disabled doesn't mean they are faking anything or are lazy. Wheelchairs are not just for SCI people.

  • Cool wheelchair!  What exact Quickie model is it? I have two Quickie chairs: a Quickie GP and a Quickie Revolution. I have trouble walking without my legs giving out due to spastic paraparesis. I use my wheelchair whenever I leave my apartment, which is everyday. Man, I wish I could hold a wheelie as long as you! I can only hold one for about 1 minute.

    BTW: ignore allencrutches comment. Just because a disability doesn't show on the outside doesn't mean it doesn't exist.

  • allencrutches - the wheelchair is wonderful invention for those in need of moving about without the faculties to do so.

    One not need to be paralyzed to benefit from the wheelchair. Those who are blind, recovering, from surgery, recovering from childbirth, have vertigo, syncope, dysautonomia, any form of bodily weakness from digestive paralysis to muscle weakness to whole body weakness from chemotherapy or malnutrition or even needing a feeding tube - there are a million reasons one may need

  • @videosofanneka Well said.

  • hello¡¡¡¡

    hola me gusto tu video

    disculpa te molesto me gusto tu silla me gustaria tener una asi ya que mi silla esta muy vieja si me puedes ayudar yo soy de sonora mexico.

  • @KokOrONum8 Hello, sorry my spanish skills are horrible but I kind of understand what you are saying and I will do my best to reply. So here it goes: ¿Cómo usted necesita ayuda

    ¿Necesita asesoramiento o está pidiendo algo?

    Gracias por la complament,

    kristina

  • @AmazingGrace160 They're saying that they like your wheelchair, and want to know where they can get one like yours. 

  • Awesome

  • Grace is a splendid name - twas my grandmas, and my sister and my niece have it as their middle name. Amazing Grace done with bagpipes is a wonderful tune. I use a wheelchair all of the time (20 years now) and I have two desperately beautiful and hideously fast cars, both of which combined probably cost about the same as that wheelchair. Cars are cheaper than they sound.

    I disagree wholeheartedly with allencrutches, you seem to be sharing your smile. Good wheelieing. Good luck ;-)

  • why do you need to use a wheelchair, why would you want take adavantage of the disabiled did the insurance cover it, i am not trying to be rude, just interested in it.

  • @allencrutches Hi, my illness was caused by another disease known as Guillian-Barre Syndrom which is paralysis. It took around two years to relearn how to walk again. once you see my other videos you will find it caused another disease known as Dysautonomia which does not allow me to stand for very long.

  • @allencrutches I am not taking advantage of the disabled. I physically cannot stand any longer then 30 min at a time.

  • @allencrutches AMazingGrace and I both have POTS. which meanas when we stand for too long we pass out. Like she says in her vid her POTS started w/ paralysis! and is why she got her wheelchair. I use a wheelchari  because I have randome hemiplegia, or paralysis on one side of the body, as well as my pots.

  • I fail at the low back ones I have such cruddy trunk stability. love quickies its what mine is, I'm getting a new one hopefully sooner than later. everyone alwyas panicks at my not having my arm rests on it, I have passed out sitting in it before. love wheelies and spins haha nice job. do you ahve some camber in ur wheels?

    i took my tippers off too

  • Nice Chair hun! Love your mad wheelie skills! I would most definitely kill myself trying to do that! I love your hat by the way, It looks way cute with that outfit.

  • Cool chair, but I am praying you will never have to use it some day! I have a huge old wheelchair and when I have had to use it I would have to get someone else to push. Cool tricks!!! Wow 2 hours!!!

  • 2 hours!! WOW, you have some pretty mad skills LOL :P that's really cool! :)

    Stacey

    x

  • I had a point where I was getting much healthier and I got over zealous and sold my wheelchair. Now I am starting to need one again, but I have been trying to get by without one. I hope you can get rid of yours one day.

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