My mum had a seisure just over a year ago and that triggered her ME. She wasn't diagnosed for about 3 months. She's getting better as is hopefully returning to work in March.
ME is officially a disabilty. But my mums employers aren't taking that into consideration for phased return.
Good for you raising awareness is the key! Too many people think that people are doing it to not have to go to work, or get money from the government...which is completely ignorant! Its not fair at all for people to be so judgemental especially when no-one really knows about it apart from the people who suffer from it! Even medical professionals (and I must admit I am a nurse) dont even understand it fully! it wasnt even metioned at when i was at uni tbh!
Hi Daisy! I am lottie on ayme.. I remember you posting about this vid when it was M.E awareness week and I did watch it then but since I've just got a youtube account I thought id mention how good it is again! i think its the first vid that comes up when you type in m.e awareness, go you!!Hope you are doing ok :) xx
@sunset1022 Try not to look at it that way! I know how hard it is, though luckily mine's not as bad as that, but you can still slowly work towards the plans you wanted to do! It may take a lot longer than others but you can still get there! It's not the end of the world, people get better from M.E! There's always hope! The only way of dealing with this is to try and remain as positive as you can. Look for the good things in your life, loving and understanding family and friends. Keep living!
The lady also said to me that I should go for a 10 mile run after I said to her I can't because of my condition M.E, it is horrible when people don't understand after you explain your condition to them, so many times.
The lady also said to me that I should "harden up" after I said to her I can't walk for more than 8 minutes in the forest everyday. She said to me that I should "harden up" and I have explained to her about my condition, yet she seems to think I am all fine.
@seasons264 Hey my friend I know what you mean, I am finally able to do 10 minutes walking everyday, but it has taken a whole month to get to this stage, people say to me that I should go for a 20-30 minute walk and if I did that I would have a relapse that would last a whole month to recover and I would have to start all over again at 1 minute as I would have lost all ground if you know what I mean. People can be so Arrogant.
I don't understand why we all just have to suffer while we aren't getting proper help. It is crazy how people say to me, that I should go for a 10 mile run and they laugh about it thinking it is one big joke. At the moment I can only do 8 minutes walking everyday but I am grateful it is something, I have had M.E for 1 year 6 months now.
Lying in bed watching this crying. I am sixteen and have been suffering for over a year. Thank you for making this video to try and open the eyes of the world :) xxx
Daisy - thanks for taking the time and energy to put this together - i've had m.e. for four years and whilst many are very kind & sympathetic a lot of the time people don't understand how debilatating it can be, hopefully your film will help.
Hey daisy really good video, glad to see your keeping positive with this horrible illness. I've had ME since 2004 which started out as glandular fever and watching your video rings true for so many things about ME. I'm now 36 years old and manging my illness well, there is hope people. I don't believe I'll ever get back to where I was pre illness but accepting you have ME is a huge step which isn't always easy after you've been told for years your fine!
daisy <3 your amazing! and this video, you've done such an amazing job! the amount of views. you've really done an amazing job for raising awareness. <3 xx
Put this message on your channel. I am so glad to find you. I saw your video when you were 12 and was so impressed. I wondered what happened to you. Glad to see you becoming a beautiful young woman.
"My brain is dying"; I know that feeling all too well. There have been days when I struggled to get up and never managed to; my limbs refused to obey and move and when they did, I'd get all dizzy if I tried to get up. I've grown so accustomed to pain that I barely feel it anymore if I fall or even if someone else tries to hit me, pinch me, or anything else that would trigger pain in normal people. I have not managed to get a diagnosis yet, but probably the outcome will be that I have CFS, too.
