I didn't get diagnosed 'till I was 27. I got my first dislocation when I was 7 months pregnant and you can dislocate when you're pregnant anyway. I did gymnastics in high school and other sports growing up. It is genetic, my sister has it too, we believe we got it from our father, but he hasn't been diagnosed. They have both had several dislocations. For me, it's not a big deal, it just sucked when I was pregnant.
PLEASE DONT READ THIS ,YES I HATE THIS BUT THIS IS TRUE.KELSEY BRIGGS IS A GIRL THAT DIED PEOPLE DONT KNOW HOW BUT IM SURE YOU WILL FIND OUT ON GOOGLE,WELL LOTS OF PEOPLE SAID THEY HAVE FOUND HER IN THEIR BEDROOM ,WHEN YOU SEE HER THE 4TH TIME SHE WILL KILL YOU AND YOUR FAMILY FORGETS ABOUT YOU ITS REALY SAD THE ONLY WAY TO PREVENT THIS DEATH IS TO COPY THIS ON 3 OTHER VIDEOS!!!I AM REALY SORRY I HATE PEOPLE WHO WRITE THIS!AND THIS IS TRUE SEARCH IT UP ON GOOGLE!START NOW
From vid I'd say good chance but you would know about dislocations if your anything like me how about hips? What's your left shoulder feeling like? Twist ankles now or when you where younger? All these things really mean nothing there are so many cross overs it's hard to tell.
I have EDS... I'm one of the those who gets frequent dislocations, but I've heard not everyone with EDS gets so easily dislocated...my point is, just because you don't get dislocated, doesn't necessarily mean you don't have EDS...my advice is to get a genetic test...
super duper eds..I have the same thing. If you are in alot of pain I would say yes. They have genetic testing. I have mixed eds which is both hypermobile and vascular. Just had heart surgery to fix the supra ventricular Tachycardia and it didnt work which leaves the only explanation of dysautonomia-vascular eds. sucks but I adapt ...accept and move on...learn to live with it. Its the only way to be happy.
Wow I was diagnosed with it when I was born. My mom pinched my and said...."yep she got it". It Is a lot of times genetic.... I thought it was genetic in till I saw some of these comments about people being diagnosed with when the were near their teens and twentys.
i have been diagnosed with eds hypermobility type. i went to a geneticist and they asked me to perform certain tasks and examined scars and felt my skin along with observing other qualities. bad scarring from wounds even minor ones is something they looked for tho u dont have to have that, i dont. another is the backwards angle of different joints when straightened but not forced. along with being stretchy the skin is also very soft quote "doughy".
I had this with my knee it kept dislocating so I trained weights on my legs and made my legs big and it hasn't dislocated since and I practice taekwondo
Hey, I have it too, and the symptoms are pretty mild, I don't have nearly the same elasticity in my skin, I have almost none. I'm very flexible, but not quite double jointed. I do scar a tad differently, like a scar is flat and light. something called cigarette paper scarring. My bones are a little thin as well. hopefully you don't have it too bad, I know I could be a lot worse.
Cant you guys see we are not alone in this world the aliens are here and and they wear human skin!!! I fcing new it man 2012 is comming you will see for your self jk lmfao hahahahahaha
You need to check the Beighton Scale. A score of 4 or more will indicate positive for Hypermobility. The stretchy skin is a definite sign of collagen issues. If the scale proves a scale of above 4, you have pain in one or more joint for over 3 months then get your GP to refer you to a rheumatologist. I appreciate this is nearly 2 years after your post, but just in case. It took me too long to get my EDS type 3 diagnosis, so would like to help :)
I would say that you are displaying some characteristics of EDS classical type and should seek a diagnosis from your doctor as classical type can have serious surgical complications you and your doctor should know about before you go under the knife so that precautions may be taken. Your organs could also be in danger of rupturing, so please seek medical diagnosis as soon as you can.
The fact that your joints have come out at all suggests hypermobility! I have just found out I have hypermobility in my elbows and hips and I'm nearly 40! My daughter has it in the same joints as me. When she was diagnosed I had no idea I could do tricks too! You must get a diagnosis because there can be other implications with your health. Good luck!
do any other joint, like your hips, knees, elbows, shoulders, or any other joints have hypermobility like your fingers do?
