Added: 1 year ago
From: CoolKarmaVideo
Views: 1,821
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  • great video, wish I'd discovered it when I was first diagnosed in July! it's a nice way to show my pals who don't have PoTS what is happening to my heart when I stand up, that I'm not making it all up, & that it genuinely is exhausting, simply standing for a few mins makes me feel like I've ran a marathon (which my heart probably has....). my body can take a lot before I faint too, even with my heart rate at 170bpm and I don't always black out fully. very grateful of that! :^D

  • I have CFS and think I have this. I wonder how/where to get this tilt table test.

  • I have POTS too. I have lots of bad reactions to foods, chemicals, and medicines also. One of my doctors thinks I have multiple chemical sensitivity. Another doctor thinks I have mast cell activation disorder.

  • I appreciate your taking the time and effort to make this and share it. It's an excellent way to really show what is happening inside our bodies that people cannot see (and often either disbelieve or think isn't any big deal). Thank you.

  • Me and you are so much alike. I have POTS too, my heart races like crazy when I stand up and I get REALLY lightheaded and dizzy, but I never faint. I guess my heart is strong too.

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  • Thanks so much for this - my friend with POTS showed me this to better understand her daily life. Wow...best wishes for MUCH improved treatment in the future. For you and my girl...

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