Hi Daisy, I just recorded a (rubbish) video response, not sure if that's automatically added, going through approval or if I'm supposed to link to it here, so .. let me know (don't think YT is letting me put the link here). Thanks for the vid, anyway :-) (My g/f has ME/CFS )
a close friend is a suffer, while i have never seen her at her worst, it is causeing her problems at work, she is unable to do any work and is being called a lyer by a very large supermaket chain, be cause you can not see her problem
a close friend is a suffer, while i have never seen her at her worst, it is causeing her problems at work, she is unable to do any work and is being called a lyer by a very large supermaket chain, be cause you can not see her problem
a close friend is a suffer, while i have never seen her at her worst, it is causeing her problems at work, she is unable to do any and is being called a lyer by a very large supermaket chain, be cause you can not see her problem
My girlfriend has M.E... I've seen first hand how bad it can be... Anyone suffering from M.E at the moment has my sympathy, I hope things get better for you like they did with my girlfriend.
i have M.E and othere things but yes m.e is hard i say it is like daggers in my legs back and arms. i have not yet in my life be in hospital for m.e but many othere things life is so hard i have not been in school for 5 years
Just reading the comments shows what a fantastic job you've done Daisy, and the number of views is amazing! Thank you again for making this video and spreading the word far and wide, and for being a voice to so many people <3
@OrbusStudios I do remember you :) How is the animation going? Thank you for the support though, means a lot! Hopefully makes more sense about what I meant about masks, as you've seen mine!
Wow this video has gotten sooo many views, it deserves each and every1 of them because it such a good video. It shows the viewers just what this illness is like for the pple that have it. I hope that it has give at least some awareness to pple about this horrible illness. Hope u can make another video soonish xxxxx
@sallyfarr Aw, thank you. The views just keep climbing and climbing, it's truly amazing to be able to bring it to so many people's attention. Hope you're okay!
@DAiiSYXO I wounder how many pple will have viewed this video by the end of ME Awaeness week? Im ok at the moment thank you. Hope u r doing better xxxxx
@Radlein I know you all exist, don't worry :) Just had to have permission from people to use photos and didn't have any guys come forward in the time I had left when making the video, so hopefully that explains why there isn't.
I hope you don't mind; I've posted your clip on the Facebook group: YES! M.E IS A GENUINE CONDITION! UNITE TO BUILD AWARENESS! It's been appreciated by many members so far. Thank you for making it.
@UrbanKhoja Thank you for the comment, it really does mean a lot to me that it can have that much of an effect on people. There's a link to Chlay's iTunes in the info bit if you haven't found it yet :)
I honestly thought I was fairly well informed but I'd never even heard of such a condition prior to this, it has most certainly opened my eyes to say the least!
I had initially intended to write so much more but for once I've been left quite literally speechless by such a moving and powerful video...
well done Daisy on informing people in such an honest and natural way, I will repost every now and then so your valuable 'well-time' is productive..the more views you get the more I and any sufferers and their carers thank you ♥
@dotmolly Thank you for helping get it out there, it's such a lovely thing that we're all coming together to raise the awareness of it. I hope you're doing okay x
@chris18890 Thank you! Hehe, don't worry, I noticed that too when I was actually speaking, it was mostly down to being a bit brain fogged and wanting it to not be too long. Will make sure to waffle slower next time :)
Thanks for making this video and explaining everything so well.
I feel like i suffer from this a little, as i feel very fatigued all the time, regardless of how much sleep i get. Mentioned this to my doctor but all i get is "you need to exercise more and you'll feel better". Well tried that and usually i cant wake up for two days afterwards since im so tired.
@dubkustomz85 So sorry you've got a doctor that's being troublesome. It sounds like there is a possibility you could have it, have you tried a second referral per chance?
@DAiiSYXO Oh no he isnt troublesome, he is amazing apart from that. The phychiatrists dont seem to take any notice either. Wouldnt know what to do now to be honest. How do i go about finding out if i have this or not?