I wouldn't worry about EDS if you aren't suffering pain. :) Although there is a possibility you have the gene mutation, that doesn't mean you have the syndrome. You could mention it to a doctor, or something, in the case that you begin to develop the pain and problems. :):)
@moblifex when straightened but not forced backwards do your elbows and knees go backwards more than your friends? do you have bad eyesight or bad teeth? is your skin very soft and feels similar to pie crust dough? can you do things like force your shoulder down so that there is a visible dip on front of shoulder right over the socket, but it is not fully dislocated? do you scar easily? even from little wounds? if several of these apply to you visit a geneticist.
@MCRdarkfaerie thats a pritty sweeeping generalisation, i suffer almost no pain at all. and when i do dislocate, it hurts. slightly. my skin is not transparent, niether do i have arthritis(ATM only 17) my scars ARE different . my point is not all symptoms are prodominent.
not really, actually. Those're warning signs of EDS. I'm not transparent, just bringing up warning signs of EDS. ok?
If you have next to no pain, I would say that does not seem to be EDS because Ehlers Danlos is an extremely painful disease, and you seem also to be saying you don't dislocate often, which seems like way "out there" for an EDSer.
idk. I don't know YOU, so I cannot judge fully. But it does sound like BHMD.
Frequent dislocations, and pain must be prodominant. If not, you may have the EDS gene mutation, but you probably have not developed the actual syndrome yet.
I doubt it is a dislocation if it only slightly hurts. I have an extremely high pain tolerance, and dislocations still hurt...you probably confuse subbluxations with dislocations, like most people.
wow your fingers are insane. that;s fucking insane. bendier than mine. you most definitley have eds. your skin totally gives it away. to be honest, you might not even want to know what may come with eds. it fucking blows. but good luck.
There is a chance that you may have EDS, one of the symptoms is stretchy skin, and you definetely have quite stretchy skin, and also if you have flexible fingers, ask you doctor and see if you're diagnosed with it. You can't just do a self check. Perhaps if your joints are hurting, then you many..
Easy dude, i have the same thing, strechy skin but never had a dislocted joint or any of that...I only realised the other week and im 29 now...never had any problems and do loads of sport...if u r worried go and see the doctor but I im sure its nothing to worry about...looking on the internet makes anyone paranoid =0)
@moblifex if you do have eds-h it is important to know. children will have it or be a carrier. due to the collagen defect that causes this your heart valve can elongate which can be potentially deadly. also your retina can detatch, if caught early this can be fixed. every time you have your yearly eye check have them dialate your eyes to check for this and have and echocardiogram biyearly to check your heart
@moblifex if you do have eds-h it is important to know. children will have it or be a carrier. due to the collagen defect that causes this your heart valve can elongate which can be potentially deadly. also your retina can detatch, if caught early this can be fixed. every time you have your yearly eye check have them dialate your eyes to check for this and have and echocardiogram biyearly to check your heart. the eds national foundation is a good resource
you may have it. other symtoms include very soft pale translucent skin. i have got EDS hypermobility type and you can damn near trace the veins that run through my body. i would make an appt with an osteopath, too often is it misdiagnosed as being double jointed.
@cartercool90 Yeah, when I was a baby my arm used to come out of socket a lot. This school year I also dislocated my pinky. Other than that nothing though.
