Prader Willi Syndrome

[lilcourt19]

thank you for posting this video I am doing a report in this disorder for school

[mashastef]

he is so beautiful.. your love for him is so touching.. thank you for sharing this!

[desyuu]

he is sooo cute <3

[gvanroon]

beatifull son, you should be proud of him

[mira1617]

My daughter was diagnosed with PWS this past week. You have a really beautiful son. Thankyou so much for sharing this video.

[praderwillimomof1]

No they can't do that. He is missing chromosome 15. Diet pills nothing will work right now. He is missing the part that goes from his brain to his stomach. No cure to date.

[cassiesmum]

I know nothing of this disease, but could they not insert a balloon into the stomach's of sufferers to give the impression of being full and also taking in less calories?

[56785439]

@cassiesmum  its not a disease its a rare genetic disorder/syndrome i know becuase i have it to

[TheHello126]

beautiful, this made me cry.... he is beautiful

[MariuxiMendozaY]

HEE IISS SOOOOO BEAUTIFUULL AND CUTEE HIS LITTLE FACE ISS AADOORABLE<33

[alexis33322]

OMG hes sooooo cute!!!

[ydelspatz]

Oh, God Bless you and your family.

[ydelspatz]

Congratulations for a beautiful film... Thank you for clarifications.

Ydel

from Brasil.

[cassiesmum]

He`s such a handsome little boy!God bless.xx

[LaydeeCLow]

my daughter also has prader-willi & i would like to keep in contact with you if possible, send me a friend request because i cant do it from my phone. Thanks.

[m1cab]

You have a lovely son!

[thimsnohj10]

He's AMAZING, and those beautiful eyes! You must be so proud of him!! :)

[grandma95129]

Your beautiful son is precious, thank you for sharing that lttle angel with us :-)

[333pinkitty]

hes so cute...How do the doctors know to check for PWS at the infantile stage?? are there any other symptoms besides the child feeling hungry all the time. I cant imagine how uncomfortable that must be for a little baby to feel like hes always hungry..

[crocqueen12]

great film i have pws and im 23 i love it when i see parents that really believe that their child can lead a normal life my mum is the same and because she believes in me i live with friends and go to college and i love my life it does get me down sometimes but i just carry on you have a beautiful boy

[praderwillimomof1]

@crocqueen12 Thanks! Glad to see you are doing good! I love to hear positive stories about PWS. How are you doing?

[crocqueen12]

@praderwillimomof1 im doing great thanks and enjoing life to the maximum and i would't want it any other way i like seeing positive stories about PWS too because it shows that people understand what it is like and how difficult it can be. Living with friends and having a family that supports and cares about me is what's important the most and because they believe in me i believe in myself hope you and your family are doing ok xx

[tekubus]

aww he is soooo cute!!! is he a retard?

[praderwillimomof1]

@tekubus How old are you and you still say childish crap... I hope my son never has to deal with a jerk like you! And NO my son is not a RETARD. If you dont have anything nice to say stay off of my page!

[tekubus]

@praderwillimomof1 Im sorry :( I think he is really cute.

[davidhammond0203]

he is just beautiful and very lucky to have you guys as parents! may God bless you all.

[PauleQueenie]

I hope that not only the people who have family members or friends with Prader Willi Syndrome wish for a CURE to be found.

Happy New Year 2011 to all

[CLLs40]

I work with adults that have PWS. They are great!!

[ynonu]

とても可愛い！私の息子もPWSです。

日本語でごめんなさい

[mrjolly68]

this is such a beautiful film he's lucky to have you as parents. i'm always amazed at where our kids get their strength from

[praderwillimomof1]

@mrjolly68 Thanks so much for the nice comments!

[karlkarlkarl1234]

Looks normal. Hopefully the growth hormone shots worked.

[neuae]

Prader-Willi Syndrome is a defect at long arm of chromosom 15 and parentral imprinting cause the mutation. lucky families who have PWS, angel like people> thx 4 the video

[fibee1380]

this brought tears to my eyes....... i really hope one day they find a cure... my son was misdiagnosed on purpose by a pediatrician hired by family services and we later found out we were being lied to when we found out he had a different chromosomal abnormality to prader willi... he turned out to only have a 12 month delay, but looking at this syndrome and being told by so-called professionals that he had this horrible disease made me sick!! i wish all the best for u and ur family

[l00pylise]

@kooldaug what a pathetic comment obviously from a pathetic person!!!!!