@dubkustomz85 It doesn't come up in blood tests ect, generally you've had to have the symptoms/constant fatigue for 6 months prior to getting the diagnosis. It's worth going and seeing another doctor if you can :)
My cousin is my best friend and she has ME....it hurts me to see her go through all that everyday....she is so brave and I am glad she is almost recovered.....my heart goes out to all the ME sufferers <3 xx
Thank you for sharing this with us. Everyone should watch this video so atleast thet could have an idea about how it is to live with ME/CFS. Thank you! Love, from Holland (also suffering with ME/CFS)
Thank you for making this video. Just to let you know, I've posted it on my blog (youtube won't let me post a link, but you should be able to find it via my youtube channel if you're interested) Hopefully this'll help get more awareness.
my friend has this and also my mums friend has this so i dont get to see my friend as often as i would like which is really annoying this video is lovely :)
I think that ME awareness week is a great idea, thank you for adressing it. I am 13 years old and I have had ME for the past year and a half. I think that a lot more people need to know about it, I hadn't until I got it. Non of my friends know either. I have had to do homeschooling, but I am failing at that because I can't A) stay awake long enough and B) can't think straight. As soon as I saw this video and heard about awareness week I went on a frenzy, sending it to all the people i know. :-)
I've had M.E for 7 years. And for 7 years i've struggled trying to describe what M.E actually is. Now I can direct them to this video. Thankyou for doing this, lets raise some awareness for M.E!!
Very moving this should be shown in schools to educate people about M.E. I hope all the people shown make a recovery and thank you for showing your personal experiences.
Thank you so much for sharing this video with us - it's a wonderful way to portray what life is really like for us!! I've posted the video on my blog, and through twitter and facebook, to try to get it out there. :) You can see it on my blog at thethingwithfeathers.me - I'd love to stay in touch, if you want to follow me on twitter or facebook etc. :)
Thank you for this. I particularly love what you say about people who are recovering; I am no longer housebound, which is wonderful, but often find that friends have completely unrealistic expectations of me. Because I can walk now they simply forget that I am ill at all and it feels humiliating to have to keep going on about it! Yesterday I ended up in agony and unable to breathe, just because I am so bad at saying no. We desperately need to be more open and help people to understand ME.
My only problem is that I'm having difficulties understanding what you're saying over the music. As someone with ADHD, it's very difficult for me to process people's speech (especially if they have a different accent than I do) when it's too close to the volume of background music that has singing in it. Could you possibly turn down the background music more so that we can hear the important message you're trying to get across? Thanks! :-)
I have had CFS for 12 years now. A great deal better now than in the early days. I have a page on my website about my experiences Don't think Youtube will let me post the link, but google medwaymaria
This was so moving, it made me well up :'( you are so brave for putting this video on YouTube, I will definitely mention this in one of my videos, your cause needs more awareness. xo
Thank you for the video. I saw a tweet about it and after watching this, will retweet it myself because it was eye opening and very honest. Daisy you are a v.articulate soul. x x
I have to comment again - my first comment doesn't do this justice. Daisy is an amazing person and friend who has been through so much, but is always there for everyone. This video is excellent and deserves the attention it is getting. I am glad my pics can play a small part. Well done, hun! Lots of love xxx
well done daisy for using your experience to help others, i hope good things come to you and that your voice will be heard on a greater level so more people can understand what effect this has on a massive volume of people. take care stay strong and i hope that your video brings an understanding to those who dont know or have just discovered they have it and those that have to look after close family that suffer too. fair shout for coleen for helping you aswell it helps a lot take care and gl x
Love the video, it's great that you're spreading awareness. I've had M.E for four years, and it's so frustrating that people don't count it as a 'real' illness, because I'm not visibly ill or disabled. My headmaster thinks I'm school-phobic, and pretty much everyone thinks I'm faking, or 'oh, you're just tired, so sleep more'. Thank you for making this video, I hope you improve soon :) x
This is so moving. You're very brave to be sharing your personal experiences with the rest of the world who may not even know what M.E is. Really wonderful video, Daisy <3
An awesome informative video, Daisy. :) I'm an M.E sufferer too and I've come into contact with so many people who are ignorant about the illness and just call me lazy or think I'm faking it. :( If I'm honest, it does hurt. :(
My mum had a seisure just over a year ago and that triggered her ME. She wasn't diagnosed for about 3 months. She's getting better as is hopefully returning to work in March.