@moblifex Not every hypermobile person has dislocations or pain, your best bet is to do light weighttraining just to strenghen your muscles and i bet your hypermobility wont give you problems later.
on youtube there is a special song for my grandaughter our star poppy please listen to the words and leave feeback for my daughter shes a great listeners as well and know so much about this desease thanks
thought id let you all know my daughter who is 27 has just been told she carries the gene eladanlos she had a son who died 3 years ago my grandson he had she has since had 2 more little girls they both have this my daughter has only just been told its genetic and she has it she would never have had anychildren if she had known she was a gene carrier its sad to watch thos 2 little girls and both are sick children but thankyouxx
There are several different types of EDS and some affect the internal organs causing them to rupture. I am sure you can find a website to educate yourself on the issues!
keep in mind... even though pain is very common in EDS you dont always have to have pain to have EDS.. my version of EDS only affects my skin (scar and bruise easily) healing takes very long and my joints are very mobile but do not dislocate.. my EDS actually prevented me from breaking bones.. I have classical EDS, but I have no pain.
sometimes the pain doesn't start until you get older, but doing things that cause your joints to sublex and or dislocate now will exacerbate the pain later. You should be very careful about that. I would recommend finding a good geneticist or rheumatologist so that you can be properly diagnosed.
Ok so it is a chance you could have EDS. I do. I dislocate a lot and I am flexible. Do you know what EDS is if you don't or want to know more message me and I will let you know.
You definitely exhibit some EDS "clues", it might be helpful to know for sure if you are in sports, considering having children and/or if other related health conditions emerge. Take care of yourself.
well you could be luckey and have these things by coincedence. (a lot of people have one hypermobile joint) youre skin isnt exreme stecheble (but just enough for one point on a test)
umm its possible that you have the classicle type (they are hypermobile but not on all joints)
does anyone in youre family has eds? have you seen a dokter?
are only youre hands hypermobile? or other joint to? you should go to a dokter. and ow, youre skin is as strecheble as mine (i have eds) youre lucky to be a boy, you have more muscels to keep youre joints in place. are you in pain? do you have subluxations/luxations?
you can do a test on the internet to see if you have it
I didn't get diagnosed 'till I was 27. I got my first dislocation when I was 7 months pregnant and you can dislocate when you're pregnant anyway. I did gymnastics in high school and other sports growing up. It is genetic, my sister has it too, we believe we got it from our father, but he hasn't been diagnosed. They have both had several dislocations. For me, it's not a big deal, it just sucked when I was pregnant.
PetiteItalianCorine 1 month ago
PLEASE DONT READ THIS ,YES I HATE THIS BUT THIS IS TRUE.KELSEY BRIGGS IS A GIRL THAT DIED PEOPLE DONT KNOW HOW BUT IM SURE YOU WILL FIND OUT ON GOOGLE,WELL LOTS OF PEOPLE SAID THEY HAVE FOUND HER IN THEIR BEDROOM ,WHEN YOU SEE HER THE 4TH TIME SHE WILL KILL YOU AND YOUR FAMILY FORGETS ABOUT YOU ITS REALY SAD THE ONLY WAY TO PREVENT THIS DEATH IS TO COPY THIS ON 3 OTHER VIDEOS!!!I AM REALY SORRY I HATE PEOPLE WHO WRITE THIS!AND THIS IS TRUE SEARCH IT UP ON GOOGLE!START NOW
CosplayDayz 2 months ago
From vid I'd say good chance but you would know about dislocations if your anything like me how about hips? What's your left shoulder feeling like? Twist ankles now or when you where younger? All these things really mean nothing there are so many cross overs it's hard to tell.
darkenlight22 2 months ago
I have EDS... I'm one of the those who gets frequent dislocations, but I've heard not everyone with EDS gets so easily dislocated...my point is, just because you don't get dislocated, doesn't necessarily mean you don't have EDS...my advice is to get a genetic test...
angelginel 4 months ago
Comment removed
angelginel 4 months ago
i can do this thing with the finger on 0:24
shanaki90 4 months ago
just need a soul dude
Timb0NZ 7 months ago 2
super duper eds..I have the same thing. If you are in alot of pain I would say yes. They have genetic testing. I have mixed eds which is both hypermobile and vascular. Just had heart surgery to fix the supra ventricular Tachycardia and it didnt work which leaves the only explanation of dysautonomia-vascular eds. sucks but I adapt ...accept and move on...learn to live with it. Its the only way to be happy.
