Zane's Story

[kittypride2]

He's so beatiful *tears*

[KatieCompulsive]

thank you for sharing this my girls are in heaven to from this horrible f up diease

[hostgirlemilly]

Wow i am so sorry yall had to go threw that. I cant even imagine how much it must hurt. I will pray for a cure

[txstoryteller]

I can pray for you; I am so sorry for your loss! Heartbreaking but important vid; I pray a cure for Batten disease is found soon! FIVE stars!

[Brycesmummy]

Thank you for sharing your story- our son has this awful disease and it is good to know that we are not alone. What a beautiful child Zane was. These children are angels.

[hairyeahyeah]

Beautiful. May Zane and My son who died in 1985 at aged 3 with Batten's continue to enrich our lives with their strength , courage, love and guidance.

[Packey85]

OMG i could barely make it through this video :( I feel deaply for your loss. My cousins daughter Tatyanna was diagnosed with battens disease in late 2007 at the age of 5 as well. Our family's sympathy goes out to u. Tatyanna went to china last year for experimental treatment, but it is said to only slow the process of the disease unfortunately. If u would like her video is Tayanna 1. Blessings to your family.

[sweetalbi]

My son is 5 and now I'm balling at the thought of going trough something as tragic as this.I don't know who you are but believe we are all connected in some way. my heart goes out to you and commend you for being strong for him when he most needed you. Your son's time here, as short as it may of been...still ripples life...I know.....cause I feel it. Bless you and all your family.

Albi

[astnv22]

That was my child... My daughter was diagnosed at the beginning of 1996 at the age of 18 months and passed at the end of 1999 almost 5 years old.. Besides momma Ball was her first and last word ever spoken. My heart breaks knowing that other families are going through this and my prayers go out to each and every child and parent...This was a beautiful tribute I wish I knew how to do this so I could do the same for Amber. Thank you for sharing your beautiful son with all of us. Bless you, Melissa

[millenbachs]

Our family is also affected by this disease, my thoughts are with you..

[eskrimaprincess2]

Hello, my name is Amanda and I am 13 years old. My little sister Hayden was recently diagnosed with Batten Disease. It is very heartbreaking to compare how she used to be with how she is now. Your video was very touching and I wanted to say that I am very sorry for your loss, and there are other people out there. We will keep you in our prayers. ♥God is watching over us♥

[hjjones67]

I am sorry for your loss My family too has struggled with this disease and lost my nephews Jeffrey and Tevin in 2003 and 2004 Your video was beautiful and brought me to tears stay strong and know our angels are watching over us

[sueinks6]

this is a powerful piece.Thanks for sharing it on behalf of all our Batten kids

[mcpickle32]

Great video....touching..to the point...what can I do to help? If it's alright, I will post this on my YouTube Page...it gets traffic, and would be great for others to see this.