ME is officially a disabilty. But my mums employers aren't taking that into consideration for phased return.
popsnorman 2 weeks ago
You are so cute with your cat eyes. Great work on raising awareness on this nasty illness. I have it too.
xenbay 1 month ago
Good for you raising awareness is the key! Too many people think that people are doing it to not have to go to work, or get money from the government...which is completely ignorant! Its not fair at all for people to be so judgemental especially when no-one really knows about it apart from the people who suffer from it! Even medical professionals (and I must admit I am a nurse) dont even understand it fully! it wasnt even metioned at when i was at uni tbh!
hellodavetm 1 month ago
Thanks so much for this video. Such a relief to know that there are others out there who understand!!
AllieRoseify 3 months ago
@AllieRoseify :)
DAiiSYXO 3 months ago
Hi Daisy! I am lottie on ayme.. I remember you posting about this vid when it was M.E awareness week and I did watch it then but since I've just got a youtube account I thought id mention how good it is again! i think its the first vid that comes up when you type in m.e awareness, go you!!Hope you are doing ok :) xx
lottie903 4 months ago
Touching video! Well done!
I am also a young sufferer of this awful illness. I have 2 awareness videos on my channel you may enjoy. Lovely vid xxx
chronicallyfatigued 6 months ago
@sunset1022 Try not to look at it that way! I know how hard it is, though luckily mine's not as bad as that, but you can still slowly work towards the plans you wanted to do! It may take a lot longer than others but you can still get there! It's not the end of the world, people get better from M.E! There's always hope! The only way of dealing with this is to try and remain as positive as you can. Look for the good things in your life, loving and understanding family and friends. Keep living!
ThatDeadlyAngel 6 months ago
WE fight for you , the system will one day make life a lot better for you, I will devote my whole life to that cause !? PEACE AND LOVE ALWAYS !
DCHTID247 7 months ago
Comment removed
life10124 9 months ago
This has been flagged as spam show
The lady also said to me that I should go for a 10 mile run after I said to her I can't because of my condition M.E, it is horrible when people don't understand after you explain your condition to them, so many times.
seasons264 9 months ago
Comment removed
seasons264 9 months ago
The lady also said to me that I should "harden up" after I said to her I can't walk for more than 8 minutes in the forest everyday. She said to me that I should "harden up" and I have explained to her about my condition, yet she seems to think I am all fine.
seasons264 9 months ago
@seasons264 Hey my friend I know what you mean, I am finally able to do 10 minutes walking everyday, but it has taken a whole month to get to this stage, people say to me that I should go for a 20-30 minute walk and if I did that I would have a relapse that would last a whole month to recover and I would have to start all over again at 1 minute as I would have lost all ground if you know what I mean. People can be so Arrogant.
MrLifeinthefastlane 9 months ago
Comment removed
seasons264 9 months ago
I don't understand why we all just have to suffer while we aren't getting proper help. It is crazy how people say to me, that I should go for a 10 mile run and they laugh about it thinking it is one big joke. At the moment I can only do 8 minutes walking everyday but I am grateful it is something, I have had M.E for 1 year 6 months now.
seasons264 9 months ago
Lying in bed watching this crying. I am sixteen and have been suffering for over a year. Thank you for making this video to try and open the eyes of the world :) xxx
TheFelicityCullen 9 months ago
Daisy - thanks for taking the time and energy to put this together - i've had m.e. for four years and whilst many are very kind & sympathetic a lot of the time people don't understand how debilatating it can be, hopefully your film will help.
here's hoping and praying for a cure.
grayzosgrouchos 9 months ago
Your really pretty I hope the best for you <33 x
MindenRose95 9 months ago
Hey daisy really good video, glad to see your keeping positive with this horrible illness. I've had ME since 2004 which started out as glandular fever and watching your video rings true for so many things about ME. I'm now 36 years old and manging my illness well, there is hope people. I don't believe I'll ever get back to where I was pre illness but accepting you have ME is a huge step which isn't always easy after you've been told for years your fine!