Kidswithdisabilities 7 months ago
Wow I was diagnosed with it when I was born. My mom pinched my and said...."yep she got it". It Is a lot of times genetic.... I thought it was genetic in till I saw some of these comments about people being diagnosed with when the were near their teens and twentys.
libbydeland 8 months ago
hemust be a riot at parties XD
gammaray4evrr 10 months ago
I have EDS, I can do that kind of things too. I dislocated alot.
Konto1min 10 months ago
@annafortune is HMS dangerous then ?
EmilSM64 1 year ago
i have been diagnosed with eds hypermobility type. i went to a geneticist and they asked me to perform certain tasks and examined scars and felt my skin along with observing other qualities. bad scarring from wounds even minor ones is something they looked for tho u dont have to have that, i dont. another is the backwards angle of different joints when straightened but not forced. along with being stretchy the skin is also very soft quote "doughy".
annafortune 1 year ago
holy fuck your finger!!!!!!!!!!!!!! other than that... everyone can do that with there neck.... unless they weigh like 400 pounds
DaBossk 1 year ago
gay
crissdefou321 1 year ago
Is that all you can do? If so, no, your just double jointed with some strechy skin
Swimmingmania 1 year ago
You have EDS 100%
MimiSkitty 1 year ago
I had this with my knee it kept dislocating so I trained weights on my legs and made my legs big and it hasn't dislocated since and I practice taekwondo
nesquikrabb1t 1 year ago
Hey, I have it too, and the symptoms are pretty mild, I don't have nearly the same elasticity in my skin, I have almost none. I'm very flexible, but not quite double jointed. I do scar a tad differently, like a scar is flat and light. something called cigarette paper scarring. My bones are a little thin as well. hopefully you don't have it too bad, I know I could be a lot worse.
Coveselic 1 year ago
Cant you guys see we are not alone in this world the aliens are here and and they wear human skin!!! I fcing new it man 2012 is comming you will see for your self jk lmfao hahahahahaha
Sasule21 1 year ago
You need to check the Beighton Scale. A score of 4 or more will indicate positive for Hypermobility. The stretchy skin is a definite sign of collagen issues. If the scale proves a scale of above 4, you have pain in one or more joint for over 3 months then get your GP to refer you to a rheumatologist. I appreciate this is nearly 2 years after your post, but just in case. It took me too long to get my EDS type 3 diagnosis, so would like to help :)
miliamince 1 year ago
I would say that you are displaying some characteristics of EDS classical type and should seek a diagnosis from your doctor as classical type can have serious surgical complications you and your doctor should know about before you go under the knife so that precautions may be taken. Your organs could also be in danger of rupturing, so please seek medical diagnosis as soon as you can.
MissMochibon 1 year ago
oh my...............................
Randomeshows 1 year ago
Stay away from manual labor or heavy weight lifting otherwise you will find yourself in a lot of pain as you get older
mah781 1 year ago
The fact that your joints have come out at all suggests hypermobility! I have just found out I have hypermobility in my elbows and hips and I'm nearly 40! My daughter has it in the same joints as me. When she was diagnosed I had no idea I could do tricks too! You must get a diagnosis because there can be other implications with your health. Good luck!
squirrelchops7 1 year ago
I vote YES. I hope you have seen a doctor since this was filmed.
jmckjones 1 year ago
not neccessarily. How many Joints are Hypermobile?
stretchy skin does not confirm EDS?
how do your scars look?
is your skin transparrent-like on your trunk?
do you have arthritis?
chondramalacia?
loads of pain every second of the day?
MCRdarkfaerie 1 year ago
@MCRdarkfaerie 6 fingers, both thumbs.
moblifex 1 year ago
@moblifex
do any other joint, like your hips, knees, elbows, shoulders, or any other joints have hypermobility like your fingers do?