[l00pylise]

my daughter has pws, she was diagnosed at 6 weeks old, she is now 18 years old and with lots of support is doing just great, love to your beautiful son x

[sopynaz]

hi, thank you for sharing this picture.

my nephew has pws too. we don't know anything about pws child. need help and advice from parents that have similar case like us. tq

[praderwillimomof1]

@sopynaz You can find me on Facebook and I have alot of friends who have kids with PWS

[clairey2kuk]

i work with young adults with pws its so complex, wish you all the luck in the world xx

[CLLs40]

@clairey2kuk I work with adults in the USA, they are great people!!

[katmobile59]

my grandson is one month old today and has pws. We love him to pieces and wouldn't know what to do without him! He is my first grandbaby and I am actually babysitting for him right now to give mommy and daddy a little break. He has a feeding tube cause he doesn't take much from the bottle. I pray for him every day! And for all the pws babies! thanks for the video! God Bless!

[laysit]

so good for uuu u need lovss to m,uchh ur baby .... i hope u and ur cute baby are good

[joslinmiller]

wow am i proud to say i'm related to this little butt head ; ) i love him and you guys. hope you are all doing well.

[israelamador13]

im doing a health project on this... i have to find out the symptoms treatment famous people with this effects what causes it and yea...

[destinsmommy1]

@ricolikepal

You are a punk...and a loser... i will never understand how anyone can say such nasty things about anyone much less a sick child. But you will pay for what you have said one day.. and for the pathetic person that you are.. your trash. Karma's a btch and you will reap what you sew.

[destinsmommy1]

@ricolikepal

You are a loser... and you will pay for the nasty things you say about people...

I will never understand how anyone can say such mean things about anyone much less a sick child. Karma is a bitch... and you will reap what you sew!!

[destinsmommy1]

I love him soooo much... give him and riley a million kisses from me!!

Love you all,

Logan Samantha

[praderwillimomof1]

@destinsmommy1 .We love you and miss you too!

[breachmania]

What causes this?

[erickaphish]

Your son is beautiful. Our son will be one year old soon, and he has prader willi also. Seeing this gives me hope, and we look forward to watching him grow up. Like Graisen, our son has an endless smile and is the light in our lives.

[BigGriff1000]

Thank you all for the comments..Graisen is a great kid and I'm proud to be his dad..

[DianeCamurat]

Thank you for this beautiful video. It brought tears to my eyes -- tears of compassion for the chidren and adults who courageously live with this syndrome, tears because I am so moved by the love you expressed to your son in this film. You go Graisen! You are beautiful.

[zepixeltracer]

this is so sad

[praderwillivirtual]

Thank you for a so beautiful video! It has really interesting pictures of how is a PW baby!

[jammerings1]

what a beautiful child. my son mathias is 3 with PWS. He amazes us everyday

[gesmatt]

Our son Jan looked exactly the same as Graisen at the second picture in his hospital bed! He is 21 month now.

[firekight97]

u know when ppl like doctors and scientists r trying 2 make the cure but they dont have enought money 4 the research and they ask ppl 2 give them money but the ppl r so greedy that they use it 4 poker, drugs and beer. i wish u a good luck and i pray 2 ur son 2 live.

[blahdob]

Yeah, every time I go to the casino there are a bunch of people in labcoats getting pissed

ps.what does prader willi syndrome do?

[firekight97]

@blahdob not sure really

[beaks2lee]

beautiful beautiful my son is 7 . I love him every day that passes.

[ThatGuyWithTehMusic]

Haha, 3:11 is awesome. You have a cute kid!

[praderwillimomof1]

Thanks so much! That picture is funny...He just did that on his own! LOL

[re707]

Aww he's so cute

[praderwillimomof1]

Thanks sooo much! We think so too! LOL

[JennyKelly20]

<3 Lovley video I work with adults and young adults with prader willi thanx for spreading awareness

[praderwillimomof1]

Thanks for watching! It means alot to us!

[ragtharan]

Im asking because he looks normal to me.

[ragtharan]

How did you realize for the first time Graise has a problem?

[praderwillimomof1]

When he was first born...He was what they call FLOPPY and he couldn't suck a bottle,a few other things.After a month in the hospital we found out he had it. He just turned two on the 20th of June and he still can't walk or talk a whole lot. But he is starting to crawl now! If you have anymore questions just ask me!! Thanks for watching the video!

[JaylenE46]

Wow My son has prader willi also, he was in the hospital a month before we found out and he turned 2 june 21

[praderwillimomof1]

How is your son doing? Is he walking yet? Do you have a Facebook?? Maybe we can talk sometime and get ideas from each other?!

[lewellen33]

wow do i miss graisen. n you guys.

you made me freakin cry butt head! but

let em kno that i love em. can't

wait to see you guys again.

happy mothers day mama!

[tamos0621]

WE LOVE YOU GRAISEN!!