TheWorldwidemike 9 months ago
This video is so moving and made me cry!
IssyTheWiz 9 months ago
You throughly deserve the 6,000 views Daisy, absolutely great video, and my previous naiveté of this has been completely changed. xx
KautoMassiniman 9 months ago
Very well made video I tried to do one but I am not brave enough to show myself so I did it in the form of a poem I wrote
thinleela 9 months ago
daisy <3 your amazing! and this video, you've done such an amazing job! the amount of views. you've really done an amazing job for raising awareness. <3 xx
rachelwhiteheadd 9 months ago
whats M.E? Im from a spanish speaking country so Im not familiar with the term
iwishiwasalice 9 months ago
March 21st was a terrible day for me too
kelli3971 9 months ago
i think it's so lovely you made this video to raise awareness, i was diagnosed when i was 15th and its really affected me.
i hope one day people will start to understand it more instead of someone thats just "tired with muscle ache"
youarentpsherman 9 months ago
Put this message on your channel. I am so glad to find you. I saw your video when you were 12 and was so impressed. I wondered what happened to you. Glad to see you becoming a beautiful young woman.
usedtobeperkytina 9 months ago
"My brain is dying"; I know that feeling all too well. There have been days when I struggled to get up and never managed to; my limbs refused to obey and move and when they did, I'd get all dizzy if I tried to get up. I've grown so accustomed to pain that I barely feel it anymore if I fall or even if someone else tries to hit me, pinch me, or anything else that would trigger pain in normal people. I have not managed to get a diagnosis yet, but probably the outcome will be that I have CFS, too.
darksunmoon 9 months ago
Hi Daisy, I just recorded a (rubbish) video response, not sure if that's automatically added, going through approval or if I'm supposed to link to it here, so .. let me know (don't think YT is letting me put the link here). Thanks for the vid, anyway :-) (My g/f has ME/CFS )
jnascarb 9 months ago
This has been flagged as spam show
a close friend is a suffer, while i have never seen her at her worst, it is causeing her problems at work, she is unable to do any work and is being called a lyer by a very large supermaket chain, be cause you can not see her problem
9023710a 9 months ago
This has been flagged as spam show
a close friend is a suffer, while i have never seen her at her worst, it is causeing her problems at work, she is unable to do any work and is being called a lyer by a very large supermaket chain, be cause you can not see her problem
9023710a 9 months ago
a close friend is a suffer, while i have never seen her at her worst, it is causeing her problems at work, she is unable to do any and is being called a lyer by a very large supermaket chain, be cause you can not see her problem
9023710a 9 months ago
My girlfriend has M.E... I've seen first hand how bad it can be... Anyone suffering from M.E at the moment has my sympathy, I hope things get better for you like they did with my girlfriend.
FullMetalAsh 9 months ago
@FullMetalAsh I'm glad they got better for your girlfriend :)
DAiiSYXO 9 months ago
i have M.E and othere things but yes m.e is hard i say it is like daggers in my legs back and arms. i have not yet in my life be in hospital for m.e but many othere things life is so hard i have not been in school for 5 years
jade151096 9 months ago
Just reading the comments shows what a fantastic job you've done Daisy, and the number of views is amazing! Thank you again for making this video and spreading the word far and wide, and for being a voice to so many people <3
xsizx 9 months ago
My goodness, Daisy, I never realised this was what you were going through :(
I am Joseph from school; I don't know if you remember me, but I wanted you to know you have my support, and everyone else with this illness =)
OrbusStudios 9 months ago
@OrbusStudios I do remember you :) How is the animation going? Thank you for the support though, means a lot! Hopefully makes more sense about what I meant about masks, as you've seen mine!
DAiiSYXO 9 months ago
Thank you Daisy!
Claggy 9 months ago
@Claggy You're welcome :)
DAiiSYXO 9 months ago
This is a wonderful video- ME is a dreadful disease - I have suffered from the illness for 15 years.
poppiana 9 months ago
@poppiana So sorry you've been sufferering for so long, are you at a okay ability enough to do things?