I wouldn't worry about EDS if you aren't suffering pain. :) Although there is a possibility you have the gene mutation, that doesn't mean you have the syndrome. You could mention it to a doctor, or something, in the case that you begin to develop the pain and problems. :):)
MCRdarkfaerie 1 year ago
@moblifex when straightened but not forced backwards do your elbows and knees go backwards more than your friends? do you have bad eyesight or bad teeth? is your skin very soft and feels similar to pie crust dough? can you do things like force your shoulder down so that there is a visible dip on front of shoulder right over the socket, but it is not fully dislocated? do you scar easily? even from little wounds? if several of these apply to you visit a geneticist.
annafortune 1 year ago
@MCRdarkfaerie thats a pritty sweeeping generalisation, i suffer almost no pain at all. and when i do dislocate, it hurts. slightly. my skin is not transparent, niether do i have arthritis(ATM only 17) my scars ARE different . my point is not all symptoms are prodominent.
xBLuRxGINGx 1 year ago
@xBLuRxGINGx
not really, actually. Those're warning signs of EDS. I'm not transparent, just bringing up warning signs of EDS. ok?
If you have next to no pain, I would say that does not seem to be EDS because Ehlers Danlos is an extremely painful disease, and you seem also to be saying you don't dislocate often, which seems like way "out there" for an EDSer.
idk. I don't know YOU, so I cannot judge fully. But it does sound like BHMD.
-Kat
MCRdarkfaerie 1 year ago
@xBLuRxGINGx
Frequent dislocations, and pain must be prodominant. If not, you may have the EDS gene mutation, but you probably have not developed the actual syndrome yet.
I doubt it is a dislocation if it only slightly hurts. I have an extremely high pain tolerance, and dislocations still hurt...you probably confuse subbluxations with dislocations, like most people.
-Katlyn Constance
MCRdarkfaerie 1 year ago
@MCRdarkfaerie
for sure you have EDS! my daughter has it also. I have so much research on this syndrome that I would say an absolute yes
rebeccacarson4 3 days ago
wow your fingers are insane. that;s fucking insane. bendier than mine. you most definitley have eds. your skin totally gives it away. to be honest, you might not even want to know what may come with eds. it fucking blows. but good luck.
MsVintageprincess 1 year ago
There is a chance that you may have EDS, one of the symptoms is stretchy skin, and you definetely have quite stretchy skin, and also if you have flexible fingers, ask you doctor and see if you're diagnosed with it. You can't just do a self check. Perhaps if your joints are hurting, then you many..
Insaneymaney 2 years ago
I have similar skin but my fingers aren't flexabel.
I can't even let it crack.
nitat 2 years ago
I can do that!
Lilpwincess100 2 years ago
my brother has hypermobile syndrome/EDS
evilmonsterbear711 2 years ago
lol cool
nomimagic 2 years ago
Easy dude, i have the same thing, strechy skin but never had a dislocted joint or any of that...I only realised the other week and im 29 now...never had any problems and do loads of sport...if u r worried go and see the doctor but I im sure its nothing to worry about...looking on the internet makes anyone paranoid =0)
antjmi 2 years ago
Thanks.
moblifex 2 years ago
@moblifex if you do have eds-h it is important to know. children will have it or be a carrier. due to the collagen defect that causes this your heart valve can elongate which can be potentially deadly. also your retina can detatch, if caught early this can be fixed. every time you have your yearly eye check have them dialate your eyes to check for this and have and echocardiogram biyearly to check your heart
annafortune 1 year ago
@moblifex if you do have eds-h it is important to know. children will have it or be a carrier. due to the collagen defect that causes this your heart valve can elongate which can be potentially deadly. also your retina can detatch, if caught early this can be fixed. every time you have your yearly eye check have them dialate your eyes to check for this and have and echocardiogram biyearly to check your heart. the eds national foundation is a good resource
annafortune 1 year ago
you may have it. other symtoms include very soft pale translucent skin. i have got EDS hypermobility type and you can damn near trace the veins that run through my body. i would make an appt with an osteopath, too often is it misdiagnosed as being double jointed.
EmilyCullen1229 2 years ago
oh!
i''ve got EDS (only 35%)
plz if you wanna live take kare with sport
i swim becous that is everything i can do
(sry for my english)
musicalnightmare51 2 years ago
yep u have it lol
ap0llocreed 2 years ago
The skins just elastic because of high amounts of cologen isnt it? My skins like that too.. not my fingers though
KineticLifter 2 years ago
Hypermobility Syndrome, yeah...ED? maybe if your joints constantly dislocate them selves...i'm not sure...
Gymnasticspenguin96 2 years ago
have you ever dislocated a joint?
if so it is very possible
cartercool90 2 years ago
@cartercool90 Yeah, when I was a baby my arm used to come out of socket a lot. This school year I also dislocated my pinky. Other than that nothing though.
moblifex 1 year ago
@moblifex Not every hypermobile person has dislocations or pain, your best bet is to do light weighttraining just to strenghen your muscles and i bet your hypermobility wont give you problems later.
LucaBlightBadass 1 month ago
damn i have that too your fingers are worse than mine though
roethlisberger1229 2 years ago
i think you might
BuddyBoy091994 2 years ago
hah
vihtorik 2 years ago
What the fuck
Angerfist1211 2 years ago
I'm sure you have EDS.
maudetorterat 2 years ago 2
wow my god your finger is so weidly awesome
1994cg 2 years ago
on youtube there is a special song for my grandaughter our star poppy please listen to the words and leave feeback for my daughter shes a great listeners as well and know so much about this desease thanks
silverblo 2 years ago
thought id let you all know my daughter who is 27 has just been told she carries the gene eladanlos she had a son who died 3 years ago my grandson he had she has since had 2 more little girls they both have this my daughter has only just been told its genetic and she has it she would never have had anychildren if she had known she was a gene carrier its sad to watch thos 2 little girls and both are sick children but thankyouxx
silverblo 2 years ago
how can you die because of this?
CarlosJulio20 2 years ago
There are several different types of EDS and some affect the internal organs causing them to rupture. I am sure you can find a website to educate yourself on the issues!
kellybellows1 2 years ago
keep in mind... even though pain is very common in EDS you dont always have to have pain to have EDS.. my version of EDS only affects my skin (scar and bruise easily) healing takes very long and my joints are very mobile but do not dislocate.. my EDS actually prevented me from breaking bones.. I have classical EDS, but I have no pain.
funkyblue3 2 years ago
you are lucky
BuddyBoy091994 2 years ago
sometimes the pain doesn't start until you get older, but doing things that cause your joints to sublex and or dislocate now will exacerbate the pain later. You should be very careful about that. I would recommend finding a good geneticist or rheumatologist so that you can be properly diagnosed.
cntrydncegrl 2 years ago
Ok so it is a chance you could have EDS. I do. I dislocate a lot and I am flexible. Do you know what EDS is if you don't or want to know more message me and I will let you know.
Christy!
christyRenee2012 2 years ago
pedro es bulimico
kokolao 3 years ago
You definitely exhibit some EDS "clues", it might be helpful to know for sure if you are in sports, considering having children and/or if other related health conditions emerge. Take care of yourself.
pupudwagon 3 years ago
you can have it, or you have a other conective tissue disorder..
becuz conective tissue makes your skin "tight" and your skin isnt ;)
sn1pzor 3 years ago
holly fuck
ey kid just a good advice
don`t ever ever ever gain wait because when you lose it that would be a bad sight
RealDefentertainment 3 years ago
You suck at guitar too.
TheloniousScott 3 years ago
well you could be luckey and have these things by coincedence. (a lot of people have one hypermobile joint) youre skin isnt exreme stecheble (but just enough for one point on a test)
umm its possible that you have the classicle type (they are hypermobile but not on all joints)
does anyone in youre family has eds? have you seen a dokter?
inkie1990 3 years ago
No one in my family that i know of, and i haven't been to a doctor yet.
moblifex 3 years ago
are only youre hands hypermobile? or other joint to? you should go to a dokter. and ow, youre skin is as strecheble as mine (i have eds) youre lucky to be a boy, you have more muscels to keep youre joints in place. are you in pain? do you have subluxations/luxations?
you can do a test on the internet to see if you have it
taken care
inkie1990 3 years ago
It's just my fingers, and it doesn't hurt. And my joints haven't come out of socket since I was a baby.
moblifex 3 years ago
umm yeah..I'm thinkin you do have EDS, get it checked out..
tropicalstorm01 3 years ago