DAiiSYXO 9 months ago
Shared on my blog: runningforspoons.co.uk :)
turbogeek421onPS3 9 months ago
@turbogeek421onPS3 Thanks so much, shall check out your blog :)
DAiiSYXO 9 months ago
Wow this video has gotten sooo many views, it deserves each and every1 of them because it such a good video. It shows the viewers just what this illness is like for the pple that have it. I hope that it has give at least some awareness to pple about this horrible illness. Hope u can make another video soonish xxxxx
sallyfarr 9 months ago
@sallyfarr Aw, thank you. The views just keep climbing and climbing, it's truly amazing to be able to bring it to so many people's attention. Hope you're okay!
DAiiSYXO 9 months ago
@DAiiSYXO I wounder how many pple will have viewed this video by the end of ME Awaeness week? Im ok at the moment thank you. Hope u r doing better xxxxx
sallyfarr 9 months ago
@sallyfarr I would hope more! Still getting it around there :) Contacting people as we speak about after MEAW.
DAiiSYXO 9 months ago
Wonderful....... Thank you Daisy. Good wishes... sincerely hope you have a full recovery soon.
bernadette607 9 months ago
@bernadette607 Good wishes back to you also :) Thanks for commenting!
DAiiSYXO 9 months ago
Wonderful. Though I do wish you'd managed to find one or two male sufferers for your video -- we do exist, you know. :-/
Radlein 9 months ago
@Radlein I know you all exist, don't worry :) Just had to have permission from people to use photos and didn't have any guys come forward in the time I had left when making the video, so hopefully that explains why there isn't.
DAiiSYXO 9 months ago
I hope you don't mind; I've posted your clip on the Facebook group: YES! M.E IS A GENUINE CONDITION! UNITE TO BUILD AWARENESS! It's been appreciated by many members so far. Thank you for making it.
SoShonika 9 months ago
Your views are growing exponentially!
SableCaught 9 months ago
And such a beautiful song as well; I'm actually trying to find it on iTunes UK as I type!
UrbanKhoja 9 months ago
@UrbanKhoja Thank you for the comment, it really does mean a lot to me that it can have that much of an effect on people. There's a link to Chlay's iTunes in the info bit if you haven't found it yet :)
DAiiSYXO 9 months ago
I honestly thought I was fairly well informed but I'd never even heard of such a condition prior to this, it has most certainly opened my eyes to say the least!
I had initially intended to write so much more but for once I've been left quite literally speechless by such a moving and powerful video...
UrbanKhoja 9 months ago
well done Daisy on informing people in such an honest and natural way, I will repost every now and then so your valuable 'well-time' is productive..the more views you get the more I and any sufferers and their carers thank you ♥
dotmolly 9 months ago
@dotmolly Thank you for helping get it out there, it's such a lovely thing that we're all coming together to raise the awareness of it. I hope you're doing okay x
DAiiSYXO 9 months ago
A fantastic and informative video, well done!
The single criticism I have is that you sometimes speak a bit too fast, but apart from that, it's excellent :)
chris18890 9 months ago
@chris18890 Thank you! Hehe, don't worry, I noticed that too when I was actually speaking, it was mostly down to being a bit brain fogged and wanting it to not be too long. Will make sure to waffle slower next time :)
DAiiSYXO 9 months ago
I watch this video and I see myself and it makes me smile and feel happy that I am not alone in this struggle!
minirinrinjii 9 months ago
@minirinrinjii You'll never be alone in the struggle :)
DAiiSYXO 9 months ago
This is really good and i hope you get all the support you need i will make sure i plaster it across twitter fb etc, hope all goes well :) x
benjamintboo 9 months ago
@benjamintboo Thank you so much! Every retweet and repost helps us all out by miles.
DAiiSYXO 9 months ago
Thanks for making this video and explaining everything so well.
I feel like i suffer from this a little, as i feel very fatigued all the time, regardless of how much sleep i get. Mentioned this to my doctor but all i get is "you need to exercise more and you'll feel better". Well tried that and usually i cant wake up for two days afterwards since im so tired.
dubkustomz85 9 months ago
@dubkustomz85 So sorry you've got a doctor that's being troublesome. It sounds like there is a possibility you could have it, have you tried a second referral per chance?
DAiiSYXO 9 months ago
@DAiiSYXO Oh no he isnt troublesome, he is amazing apart from that. The phychiatrists dont seem to take any notice either. Wouldnt know what to do now to be honest. How do i go about finding out if i have this or not?
dubkustomz85 9 months ago
@dubkustomz85 It doesn't come up in blood tests ect, generally you've had to have the symptoms/constant fatigue for 6 months prior to getting the diagnosis. It's worth going and seeing another doctor if you can :)
DAiiSYXO 9 months ago
My cousin is my best friend and she has ME....it hurts me to see her go through all that everyday....she is so brave and I am glad she is almost recovered.....my heart goes out to all the ME sufferers <3 xx
SHMRULEZ 9 months ago
@SHMRULEZ I'm glad to that she's almost recovered too :) Thank you for the support x
DAiiSYXO 9 months ago
Comment removed
dotmolly 9 months ago
Comment removed
dotmolly 9 months ago
Comment removed
dotmolly 9 months ago
Comment removed
dotmolly 9 months ago
Thank you for sharing this with us. Everyone should watch this video so atleast thet could have an idea about how it is to live with ME/CFS. Thank you! Love, from Holland (also suffering with ME/CFS)
Linda017 9 months ago
@Linda017 I whole heartedly agree! Love back to you all over the way in Holland x
DAiiSYXO 9 months ago
Thank you for making this video. Just to let you know, I've posted it on my blog (youtube won't let me post a link, but you should be able to find it via my youtube channel if you're interested) Hopefully this'll help get more awareness.
Hope you're feeling okay today,
xxx
beinglittle 9 months ago
my friend has this and also my mums friend has this so i dont get to see my friend as often as i would like which is really annoying this video is lovely :)
PagentFan2010 9 months ago
I think that ME awareness week is a great idea, thank you for adressing it. I am 13 years old and I have had ME for the past year and a half. I think that a lot more people need to know about it, I hadn't until I got it. Non of my friends know either. I have had to do homeschooling, but I am failing at that because I can't A) stay awake long enough and B) can't think straight. As soon as I saw this video and heard about awareness week I went on a frenzy, sending it to all the people i know. :-)
MitsukiDono 9 months ago
I've had M.E for 7 years. And for 7 years i've struggled trying to describe what M.E actually is. Now I can direct them to this video. Thankyou for doing this, lets raise some awareness for M.E!!
JessInMakeupLandBlog 9 months ago
Very moving this should be shown in schools to educate people about M.E. I hope all the people shown make a recovery and thank you for showing your personal experiences.
franthepoet 9 months ago
Thank you so much for sharing this video with us - it's a wonderful way to portray what life is really like for us!! I've posted the video on my blog, and through twitter and facebook, to try to get it out there. :) You can see it on my blog at thethingwithfeathers.me - I'd love to stay in touch, if you want to follow me on twitter or facebook etc. :)
sweetinthegale 9 months ago
Thank you for this. I particularly love what you say about people who are recovering; I am no longer housebound, which is wonderful, but often find that friends have completely unrealistic expectations of me. Because I can walk now they simply forget that I am ill at all and it feels humiliating to have to keep going on about it! Yesterday I ended up in agony and unable to breathe, just because I am so bad at saying no. We desperately need to be more open and help people to understand ME.
madamepsychosis78 9 months ago
My only problem is that I'm having difficulties understanding what you're saying over the music. As someone with ADHD, it's very difficult for me to process people's speech (especially if they have a different accent than I do) when it's too close to the volume of background music that has singing in it. Could you possibly turn down the background music more so that we can hear the important message you're trying to get across? Thanks! :-)
c4bl3fl4m3 9 months ago
i love you :)
babber 9 months ago
Thank you for sharing this video. My Mum has M.E. and i honestly didnt truly understand it, thanks to your video i understand M.E. a bit more.
TheAngelika1984 9 months ago
I have had CFS for 12 years now. A great deal better now than in the early days. I have a page on my website about my experiences Don't think Youtube will let me post the link, but google medwaymaria
Great vid btw
medwaymaria 9 months ago
This has been flagged as spam show
Thanks for making this video. xx
rcoldbreath 9 months ago
This has been flagged as spam show
Thanks for making this video. xx
rcoldbreath 9 months ago
Thanks for making this video. xx
rcoldbreath 9 months ago
This was so moving, it made me well up :'( you are so brave for putting this video on YouTube, I will definitely mention this in one of my videos, your cause needs more awareness. xo
LauraTheLollipopp 9 months ago
feeling bad about your pain. appreciate the courage. hang in there. <3
gz & the people of earth
ghostofzigz 9 months ago
Thank you for the video. I saw a tweet about it and after watching this, will retweet it myself because it was eye opening and very honest. Daisy you are a v.articulate soul. x x
Yazzselena 9 months ago 4
Thank you for making this video Daisy to bring awareness of ME. I hope your condition improves. xx
feb4512 9 months ago 2
Inspirational. x
ConsignToOblivion 9 months ago 2
I have to comment again - my first comment doesn't do this justice. Daisy is an amazing person and friend who has been through so much, but is always there for everyone. This video is excellent and deserves the attention it is getting. I am glad my pics can play a small part. Well done, hun! Lots of love xxx
redtoffee 9 months ago 3
well done daisy for using your experience to help others, i hope good things come to you and that your voice will be heard on a greater level so more people can understand what effect this has on a massive volume of people. take care stay strong and i hope that your video brings an understanding to those who dont know or have just discovered they have it and those that have to look after close family that suffer too. fair shout for coleen for helping you aswell it helps a lot take care and gl x
benjeman36 9 months ago 2
Love the video, it's great that you're spreading awareness. I've had M.E for four years, and it's so frustrating that people don't count it as a 'real' illness, because I'm not visibly ill or disabled. My headmaster thinks I'm school-phobic, and pretty much everyone thinks I'm faking, or 'oh, you're just tired, so sleep more'. Thank you for making this video, I hope you improve soon :) x
ChronicallyGeeky 9 months ago 3
Coleen Rooney bought me here, thank you Coleen!
and also to you Daisy, for this wonderful video, really eye-opening. :)
DriftK13 9 months ago
2 Dislikes? Wow, knobs.
Megvid07 9 months ago 35
This is so moving. You're very brave to be sharing your personal experiences with the rest of the world who may not even know what M.E is. Really wonderful video, Daisy <3
TheAmyDayy 9 months ago 17
An awesome informative video, Daisy. :) I'm an M.E sufferer too and I've come into contact with so many people who are ignorant about the illness and just call me lazy or think I'm faking it. :( If I'm honest, it does hurt. :(
gothicmidnightrose 9 months ago 2
lvly to see you back. Great video :-)
sallyfarr 9 months ago
Brilliant and brave video, thank you! :)
GetWellFromME 9 months ago
well done daisy!x
Megvid07 9 months ago
Amazing video, well done!
xsizx 9 months ago
I love it Daisy. Honoured to be a part of it xxxx
MeeshMouseBlue 9 months ago
Such a great video , thankyou for making it xx
rachey11 9 months ago
AMAZING, beautiful!
Laura
~X~
redtoffee 9 months ago
Love you <3
wiggybluebear 9 months ago
amazing gorgeousss! <3
rachelwhiteheadd 9 months ago
Comment removed
sallyfarr 9 months ago
Absolutely brilliant :D Daisy, you're a star :) Happy to be a part of it! xx
Becca1803 9 months ago
Yay go daisy! Thanks for making this to try to help raise awareness for us all xx
rattybollox 9 months ago
Comment removed
sallyfarr 9 months ago